[epilepsy] Re: phenobarbital?

 

Hi Sue,

If you still have those couple of drop seizures each year, why haven't you tried changing your meds to get seizures under control?

I was on pheno from 1975-1988, and just like you, it couldn't control my seizures. We both are in the 25% of people with epilepsy, seizures not under control with meds.

I would rather try changing meds and see how the meds side effects affect me rather than not having seizures under control. But we all look at life differently. Just like I have stayed on my meds rather than decrease them in time after surgery.

Steve

--- In epilepsy@yahoogroups.com, Sue Joan <gswidemark@...> wrote:
>
> I've been on the same dosage of phenobarbital for over 40 years. No side effects, no sz except an occasional - like a couple of times a year, short "drop out" sz. Like a second or two in duration. That being said, I do live healthy. No caffeine, no tea, no smoking etc. I do cardio daily etc.
>
> Pheno is actually the safest drug there is for a sz disorder. They wanted to put me on tegretal many years ago and I refused due to the side effect of blood dyscrasias with Tegretal.
>
> Sent from my iPad
>

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