Thursday, January 28, 2010

Re: [epilepsy] A question

 


Keppra I am on 500 in the morning and 1000 at night. I also have
Hypothyroid. So what you are trying to say is that this EEG may not have shown the
same as the others.
Lisa

Keppra has a short halflife, only about 8-9 hours. I take it, and it's very
effective against many types of szs. If you can take a low dose, it
shouldn't cause any serious problems, but be watchful for any side effects or
reactions. I had serious thyroid problems on a "normal" dose and now take the
same dose every day as my best friend's 3 yo! I'm 43. :) LOL I'm doing
great on it, too. :)

I was also having severe insomnia from it, even on this dose, and I take
5-HTP now. It helps a lot, and I highly recommend it if sleep is an issue
for you. It replaces the seratonin that can be depleted from taking Keppra.

Not all EEGs will necesssarily show sz activity, even if some do. I have
had normal and abnormal EEGs and have always had epi. It depends on the
type, intensity, and how deep they are in the brain.

It's also very important to understand that pseudos are real szs, just not
epileptic. The body is NOT "faking" them.

LIZARD :)

--- On Thu, 1/28/10, _latester2002@lateste_ (mailto:latester2002@aol.com)
<_latester2002@lateste_ (mailto:latester2002@aol.com) > wrote:

From: _latester2002@lateste_ (mailto:latester2002@aol.com)
<_latester2002@lateste_ (mailto:latester2002@aol.com) >
Subject: Re: [epilepsy] A question
To: _epilepsy@yahoogroupepile_ (mailto:epilepsy@yahoogroups.com)
Date: Thursday, January 28, 2010, 10:57 PM

What I cannot understand is that this is the third EEG that I have had and
the other two showed seizure activity. The Neurologist put me on Keppra.
Now all of a sudden I am having "fake seizures". I do not get it. Plus is
it
a bad thing having Keppra in my system everyday?
Lisa NJ

My son was diagnosed with epilepsy eleven years ago. We moved to another
state and found a horrible neurologist who kept him one night for a video
eeg
and diagnosed him with pseudo-seizures, told us he was faking and we
needed to get him into therapy with a psychologist. She took him off his
Tegretol and one week later he had a grand mal in the middle of the night.
After a
few hours in the ER and him having come around and 'recovered' the doctor
called the neuro who told the ER doc, "send them home - there is nothing
wrong with the boy and the parents are having a hard time adjusting to the
recent diagnosis:. The next day I called a major medical center and got a
second opinion for our son. He was admitted for a week of tests and we
were
able to record all sorts of seizures, determine their location, get him on
a
new med combination and onto a healthy path. Four years ago he had brain
surgery to remove as much of the seizure focus as possible, though
some still remains. He is a college student, on his 12th combination of
AED'S in 11 years and its a good place right now. He has complex partial
seizures of the left frontal lobe. He takes Lamictal, Topomax and
Trileptal,
morning and night. Every situation is obviously different, but I can't
imagine where we'd be today if it wasn't for not accepting the
pseudo-seizure
diagnosis. As a side note, our sons Neuro team wrote this former doctor
and
shamed her for what she put our son through. We eventually were able to
learn
she had other complaints against her when we filed a formal complaint.
Second opinions are important.. we are all worthy of them. Good luck.

____________ _________ _________ __
From: latester2002 <_latester2002@ lateste_
(mailto:latester200_latester2002@ l>
To: _epilepsy@yahoogrou pepile_ (mailto:epilepsy@To: _epilepsy@yahoogro
Sent: Thu, January 28, 2010 7:53:27 PM
Subject: [epilepsy] A question

I am not sure how to spell it but I was told I have psudo seizures. I am a
very poor speller so I probibly spelled it wrong.

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