I found this on the web http://www.awarenessdesigns.com/information.php?info_id=7 that gives all the colours
of all different diseases and health conditions. Thought there was also one that covered any condition as
well.
Julie
Julie Hope
epilepsyhealth@sasktel.net
http://www.2betrhealth.com
----- Original Message -----
From: "Mark S" <riverat462@yahoo.com>
To: <epilepsy@yahoogroups.com>
Sent: Tuesday, July 27, 2010 10:28 PM
Subject: [epilepsy] Re: JB
Tessa,
Technically,epilepsy is lavender. If you go to the epilepsy foundation website, though, they have one that is
red and white (I guess because the foundation's logo is a red "E" that looks like a flame. If I remember
correctly, you can go to epilepsyontario.org and find the lavender ones that have the WHO slogan for epilepsy
"Out Of The Shadows". There are other sites that have blank ones that you can put what you want to on them.
Mark S.
--- In epilepsy@yahoogroups.com, Tessa Bennstrom <tessabennstrom@...> wrote:
>
> Hello again Doris: JB was on Keppra also but when he moved from New York State
> to Colorado the neurologist he saw there changed him to Lamictal and Triliptal.
> JB also has the VNS but he still has complex-partial seizures about every two
> weeks. That is why JB is still planning on surgery. I know he is 40 years and
> can make his own decisions but he is still my youngest son and therefore "the
> baby"!!! Thank you for your encouragement. People wear different colored
> bracelets in support of various diseases (cancer is pink). I think epilepsy is
> purple. Where can I find such a bracelet? The more people know about epilepsy
> the better. Tessa
>
>
>
> ________________________________
> From: DorisY <dorisellen@...>
> To: epilepsy@yahoogroups.com
> Sent: Wed, July 7, 2010 10:14:11 AM
> Subject: [epilepsy] Re: JB
>
>
> Hi Tessa,
> Your note sure caught my attention. I also have a 40 year old
> son, and he is epileptic too. He is on the Keppra and seizures
> are well controlled. I also have had seizures since I had an auto accident at
> age 17. I was on many different types of drugs and
> finally almost 13 years ago, I went for left temporal lobectomy.
> It completely stopped all seizures during the day, however it
> was the start of nocturnal seizures. It is still a terrific
> thing that I did this and I am super glad I did. I am still
> taking drugs for this, presently Lamictal. A super big thing
> to me was being able to get my drivers license back which I
> lost ages ago. It had absolutely no effect on reading ability
> and as you said if it did, it still would be super better to
> have seizure control. Different side effects of many things,
> like even drug effects, can be conquered in your own way of
> acclimating. I sincerely wish the best and remember we're
> all together.
> Doris
>
> --- In epilepsy@yahoogroups.com, Tessa Bennstrom <tessabennstrom@> wrote:
> >
> > Hello: My 40 year old son, JB, has had complex-partial seizures since he was
> >struck by a car at the age of 8. JB has lead a more or less independent life up
> >to this point. JB has never been completely controlled on his medication. He
> >has a cluster of seizures approximately every two weeks. JB is now being
> >considered for surgery which will "significantly reduce" but may not eliminate
> >his seizure activity. JB has gone through a battery of tests (PET, SPECT,
> >MRI's) to determine the focal point of the seizure activity. It has been
> >determined that the seizures originate at the temporal/occipital junction. The
> >neurosurgeon said this is not a usual location. If JB goes ahead with the
> >surgery he has been warned that removing that particular area could compromise
> >his ability to read. I am wondering if anyone has had similar surgery and what
> >the results were. I cannot deny that not being able to read would be
> >devastating but to have my son with fewer
> > seizures and, perhaps, a safer life would be wonderful. JB has read this
> >e-mail. Epilepsy seems to be one of the most misunderstood diseases. Thank
> >you. Tessa
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
------------------------------------
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