What I cannot understand is that this is the third EEG that I have had and
the other two showed seizure activity. The Neurologist put me on Keppra.
Now all of a sudden I am having "fake seizures". I do not get it. Plus is it
a bad thing having Keppra in my system everyday?
Lisa NJ
My son was diagnosed with epilepsy eleven years ago. We moved to another
state and found a horrible neurologist who kept him one night for a video eeg
and diagnosed him with pseudo-seizures, told us he was faking and we
needed to get him into therapy with a psychologist. She took him off his
Tegretol and one week later he had a grand mal in the middle of the night. After a
few hours in the ER and him having come around and 'recovered' the doctor
called the neuro who told the ER doc, "send them home - there is nothing
wrong with the boy and the parents are having a hard time adjusting to the
recent diagnosis:. The next day I called a major medical center and got a
second opinion for our son. He was admitted for a week of tests and we were
able to record all sorts of seizures, determine their location, get him on a
new med combination and onto a healthy path. Four years ago he had brain
surgery to remove as much of the seizure focus as possible, though
some still remains. He is a college student, on his 12th combination of
AED'S in 11 years and its a good place right now. He has complex partial
seizures of the left frontal lobe. He takes Lamictal, Topomax and Trileptal,
morning and night. Every situation is obviously different, but I can't
imagine where we'd be today if it wasn't for not accepting the pseudo-seizure
diagnosis. As a side note, our sons Neuro team wrote this former doctor and
shamed her for what she put our son through. We eventually were able to learn
she had other complaints against her when we filed a formal complaint.
Second opinions are important.. we are all worthy of them. Good luck.
____________
From: latester2002 <_latester2002@
To: _epilepsy@yahoogrou
Sent: Thu, January 28, 2010 7:53:27 PM
Subject: [epilepsy] A question
I am not sure how to spell it but I was told I have psudo seizures. I am a
very poor speller so I probibly spelled it wrong.
[Non-text portions of this message have been removed]
[Non-text portions of this message have been removed]
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