When I had grand mal szs -- I knew nothing that was going on. In fact twice I was taken into the hospital for 6 miles with the sirens blaring and I didn't know a thing until I woke up in bed in the hospital. Now that I have simple or complex szs I am awake but my brain is scrambled my daughters say.
Millie
----- Original Message -----
From: Robert Shaffer
To: epilepsy@yahoogroup
Sent: Sunday, January 31, 2010 8:24 PM
Subject: Re: [epilepsy] Re: New Type of Seizure
It sounds like a Grand Mal seizure. What he went through is very similar to the seizures that I have been having all my life. Grand Mal seizures are also called Tonic-Clonic seizures. I too, am fully aware of my surroundings, & people. Most of what you describe is perfectly normal. Post-ictal has a tendency to be fickle. Not everybody gets that particular symptom, and those that do, the sength and duration may vary. I hope this helps.
Respectfully,
Bob.
--- On Sun, 1/31/10, Jennifer Richardson <academyofthepossibl
From: Jennifer Richardson <academyofthepossibl
Subject: [epilepsy] Re: New Type of Seizure
To: epilepsy@yahoogroup
Date: Sunday, January 31, 2010, 1:29 AM
About half an hour ago, my 13 y.o. son had a seizure tonight that last 8
minutes 10 seconds, however he was coherent the whole time. The seizure
started off with him calling me rather scared after he had gone to bed,
yelling and crying that he couldn't move at all. I went in and started
timing his seizure. It started off being completely rigid and stiff as a
board, then went into the jerking motions. His full body was involved, both
arms, hands, legs, feet. He was talking to me during this saying how badly
it hurt in between lip smacking. He remembers having the seizure, and there
was no post ictal state. He did not urinate, vomit or drool. He has diastat,
but he was breathing the entire time. It was like one of his small focal
motor seizures except involving his entire body. I didn't expect at all for
him to have a full body seizure for that long and be coherent. His have
always been less than 5 minutes, grand mals included. We have never had to
use his diastat before.
It is my understanding that diastat is to help stop the seizure when the
child is not breathing. Is this correct? For those of you who use diastat,
how do you decide when to give it and when not to.
Right now, he is sitting at the table doing some art therapy making pictures
with sticks and glue. He was very upset after his seizure, feeling very
disabled. The art helps, and he is now smiling.
Clearly, he has recovered fine. I will of course monitor him closely to be
sure he does not have another seizure tonight, but this one was as close to
a grand mal as you get.
I would appreciate hearing others experiences.
Jennifer
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