Ok hun! Why dont YOU take YOUR son over there to get treatment and then come back and tell us YOUR story. That way we can go by that.
Epileptics are NOT killing themselves by taking medication if you think that WE are so wrong and uneducated then maybe YOU need to pay to take all the epileptics on this site over there to get treatment!
____________
From: Malgorzata Wolak <malgorzataqueen@
To: epilepsy@yahoogroup
Sent: Monday, June 22, 2009 3:10:33 AM
Subject: Re: Re: [epilepsy] Some questions
I am sorry but you are wrong. Go to medra.com and read some full recovery stories . It is amazing what it could do for the person. Please read about those children who had strokes from seizures and were vegetables and they are fine today. I know is it like dream come true but it is. Seizures and autism are very close related: autism is first and from all the toxins and poison going to the brain with regular blood flow it develop seizures. Go to stem cell therapy on google and find out. Why you can not understand ? Epilepsy very rare start with the birth. It is most of the time a reason after. First find out why you have them, than of course to control youmhave some drugs from doctors, but none of that is a cure. remember human body has the ability to rebuild with some help and that's where stem cell therapy comes. All the information is available on internet and in very easy language so anybody can understand. it is a case of more than one child there
who recover from seizures and are living a normal life. I know is hard to believe but is true. Don't take my words for, check out yourself. Have a great and safe night......believe you can have one day your child back to health.
--- On Mon, 6/22/09, Elizabeth Last NameSilva <elizabethkaron@ yahoo.com> wrote:
From: Elizabeth Last NameSilva <elizabethkaron@ yahoo.com>
Subject: Re: Re: [epilepsy] Some questions
To: epilepsy@yahoogroup s.com
Cc: elizabethkaron@ yahoo.com
Date: Monday, June 22, 2009, 3:24 AM
Im not on here to argue and fight with you about the issue at hand. Your son you have stated is autistic and has seizures thats two differant things. It might work to do stem cell on him. For the epilepsy that my daughter has it isnt a possibility. I do know that there is some nuerologist that arent that great that is why we see an epitologist for my daughter. I DO NOT see why you are saying this clinic in Eruope or Germany is so great yet in the same you are saying open our eyes and do more research etc and saying that the epileptics that are taking medication are slowly killing themselves. Epilepsy can kill yes that is something everyone on this group lives or knows someone that lives with that fear. But, putting them down for taking medication that might have already saved their lives I do not stand beside that. They are doing what they can do at the moment. This is suppose to be a group for support and information would you please find a
better
way of stating the information you know and would like others to know with out putting them down for doing the best that they can at this moment in time taking their medication.
Thanks!
____________ _________ _________ __
From: Malgorzata Wolak <malgorzataqueen@ yahoo.com>
To: epilepsy@yahoogroup s.com
Sent: Sunday, June 21, 2009 5:30:02 PM
Subject: Re: Re: [epilepsy] Some questions
Let me tell you something: I do have an autistic son and he has seizures...severe. Drugs did a lots of damage in him already as it is. Click on google helalthreport s.comthan click on helpforautismRead and be ready to cry ,you will .it will open your eyes what is going on. I don't have money either but I will start to look for help to get there. I also will ask you to readafter clickMedra.comget back to me when you done and than we can make a differnce.
--- On Sun, 6/21/09, Tristin Seagraves <tristinspike26@ yahoo.com> wrote:
From: Tristin Seagraves <tristinspike26@ yahoo.com>
Subject: Re: Re: [epilepsy] Some questions
To: epilepsy@yahoogroup s.com
Date: Sunday, June 21, 2009, 10:07 PM
I hear you, Elizabeth! :) I totally agree with you. For many of us with epilepsy, if we just stopped taking our meds, we would definitely be having more frequent seizures and there would be an increased risk of SUDEP (Sudden Unexplained Death in Epilepsy) or Status Epilepticus. I think I'll take my chances with my prescribed drugs.
Tristin Seagraves
--- On Sun, 6/21/09, Elizabeth Last NameSilva <elizabethkaron@ yahoo.com> wrote:
From: Elizabeth Last NameSilva <elizabethkaron@ yahoo.com>
Subject: Re: Re: [epilepsy] Some questions
To: epilepsy@yahoogroup s.com
Cc: elizabethkaron@ yahoo.com
Date: Sunday, June 21, 2009, 6:00 PM
Im sorry but I wanted to state that some natural ways dont stop some epileptics seizures. We have tried lots of differant natural ways to get my daughters seizures under control and it did not help and some made thigns worse. Yes we have been through lots of drugs but she is on a combination that is working for her for the moment. Meds dont neccesarly kill someone they are there for a reason. But, I do believe that seizures of any kind CAN hurt you very badly. There is pros and cons with everything even with everyday living.
Why do you post that its slow killing by taking the drugs that are out there to help and that for the ones that are taking the medications are killing themselves?
This site is for support and help not to put the ones that have the epilepsy condition down for doing or taking what they take?
Not everyone can afford to go to Europe or Germany for treatment.
____________ _________ _________ __
From: Malgorzata Wolak <malgorzataqueen@ yahoo.com>
To: epilepsy@yahoogroup s.com
Sent: Sunday, June 21, 2009 4:49:35 PM
Subject: Fw: Re: [epilepsy] Some questions
--- On Sun, 6/21/09, Malgorzata Wolak <malgorzataqueen@ yahoo.com> wrote:
From: Malgorzata Wolak <malgorzataqueen@ yahoo.com>
Subject: Re: [epilepsy] Some questions
To: epilepsy@yahoogroup s.com
Date: Sunday, June 21, 2009, 9:46 PM
Hello, how about reaching to more successfull way......natural therapy. No side effects, full recovery and ask yourself one question: is your life wort it? You have to answer that . I will tell you where to go. EUROPE in germany is a clinic which treat seizures with stem cells. All cases are a full recovery. Check that out by yourself and stop killing yourself with all those drugs they give you here. It is not help......I call that slow killing.
--- On Sun, 6/21/09, Tristin Seagraves <tristinspike26@ yahoo.com> wrote:
From: Tristin Seagraves <tristinspike26@ yahoo.com>
Subject: Re: [epilepsy] Some questions
To: epilepsy@yahoogroup s.com
Date: Sunday, June 21, 2009, 9:37 PM
The fatigue could very well be because of the change in meds. Whenever I switch AEDs, I'm always irritable and fatigued. I don't really have an answer for how you can stop the fatigue or what you should do for it. It's just something I've learned to accept, along with epilepsy in general.... I would speak to a neurologist about it and let him/her know exactly how bad the fatigue, irritability, and/or depression is. But for me, it's just another characteristic of epilepsy.
Tristin Seagraves :)
--- On Sat, 6/20/09, Uggie <ugmcginnis@ embarqma il.com> wrote:
From: Uggie <ugmcginnis@ embarqma il.com>
Subject: Re: [epilepsy] Some questions
To: epilepsy@yahoogroup s.com
Date: Saturday, June 20, 2009, 9:00 PM
What to do in someone that this goes on daily with?
Is on Keppra (tapering off), Topomax (will increase once off Keppra),
Prozac and Abilify. Maxalt as needed for migraines.
-------Original Message----- --
From: Tristin Seagraves
Date: 6/20/2009 11:01:31 AM
To: epilepsy@yahoogroup s.com
Subject: Re: [epilepsy] Some questions
It's common for people with epilepsy to have periods of fatigue and/or mild
depression. Take caution though. This fatigue may be your body telling you
that a seizure could happen soon. Try taking a nap.
Tristin :)
--- On Sat, 6/20/09, Adrien <adriencollins22160 @ googlemail. com> wrote:
From: Adrien <adriencollins22160 @ googlemail. com>
Subject: [epilepsy] Some questions
To: epilepsy@yahoogroup s.com
Date: Saturday, June 20, 2009, 7:45 AM
Hi
I am curious about my epilepsy. At the moment I am feeling
quite flat, no energy, tired, not irritable but I just feel
not quite myself. Is this common with epilepsy? I don't
think I've had a fit but I just can't concentrate and when I
am typing I am making lots of mistakes. I'm not quite sure
what's going on. It could be because I've been out in the
sun quite a bit, don't know.
Regards
Adrien
You can get me off list at:
adriencollins22160@ googlemail. com
or
adriencollins22160@ hotmail.fr
or
adrien.collins@ orange.fr
Speakon is a free fully self-voicing accessible multimedia
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-----Original Message-----
From: epilepsy@yahoogroup s.com
[mailto:epilepsy@ yahoogroup s.com] On Behalf Of Amanda Wiser
Sent: 18 June 2009 20:58
To: epilepsy@yahoogroup s.com
Subject: [epilepsy] Worried
For about 3 days my daughter (2), whenever she wakes up, she
starts shaking. She has acted like that before after a
seizure. Is there any type of epilepsy machine, that she can
wear while asleep? I'm just so worried about her, and I
don't think the Tegretol is working anymore.
Amanda
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