Tristin,
Be careful when you come off that medicine. You might not have anymore
seizures, but if they start back like mine done they might be worse than
before. Most of mine are not very bad now, but sometimes they are. The first
one I have after that surgery, I was taken to the hospitla by ambulance. I
had been off the Neurontin I was on for about 3 months. I had to go back on
some of it. Hope you never have another seizure. Take care.
Tammy
On Thu, Jun 25, 2009 at 4:00 PM, Tristin Seagraves <tristinspike26@
> wrote:
>
>
> Yeah, I had surgery (a left temporal lobectomy) on Nov 12, 2008. Before
> the surgery, I was having 20+ seizures per month (in clusters). I've been
> seizure-free since the surgery, but I'm still on high dosages (3000mg Keppra
> and 700mg Tegretol). I probably have extreme liver damage from all of these
> years of AEDs. lol. I don't want to have to take these drugs for the rest
> of my life, but since my seizures were coming from both temporal lobes, and
> I still have my right temporal lobe (of course), I will most likely be on
> AEDs as long as I live. I accept that, but I'm still going to try to get my
> neurologist to lower my dosages.
>
> Later,
> Tristin :)
>
> --- On Thu, 6/25/09, Tammy Wolfgram <tammy@maccetera.
> wrote:
>
> From: Tammy Wolfgram <tammy@maccetera.
> Subject: [epilepsy] Re: Facing epilepsy from 15 years
> To: epilepsy@yahoogroup
> Date: Thursday, June 25, 2009, 2:21 PM
>
> Tristin, why do you want to be weaned off of Keppra? Did you have
> surgery or something? I'm sure you've said this and I just can't
> remember.
>
> Tammy
>
> [Non-text portions of this message have been removed]
>
>
>
[Non-text portions of this message have been removed]
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