Hi
I am also new to the list and I just wanted to say high to
you all.
I have epilepsy myself and although it is well controlled I
do have problems with it so I'd be interested to read your
messages over the months ahead.
Regards
Adrien
You can get me off list at:
adriencollins06@
or
adrien_collins@
Or
adrien.collins@
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-----Original Message-----
From: epilepsy@yahoogroup
[mailto:epilepsy@yahoogroup
Sent: 08 June 2009 02:19
To: epilepsy@yahoogroup
Subject: Re: [epilepsy] Re: New Here
i will have to ask his speech therapist about that when
school starts. we have gotten to where we can kind of read
his body language when he doesn't talk. it's so sad.
____________
From: Elizabeth Last NameSilva <elizabethkaron@
<mailto:elizabethka
To: epilepsy@yahoogroup
<mailto:epilepsy%
Cc: elizabethkaron@
<mailto:elizabethka
Sent: Sunday, June 7, 2009 6:32:14 PM
Subject: Re: [epilepsy] Re: New Here
between the childhood aphasia (like adult altizmers Im sorry
I can't spell very good this evening) and her anxiety thats
what the speech therapist diagnosed it as. She does get it
back its just frustrating as can be till it happens.
____________ _________ _________ __
From: Laura Gresham <greshamlaura@ yahoo.com>
To: epilepsy@yahoogroup s.com
Sent: Sunday, June 7, 2009 5:55:56 PM
Subject: Re: [epilepsy] Re: New Here
I was never told that is what it was. My little Aeidan goes
days without talking also, generally after heavy seizure
activity or too much excitement (i.e. being in the sun).
Laura
____________ _________ _________ __
From: Elizabeth Last NameSilva <elizabethkaron@ yahoo.com>
To: epilepsy@yahoogroup s.com
Cc: elizabethkaron@ yahoo.com
Sent: Sunday, June 7, 2009 4:15:54 PM
Subject: Re: [epilepsy] Re: New Here
My 6 and half year old daughter is unable to talk at times
after her seizures.. They said she has childs apasia bout
the same thing your talking about. It takes up to 48 hours
to regain her full functioning conversations back. But she
does get it back.
____________ _________ _________ __
From: "mylmy@bnin.net <mailto:mylmy%
<mylmy@bnin.net <mailto:mylmy%
To: epilepsy@yahoogroup s.com
Sent: Sunday, June 7, 2009 3:36:58 PM
Subject: Re: [epilepsy] Re: New Here
Nancy,
Yes, my doctor knows this because my daughters call him or
his stand in after they have been called. He has never seen
me when I can't talk. (It usually happened on a weekend and
he is not available) to see me anyway.
6 years ago I was admitted to the hospital and had an MRI,
Ultra Sound, CScan and an EEG. Then he thought I had a TIA
(small stroke) but everything happened like before. The last
time 2 years ago I asked him if it was a TIA or a sz. He
thought it was a sz. He didn't see me either time until
Monday morning.
I usually go in Monday morning and he checks me out. By then
I am talking again but he can tell that I am not quite my
usual self and I am not to drive. Between my daughter and I
-- we tell him what happened. (At least what little I
remember and whatever anyone else has seen of me). He sends
me to get a blood test to see if my meds are low.
You will have to remember I don't have many szs. My last one
was 2 years ago and before that it was 4 years.
Millie
> does your dr. understand this.. maybe I should see
another dr but he
> is suppose to be the best. Nancy
>
>
>
>
> ____________ _________ _________ __
> From: "mylmy@bnin.net <mailto:mylmy%
<mylmy@bnin.net
> <mailto:mylmy%
> To: epilepsy@yahoogroup s.com
> Sent: Sunday, June 7, 2009 1:31:34 AM
> Subject: Re: [epilepsy] Re: New Here
>
>
>
>
>
> Nancy ,
>
> When I was diagnosed (DX) 47 years ago I had grand mal
szs.
>
> About 15 years ago they changed to more like complex
partials--
> according to what I read. I start out by acting like I
don't hear you.
> Since I live alone I sleep a lot. Other wise I am probably
sleep
> deprived. I walk to places I don't remember later. If I do
talk my
> friends know I am not my usual self. Then I have trouble
talking (my
> brain isn't working right.)-- then I can't talk at all.
> This is usually over the course of 2 days. My girls say my
brain is
> scrambled. -- Then like a light switch-- my brain turns on
again.
>
> I have sent out instructions to people in my building that
when I am
> not my acting my normal self -- to call my 2 daughters who
live in town.
> It takes about a week to be my usual self. My last one was
2 years ago.
>
> Millie
>
>> thanks for the input that I have complex partial seizues
or tempole
>> lobe.
>> as my dr really does not know. but I do not pass out.
after I have
>> one I am feeling reallyweird, like everything is really
far away.
>> even things up close are far away. and most of the time
it last all
>> day. It affects my eyes as I can not see. sometimes it
is in just
>> my right eye and sometimes in both. He did say the right
side of my
>> head is worse, by all thetes he has giving me. Most of
the time I
>> know I amhaving having one but alot of times it just
comes on me and
>> it is crazy. is there anyone else that has these simtoms.
>>
>>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
>
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