Hi
I am epileptic as a result of encephalitis, I find if I do
too much or try to do too many things at once, I lose track
and my concentration goes, I have to concentrate on one
thing or perhaps two at once, I can't cope with any more
than that. I get very tired quickly. Epilepsy is strange, I
have other disabilities again all the result of the
encephalitis and the epilepsy is the worst as it is so
unpredictable, although it is well controlled, I still have
what I call storms, where I get the symptoms of a fit but
not a full blown seizure. I get these about 3 times a year
which isn't too bad.
Regards
Adrien
You can get me off list at:
adriencollins06@
or
adrien_collins@
Or
adrien.collins@
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-----Original Message-----
From: epilepsy@yahoogroup
[mailto:epilepsy@yahoogroup
mylmy@bnin.net
Sent: 08 June 2009 10:01
To: epilepsy@yahoogroup
Subject: Re: [epilepsy] Re:Volunteer work or things we can
do
I have just retired from working 25 years as a home health
aid.
Here at the retirement center where I live I help people
sometimes-- doing things that a home health aid would do. I
am in charge of the public computer in our building, am in
charge of our coffee hour every Wednesday morning, keep 2
bulletin boards changed about every 10 days, and am on a
couple commmittees. Oh yes, we also have a computer users
group that meets every 2nd Fri. I work in the dining room in
my building every Tues and 1 or 2 Sundays. We get our meal
free then.
I just got done having a garage sale with about 25 - 30
other people here on the campus. They always advertise so
people from town and country come in also. I got rid of a
lot of things but I still have got lots of things to go
thru. I have too much stuff. A lot of it is paper from
newspapers, magazine, and computer. That will be my last
garage sale!
I was fatigued!! I have lived here 12 years.
Millie
> --- In epilepsy@yahoogroup
<mailto:epilepsy%
wrote:
>>I am Danielle Tim's Daughter. I have seizures,both
eyeblinkies and
>>staring ones. Were not sure if i have the complexpartials
or not.I
>>volunteer all the time. I help out at the local food
pantry. They help
>>people from six townships. There are many different jobs
you can do
>>there but i usually take people around to get their
food.Its very
>>fullfilling to help others.That idea you had visiting the
eldery is
>>very good too.I don't know how old you are but sometimes
I still
>>babysit.You can also volunteer at you local church in
their
>>activities such as helping in the face painting.
-Danielle I was
>>thinking how nice it would be to share about the things we
can do, in
>>spite of health challenges, including EPI.
>>
>> I am unable to drive, but there is a senior assisted
living center
>> within short walking distance from our house. I can walk
there, and
>> spend as little or as long of time as I can tolerate
being there,
>> helping and visiting with residents.
>>
>> Lately since getting my new dog - a young male whippet by
the name of
>> "Teddy" - I have been taking him with me to visit the
seniors. He is
>> so affectionate and sweet with everyone.
>>
>> I have also started a buddy system for myself, since my
seizures are
>> often several times a week - on good days I still don't
know how I
>> might do. I have asked another volunteer to come the same
time I
>> come....so she could get me back home safely if I started
to feel an
>> aura. I have mostly complex partial seizures and seldom
grand mal.
>>
>> It really helps me to get out of the house, and to be
with my dog
>> especially in the outdoors. Having my dog has given me
confidence to
>> keep progressing forward and a duty to keep him exercised
and happy too.
>>
>> Even though I have had EPI for all of my life, I have
hope that my
>> brain can continue to recover, repair and that eventually
the
>> seizures will stop entirely. I need to proceed with this
attitude,
>> because miracles have already happened to me, so I know
the body can
>> and is always trying to repair itself.
>>
>> I would love to hear how others are managing a quality
life and
>> experiences in the midst of daily challenges.
>>
>> There is so much inspiration already in this group. I
read it every
>> day in the posts. The parents here especially, in their
love towards
>> their children affected with this and other illnesses.
>>
>> I hope to get my dog certified as well in the future. I
have a
>> trainer that is interested in working with us. I have had
two
>> seizures while out walking Teddy recently, and he has
done a really
>> good job quieting down and being supportive to me, while
we waited for help to arrive.
>>
>> Love,
>> jnanda
>>
>
>
>
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