Millie,
I have been here for about a month, but do not get the chance to post much. I have six beautiful children that range in ages from 11 to four year old twins! I have five sons and one beautiful daughter! In March my 8 year old son had a seizure, and then 6 days later he had another. We rushed him to the hospital because it was very scary, and the pediatrician told us after the first seizure that is what we should do. At the local ER they did a CT scan and found a brain tumor, he was immediately rushed to Children's Hospital in Milwaukee. He had another CT and an MRI, plus they started him on AED's.
Since April he has had breakthrough seizures about every 14 days on the dot. He gets a stomach, and that is the only pre-cursor we have to him having a seizure. He has a repeat MRI on July 24 to determine if the tumor has grown at all. He has been through so much in the last two months, it is crazy how much your life can change in a matter of a few minutes.
This group is great, and there is a lot of wonderful information here! Thank you so much for the warm welcome!
Susan
--- On Tue, 6/30/09, mylmy@bnin.net <mylmy@bnin.net> wrote:
From: mylmy@bnin.net <mylmy@bnin.net>
Subject: Re: [epilepsy] Breakthrough Seizures
To: epilepsy@yahoogroup
Date: Tuesday, June 30, 2009, 9:17 PM
susan,
Not sure if you are new but if you are Welcome;
I was 30 when I was dignosed (DX) with EP. I had 3 daughters,
2, 4, and 6 plus a husband(ex now). That was 47 years ago.
I have learned a lot in this group.
Millie
> Amanda,
> My son has epilepsy, and he is currently taking 775 mg of Depakote a day.
> He has breakthrough seizures about every two weeks, and they are also in
> his sleep. They have never lasted more than 3 minutes, but yes, they are
> very very scary! My son has complex partial seizures, and has had one
> petit mal about two weeks ago.
>
> He just had a 24 hour EEG which showed no under-lying seizure disorder in
> his sleep, but he seems to have a breakthrough seizure every 14 days. My
> son is 8, and was diagnosed in April with epilepsy and a brain tumor. Best
> of luck to you! Would love to talk more!
>
> Thank you,
> Susan
>
> --- On Tue, 6/30/09, Amanda Rainey <a_rainey121708@ yahoo.com> wrote:
>
>
> From: Amanda Rainey <a_rainey121708@ yahoo.com>
> Subject: [epilepsy] Breakthrough Seizures
> To: "epilepsy" <epilepsy@yahoogrou
> Date: Tuesday, June 30, 2009, 8:39 PM
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> Hi all,
>
> Just wondering if any of you have had a " breakthrough" seizure. My
> daughter had one on Saturday that sent her to the ER. Now they have her on
> her regular meds (Tegretol) 1tsp 2x a day and then a 1/2 tsp around 1400
> (2pm). It was a grand mal seizure in her sleep. I HATE those, they scare
> me so bad. If any of you have had these I would love to know. Thank you
>
> Amanda
>
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