Monday, June 29, 2009

Re: [epilepsy] new member



Hi Rachel,

Welcome to the group.

Although I have had EP for 47 years, I have learned a lot here.
You will find supportive, friendly people.

I am pretty well controlled with dilantin and phenabarb. I used
to have grand mals but about 15 years ago they changed to more
like complex partials.

Millie

> Hi Everyone, my name is Rachel, I have epilepsy since i was 10 mths old,
> at the time i had a seizure, the dr wouldn't admit me to hospital, i
> stopped breathing and when the hospital eentually admitted me they managed
> to revive me and thats how i got full blown epilepsy. I have grand mal
> eilepsy which can get worse at the time of my month, plus i have asthma
> and am hard of hearing.
> I used to have a penpal with epilepsy but lost touch so its nice to have
> friends like myself again.
> I also have a younger sister who has epilepsy and asthma, as well.
> I couldn't help noticing in some group messages it mentioned baths and
> showers, well at one point my husband used to watch over me incase i had a
> seizure but now he is thinking of getting a pull cord, put into the
> bathroom so that so that if anyhing happened i could pull it in an
> emergency but where you are tottally out of it when you have a seizure, i
> aint sure its safe enough, you could still harm yourself in lots of ways,
> do you agree?
> looking forward to being part of the group
> Best Wishes
> Rachel
>
>

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