Amen Millie!
____________
From: "mylmy@bnin.net" <mylmy@bnin.net>
To: epilepsy@yahoogroup
Sent: Monday, June 22, 2009 7:18:00 AM
Subject: Re: Re: [epilepsy] Some questions
Malgorzata,
It sounds like you have not experienced this cell stem miracle
but read it on the computer.
When I graduated over 55 years ago one of my teachers said
something that I have never forgotten. It was
"Just because it is written or just because it is spoken --
doesn't mean it is true."
Millie
> I am sorry but you are wrong. Go to medra.com and read some full recovery
> stories . It is amazing what it could do for the person. Please read about
> those children who had strokes from seizures and were vegetables and they
> are fine today. I know is it like dream come true but it is. Seizures and
> autism are very close related: autism is first and from all the toxins and
> poison going to the brain with regular blood flow it develop seizures. Go
> to stem cell therapy on google and find out. Why you can not understand ?
> Epilepsy very rare start with the birth. It is most of the time a reason
> after. First find out why you have them, than of course to control
> youmhave some drugs from doctors, but none of that is a cure. remember
> human body has the ability to rebuild with some help and that's where stem
> cell therapy comes. All the information is available on internet and in
> very easy language so anybody can understand. it is a case of more than
> one child there
> who recover from seizures and are living a normal life. I know is hard to
> believe but is true. Don't take my words for, check out yourself. Have a
> great and safe night......believe you can have one day your child back to
> health.
>
> --- On Mon, 6/22/09, Elizabeth Last NameSilva <elizabethkaron@ yahoo.com>
> wrote:
>
> From: Elizabeth Last NameSilva <elizabethkaron@ yahoo.com>
> Subject: Re: Re: [epilepsy] Some questions
> To: epilepsy@yahoogroup s.com
> Cc: elizabethkaron@ yahoo.com
> Date: Monday, June 22, 2009, 3:24 AM
>
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> Im not on here to argue and fight with you about the issue at hand.
> Your son you have stated is autistic and has seizures thats two
> differant things. It might work to do stem cell on him. For the
> epilepsy that my daughter has it isnt a possibility. I do know
> that there is some nuerologist that arent that great that is why we
> see an epitologist for my daughter. I DO NOT see why you are saying
> this clinic in Eruope or Germany is so great yet in the same you are
> saying open our eyes and do more research etc and saying that the
> epileptics that are taking medication are slowly killing themselves.
> Epilepsy can kill yes that is something everyone on this group lives
> or knows someone that lives with that fear. But, putting them down
> for taking medication that might have already saved their lives I do
> not stand beside that. They are doing what they can do at the
> moment. This is suppose to be a group for support and information
> would you please find a
> better
>
> way of stating the information you know and would like others to know
> with out putting them down for doing the best that they can at this
> moment in time taking their medication.
>
> Thanks!
>
>
>
> ____________ _________ _________ __
>
> From: Malgorzata Wolak <malgorzataqueen@ yahoo.com>
>
> To: epilepsy@yahoogroup s.com
>
> Sent: Sunday, June 21, 2009 5:30:02 PM
>
> Subject: Re: Re: [epilepsy] Some questions
>
>
>
> Let me tell you something: I do have an autistic son and he has
> seizures...severe. Drugs did a lots of damage in him already as it is.
> Click on google helalthreport s.comthan click on helpforautismRead and be
> ready to cry ,you will .it will open your eyes what is going on. I don't
> have money either but I will start to look for help to get there. I also
> will ask you to readafter clickMedra.comget back to me when you done and
> than we can make a differnce.
>
>
>
> --- On Sun, 6/21/09, Tristin Seagraves <tristinspike26@ yahoo.com> wrote:
>
>
>
> From: Tristin Seagraves <tristinspike26@ yahoo.com>
>
> Subject: Re: Re: [epilepsy] Some questions
>
> To: epilepsy@yahoogroup s.com
>
> Date: Sunday, June 21, 2009, 10:07 PM
>
>
>
> I hear you, Elizabeth! :) I totally agree with you. For many of us with
> epilepsy, if we just stopped taking our meds, we would definitely be
> having more frequent seizures and there would be an increased risk of
> SUDEP (Sudden Unexplained Death in Epilepsy) or Status Epilepticus. I
> think I'll take my chances with my prescribed drugs.
>
>
>
>
>
>
>
> Tristin Seagraves
>
>
>
> --- On Sun, 6/21/09, Elizabeth Last NameSilva <elizabethkaron@ yahoo.com>
> wrote:
>
>
>
> From: Elizabeth Last NameSilva <elizabethkaron@ yahoo.com>
>
>
>
> Subject: Re: Re: [epilepsy] Some questions
>
>
>
> To: epilepsy@yahoogroup s.com
>
>
>
> Cc: elizabethkaron@ yahoo.com
>
>
>
> Date: Sunday, June 21, 2009, 6:00 PM
>
>
>
> Im sorry but I wanted to state that some natural ways dont stop
> some epileptics seizures. We have tried lots of differant natural ways to
> get my daughters seizures under control and it did not help and some made
> thigns worse. Yes we have been through lots of drugs but she is on a
> combination that is working for her for the moment. Meds dont neccesarly
> kill someone they are there for a reason. But, I do believe that seizures
> of any kind CAN hurt you very badly. There is pros and cons with
> everything even with everyday living.
>
>
>
> Why do you post that its slow killing by taking the drugs that are out
> there to help and that for the ones that are taking the medications are
> killing themselves?
>
>
>
> This site is for support and help not to put the ones that have the
> epilepsy condition down for doing or taking what they take?
>
>
>
> Not everyone can afford to go to Europe or Germany for treatment.
>
>
>
> ____________ _________ _________ __
>
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>
> From: Malgorzata Wolak <malgorzataqueen@ yahoo.com>
>
>
>
> To: epilepsy@yahoogroup s.com
>
>
>
> Sent: Sunday, June 21, 2009 4:49:35 PM
>
>
>
> Subject: Fw: Re: [epilepsy] Some questions
>
>
>
> --- On Sun, 6/21/09, Malgorzata Wolak <malgorzataqueen@ yahoo.com> wrote:
>
>
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> From: Malgorzata Wolak <malgorzataqueen@ yahoo.com>
>
>
>
> Subject: Re: [epilepsy] Some questions
>
>
>
> To: epilepsy@yahoogroup s.com
>
>
>
> Date: Sunday, June 21, 2009, 9:46 PM
>
>
>
> Hello, how about reaching to more successfull way......natural therapy. No
> side effects, full recovery and ask yourself one question: is your life
> wort it? You have to answer that . I will tell you where to go. EUROPE in
> germany is a clinic which treat seizures with stem cells. All cases are a
> full recovery. Check that out by yourself and stop killing yourself with
> all those drugs they give you here. It is not help......I call that slow
> killing.
>
>
>
> --- On Sun, 6/21/09, Tristin Seagraves <tristinspike26@ yahoo.com> wrote:
>
>
>
> From: Tristin Seagraves <tristinspike26@ yahoo.com>
>
>
>
> Subject: Re: [epilepsy] Some questions
>
>
>
> To: epilepsy@yahoogroup s.com
>
>
>
> Date: Sunday, June 21, 2009, 9:37 PM
>
>
>
> The fatigue could very well be because of the change in meds. Whenever I
> switch AEDs, I'm always irritable and fatigued. I don't really have an
> answer for how you can stop the fatigue or what you should do for it.
> It's just something I've learned to accept, along with epilepsy in
> general.... I would speak to a neurologist about it and let him/her know
> exactly how bad the fatigue, irritability, and/or depression is. But for
> me, it's just another characteristic of epilepsy.
>
>
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>
>
> Tristin Seagraves :)
>
>
>
> --- On Sat, 6/20/09, Uggie <ugmcginnis@ embarqma il.com> wrote:
>
>
>
> From: Uggie <ugmcginnis@ embarqma il.com>
>
>
>
> Subject: Re: [epilepsy] Some questions
>
>
>
> To: epilepsy@yahoogroup s.com
>
>
>
> Date: Saturday, June 20, 2009, 9:00 PM
>
>
>
> What to do in someone that this goes on daily with?
>
>
>
> Is on Keppra (tapering off), Topomax (will increase once off Keppra),
>
>
>
> Prozac and Abilify. Maxalt as needed for migraines.
>
>
>
> -------Original Message----- --
>
>
>
> From: Tristin Seagraves
>
>
>
> Date: 6/20/2009 11:01:31 AM
>
>
>
> To: epilepsy@yahoogroup s.com
>
>
>
> Subject: Re: [epilepsy] Some questions
>
>
>
> It's common for people with epilepsy to have periods of fatigue and/or
> mild
>
>
>
> depression. Take caution though. This fatigue may be your body telling you
>
>
>
> that a seizure could happen soon. Try taking a nap.
>
>
>
> Tristin :)
>
>
>
> --- On Sat, 6/20/09, Adrien <adriencollins22160 @ googlemail. com> wrote:
>
>
>
> From: Adrien <adriencollins22160 @ googlemail. com>
>
>
>
> Subject: [epilepsy] Some questions
>
>
>
> To: epilepsy@yahoogroup s.com
>
>
>
> Date: Saturday, June 20, 2009, 7:45 AM
>
>
>
> Hi
>
>
>
> I am curious about my epilepsy. At the moment I am feeling
>
>
>
> quite flat, no energy, tired, not irritable but I just feel
>
>
>
> not quite myself. Is this common with epilepsy? I don't
>
>
>
> think I've had a fit but I just can't concentrate and when I
>
>
>
> am typing I am making lots of mistakes. I'm not quite sure
>
>
>
> what's going on. It could be because I've been out in the
>
>
>
> sun quite a bit, don't know.
>
>
>
> Regards
>
>
>
> Adrien
>
>
>
> You can get me off list at:
>
>
>
> adriencollins22160@ googlemail. com
>
>
>
> or
>
>
>
> adriencollins22160@ hotmail.fr
>
>
>
> or
>
>
>
> adrien.collins@ orange.fr
>
>
>
> Speakon is a free fully self-voicing accessible multimedia
>
>
>
> program for
>
>
>
> the visually impaired, find out more by downloading the
>
>
>
> software from:
>
>
>
> http://www.a- technic.net/ speakon.htm
>
>
>
> You can join the speakon user group by sending a blank
>
>
>
> e-mail to:
>
>
>
> speakon-subscribe@ yahoogroups. com
>
>
>
> -----Original Message-----
>
>
>
> From: epilepsy@yahoogroup s.com
>
>
>
> [mailto:epilepsy@ yahoogroup s.com] On Behalf Of Amanda Wiser
>
>
>
> Sent: 18 June 2009 20:58
>
>
>
> To: epilepsy@yahoogroup s.com
>
>
>
> Subject: [epilepsy] Worried
>
>
>
> For about 3 days my daughter (2), whenever she wakes up, she
>
>
>
> starts shaking. She has acted like that before after a
>
>
>
> seizure. Is there any type of epilepsy machine, that she can
>
>
>
> wear while asleep? I'm just so worried about her, and I
>
>
>
> don't think the Tegretol is working anymore.
>
>
>
> Amanda
>
>
>
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>
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> you are on digest. This not only helps out the list owner but, it makes
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> messages much easier to read when they arrive in our inboxes.
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>
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