Thursday, January 28, 2010

Re: [epilepsy] A question

 

Keppra has a short halflife, only about 8-9 hours. I take it, and it's very effective against many types of szs. If you can take a low dose, it shouldn't cause any serious problems, but be watchful for any side effects or reactions. I had serious thyroid problems on a "normal" dose and now take the same dose every day as my best friend's 3 yo! I'm 43. :) LOL I'm doing great on it, too. :)
 
I was also having severe insomnia from it, even on this dose, and I take 5-HTP now. It helps a lot, and I highly recommend it if sleep is an issue for you. It replaces the seratonin that can be depleted from taking Keppra.
 
Not all EEGs will necesssarily show sz activity, even if some do. I have had normal and abnormal EEGs and have always had epi. It depends on the type, intensity, and how deep they are in the brain.
 
It's also very important to understand that pseudos are real szs, just not epileptic. The body is NOT "faking" them.
 
LIZARD :)

--- On Thu, 1/28/10, latester2002@aol.com <latester2002@aol.com> wrote:

From: latester2002@aol.com <latester2002@aol.com>
Subject: Re: [epilepsy] A question
To: epilepsy@yahoogroups.com
Date: Thursday, January 28, 2010, 10:57 PM

 

What I cannot understand is that this is the third EEG that I have had and
the other two showed seizure activity. The Neurologist put me on Keppra.
Now all of a sudden I am having "fake seizures". I do not get it. Plus is it
a bad thing having Keppra in my system everyday?
Lisa NJ

My son was diagnosed with epilepsy eleven years ago. We moved to another
state and found a horrible neurologist who kept him one night for a video eeg
and diagnosed him with pseudo-seizures, told us he was faking and we
needed to get him into therapy with a psychologist. She took him off his
Tegretol and one week later he had a grand mal in the middle of the night. After a
few hours in the ER and him having come around and 'recovered' the doctor
called the neuro who told the ER doc, "send them home - there is nothing
wrong with the boy and the parents are having a hard time adjusting to the
recent diagnosis:. The next day I called a major medical center and got a
second opinion for our son. He was admitted for a week of tests and we were
able to record all sorts of seizures, determine their location, get him on a
new med combination and onto a healthy path. Four years ago he had brain
surgery to remove as much of the seizure focus as possible, though
some still remains. He is a college student, on his 12th combination of
AED'S in 11 years and its a good place right now. He has complex partial
seizures of the left frontal lobe. He takes Lamictal, Topomax and Trileptal,
morning and night. Every situation is obviously different, but I can't
imagine where we'd be today if it wasn't for not accepting the pseudo-seizure
diagnosis. As a side note, our sons Neuro team wrote this former doctor and
shamed her for what she put our son through. We eventually were able to learn
she had other complaints against her when we filed a formal complaint.
Second opinions are important.. we are all worthy of them. Good luck.

____________ _________ _________ __
From: latester2002 <_latester2002@ lateste_ (mailto:latester2002@ aol.com) >
To: _epilepsy@yahoogrou pepile_ (mailto:epilepsy@yahoogroup s.com)
Sent: Thu, January 28, 2010 7:53:27 PM
Subject: [epilepsy] A question

I am not sure how to spell it but I was told I have psudo seizures. I am a
very poor speller so I probibly spelled it wrong.

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