Saturday, December 31, 2011

[epilepsy] Re:Headache post seizure (light/sound/smell)

 

After my surgery I found out that being sound, light, smell sensitive is
not uncommon amongst people with epilepsy. It relates somehow to the
how the brain chains the reactions to those tings together, the reaction
is magnified. Migrains can actually be caused by all of these, most
especially light. This is why a dark room, without noise, that doesn't
have weird smells, makes them go away. Heat, whether to hot or too
long, is also and issue for many people with epilepsy, that is why the
cold helps.

I have found a few things that have helped with this.
-Teach everyone in your house not to turn a light on or off in a room
you are in without warning you so you can close your eyes. In this
house we just say "light".
-If we do go to the movies, we make sure to get there early so we are
not walking into a dark room with a bright screen. Having the glasses,
see below, makes it possible for me to go at all.
-I saw a neuro-opthomologist who actually diagnosed me "light sensitive"
and prescribed glasses for it. There were developed by the research
team at the University of Utah, and the tint is called FL-41. They made
an emmediate difference.
-I started buying febreeze, non scented, to remove any smells in the
house. When cooking, if the smell gets to strong, I use it. I use it
more in winter when the house is closed up so long just to freshen the air.
-Don't use any scented products. Avoid candles, plug in's, scented
lotions, and so on. Get scent free detergent and fabric softener. It
takes effort, but it helps.
-The noise is a hard one to avoid. If we go out to eat, we ask not to
sit by the bar or the bus station to avoid those noises. In the car, I
turn on music all the time, the consistent noise helps somehow when
there are other noises around.
-My family has learned not to "clink" there plates, silverware together.

It basically takes really paying attention to the things that make you
react, and trying to avoid/eliminate them. It takes time, but making
the effort can really make a difference.

Kelly

On 12/31/2011 3:25 AM, Millie Myers wrote:
>
> I found that the sooner I emptied my stomach -- the sooner my headache
> would
> be over. I too went upstairs where there wasn't so much noise and food
> smells
> and slept until it was over.
>

[Non-text portions of this message have been removed]

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