Hi Mischa,
Welcome! So meaningful hearing statements by others who
have experienced interesting things and can explain them to
us too. Your note caught my eye especially since I began
my seizure experiences when 17 years old, and have been
through many different aspects of this for years now. As you
mentioned the value of getting good neurologist is so important.
Often when near a large city, such as New York, there are many
good choices there. About 14 years ago, I had brain surgery,
left temporal, and it completely stopped all day seizures,
however I still get them when asleep. It is so much better this
way though and I am glad I finally did the surgery. I am still
on drugs, presently Lamictal. Good luck Mischa and let us know
how all goes. Take care.
Doris :-)
--- In epilepsy@yahoogroups.com, "Mischa" <mischa25@...> wrote:
>
> My name is Mischa Kennedy. I am 20 years old and I am a college student. have cerebral palsy (left side hemiplegia), right side open-lipped schizencephaly and focal seizures. Schizencephaly is a rare brain disorder that causes splits or clefts in the brain. This is what causes my seizures. Most people who have this condition are unable to live without constant care. I was diagnosed at nine months old. The doctor who diagnosed me suggested to my mother that I be institutionalized because I would never be able to live a normal life. Fortunately, my mom went and got a second opinion from a different neurologist, who said I was a "miracle case". I stopped having seizures at 6 years old after taking Tegretol. I was seizure-free until I was 14. I had two seizures in April and July of 2005. I was put on Topamax, which had weird side effects. I couldn't think of words to put in sentences. So, I was taken off the Topamax and I was put on Carbatrol, which works very well. I have had two seizures since being put on Carbatrol...One in March of 2009 and one in December 2010. The seizure in March of '09 was a scary one. According to my parents, I went into a series of seizures that lasted around 10 minutes. I hope to be able to communicate with others and learn more about epilepsy.
>
No comments:
Post a Comment