My son was diagnosed with epilepsy eleven years ago. We moved to another state and found a horrible neurologist who kept him one night for a video eeg and diagnosed him with pseudo-seizures, told us he was faking and we needed to get him into therapy with a psychologist. She took him off his Tegretol and one week later he had a grand mal in the middle of the night. After a few hours in the ER and him having come around and 'recovered' the doctor called the neuro who told the ER doc, "send them home - there is nothing wrong with the boy and the parents are having a hard time adjusting to the recent diagnosis:. The next day I called a major medical center and got a second opinion for our son. He was admitted for a week of tests and we were able to record all sorts of seizures, determine their location, get him on a new med combination and onto a healthy path. Four years ago he had brain surgery to remove as much of the seizure focus as possible, though
some still remains. He is a college student, on his 12th combination of AED'S in 11 years and its a good place right now. He has complex partial seizures of the left frontal lobe. He takes Lamictal, Topomax and Trileptal, morning and night. Every situation is obviously different, but I can't imagine where we'd be today if it wasn't for not accepting the pseudo-seizure diagnosis. As a side note, our sons Neuro team wrote this former doctor and shamed her for what she put our son through. We eventually were able to learn she had other complaints against her when we filed a formal complaint. Second opinions are important.. we are all worthy of them. Good luck.
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From: latester2002 <latester2002@
To: epilepsy@yahoogroup
Sent: Thu, January 28, 2010 7:53:27 PM
Subject: [epilepsy] A question
I am not sure how to spell it but I was told I have psudo seizures. I am a very poor speller so I probibly spelled it wrong.
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