Susan,
I don't know anything about brain tumors. What are they waiting for?
Are they expecting to operate or that it will shrink or grow?
I seems that if he is having szs -- they would be doing something.
But like I say-- I don't know anything about tumors.
When something like szs some into your life you do learn a lot fast.
Millie
> Millie,
> I have been here for about a month, but do not get the chance to post
> much. I have six beautiful children that range in ages from 11 to four
> year old twins! I have five sons and one beautiful daughter! In March my 8
> year old son had a seizure, and then 6 days later he had another. We
> rushed him to the hospital because it was very scary, and the pediatrician
> told us after the first seizure that is what we should do. At the local ER
> they did a CT scan and found a brain tumor, he was immediately rushed to
> Children's Hospital in Milwaukee. He had another CT and an MRI, plus they
> started him on AED's.
>
> Since April he has had breakthrough seizures about every 14 days on the
> dot. He gets a stomach, and that is the only pre-cursor we have to him
> having a seizure. He has a repeat MRI on July 24 to determine if the tumor
> has grown at all. He has been through so much in the last two months, it
> is crazy how much your life can change in a matter of a few minutes.
>
> This group is great, and there is a lot of wonderful information here!
> Thank you so much for the warm welcome!
>
> Susan
>
> --- On Tue, 6/30/09, mylmy@bnin.net <mylmy@bnin.net> wrote:
>
>
> From: mylmy@bnin.net <mylmy@bnin.net>
> Subject: Re: [epilepsy] Breakthrough Seizures
> To: epilepsy@yahoogroup
> Date: Tuesday, June 30, 2009, 9:17 PM
>
>
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>
> susan,
>
> Not sure if you are new but if you are Welcome;
>
> I was 30 when I was dignosed (DX) with EP. I had 3 daughters,
> 2, 4, and 6 plus a husband(ex now). That was 47 years ago.
>
> I have learned a lot in this group.
>
> Millie
>
>> Amanda,
>> My son has epilepsy, and he is currently taking 775 mg of Depakote a
>> day.
>> He has breakthrough seizures about every two weeks, and they are also in
>> his sleep. They have never lasted more than 3 minutes, but yes, they are
>> very very scary! My son has complex partial seizures, and has had one
>> petit mal about two weeks ago.
>>
>> He just had a 24 hour EEG which showed no under-lying seizure disorder
>> in
>> his sleep, but he seems to have a breakthrough seizure every 14 days. My
>> son is 8, and was diagnosed in April with epilepsy and a brain tumor.
>> Best
>> of luck to you! Would love to talk more!
>>
>> Thank you,
>> Susan
>>
>> --- On Tue, 6/30/09, Amanda Rainey <a_rainey121708@ yahoo.com> wrote:
>>
>>
>> From: Amanda Rainey <a_rainey121708@ yahoo.com>
>> Subject: [epilepsy] Breakthrough Seizures
>> To: "epilepsy" <epilepsy@yahoogrou
>> Date: Tuesday, June 30, 2009, 8:39 PM
>>
>>
>>
>>
>>
>>
>>
>>
>> Hi all,
>>
>> Just wondering if any of you have had a " breakthrough" seizure. My
>> daughter had one on Saturday that sent her to the ER. Now they have her
>> on
>> her regular meds (Tegretol) 1tsp 2x a day and then a 1/2 tsp around 1400
>> (2pm). It was a grand mal seizure in her sleep. I HATE those, they scare
>> me so bad. If any of you have had these I would love to know. Thank you
>>
>> Amanda
>>
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