Corinna,
Welcome to our group.
When I was diagnosed (DX) 48 years ago-- my husband (now ex) and I decided
we were not going to keep it a secret and that we would talk about having EP.
That is a decision I have never regretted. I feel that if I would keep it a secret --
that would be a heavy burden on my shoulders -- which I don't need.
How long have you had EP? Tell us more about yourself. I was 30 when I was
DX . I had 3 daughters 2, 4, and 6. They are all now in their 50's. Every time
they have a birthday -- I tell them I don't think I am old enough to have 50 year
old kids. LOL
I have been on Dilantin and Phenabarb for over 20 years. My last sz was over
3 years ago and before that it was 4 years. At first I had grand mal szs but about
20 years ago they changed to something like complex partials. My girls say
my brain is scrambled for a couple days.
Millie
----- Original Message -----
From: cmichal427
To: epilepsy@yahoogroups.com
Sent: Friday, July 23, 2010 5:59 PM
Subject: [epilepsy] was it really a victory---stopping sz via "telling" but being humiliated
Today I toddled into a convenience store in 95 degree heat, (N.
Florida)after walking 2 blocks from a bus stop with severe balance and
co-ordination problems (thanks to a bad interaction last month between Ep meds
and arthritis meds--the doc who prescribed the painkillers is now FIRED and I am
going to a holistic oriented MD). Anyway my aim was to get a Coke to save myself
from dehydration. The clerk at checkout was humming a rythymic tune badly and
some delivery boy was pushing a cart right at me. This kind of visual plus
auditory impact is for me a formula for a sz. I felt the aura--a fear sensation
plus objects looking more intense. This was one of the few times I have had an
aura or sz in public. I asked the the girl--"PLease stop humming I am on the
verge of a seizure". She said "A what" even tho' I am sure she heard. I screamed
"SEIZURE!!" and shoved my fingers in my ears to block the aural impact for about
5 seconds. This worked--no sz but when I took my fingers out of my ears she said
"You nearly gave ME a seizure"
IN retrospect, yes I saved myself but was it really a victory if it
generated such ill will? Please anyone on the list have the MERCY to reply
because this is the first time I ever told any "outsider" ie not a doctor or
clergy that I do have epilepsy. HAve YOU ever had anything like this
encounter???? Corinna cmichal427@...
[Non-text portions of this message have been removed]
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