By addictive I mean its hard to get off, if you had to be weened off like I was weened of clonopin 0 that was the worst time I ever had in my life and wished I was never put on that - I had hallucinations, couldn't sleep, couldn't stop shaking, had night tremors and hot/cold flashes.
________________________________
From: Millie Myers <mylmy@gogreencroft.net>
To: epilepsy@yahoogroups.com
Sent: Tuesday, December 27, 2011 2:20 AM
Subject: Re: [epilepsy] phenobarbital?
Susan,
If by addictive -- you mean you need more all the time.-- that is not in my case.
I've taken the same amount all the time.
The only side effects I have of either of the 2 meds-- Dilantin and Pheno is that
it affects my gums. They tell me that Dilantin does that. and my dentist works
with that.
Millie
----- Original Message -----
From: Susan Wain
To: epilepsy@yahoogroups.com
Sent: Monday, December 26, 2011 5:45 PM
Subject: Re: [epilepsy] phenobarbital?
My docs refused to put me on pheono as they siad it was addictive and had many side effects
________________________________
From: Millie Myers <mylmy@gogreencroft.net>
To: epilepsy@yahoogroups.com
Sent: Saturday, December 24, 2011 12:47 PM
Subject: Re: [epilepsy] phenobarbital?
Timothy,
That is a possibility. I've often wandered why they take you off
of something that is working and put you on something that doesn't.
I have been on Dilantin and Phenabarb for over 20 years. They are two
of the oldest meds and so are not so expensive. It 's been 5 years since
I have had a sz. Have you asked your Dr why he doesn't put you on Dilantin
and Phenabarb?
Millie
----- Original Message -----
From: TIMOTHY
To: epilepsy@yahoogroups.com
Sent: Saturday, December 24, 2011 11:58 AM
Subject: [epilepsy] phenobarbital?
Someone besides me,
After having my first two seizures,a family doctor did the right thing by starting me on Dilanin & phenobarbital.I wasn't aware of any seizures for the next four years,before telling a friend of my epilepsy and being on medicine to prevent seizures.They told me they'd
been diagnosed w/epilepsy,until another doctor said they had seizures that were myoclonic.Their advice,go a neurologist.
At first visit,Dr.replaced phenobarbital with something else.I noticed a partial seizure in a few days,so he tried another,this was repeated again and again.Before adding a third medicine,I thought he'd find it someday.He would've done better to remain at the beginning or go back there and never change anything.
Then in '91 he replaced Dilantin with Tegretol explaining that was related to having used it for over ten years,then I had double vision.He replaced it with something else.This went on through alot of medicines which all had carbamazapene in them.Why not just go back to the phenobarbital & Dilantin at the beginning.I bet every time a doctor writes a prescription,they get a kickback from a pharmaceutical company because of selling their product.That might be why he dropped phenobarbital,who'd give him a kickback?
Timothy Baldwin
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