Hi Mylmy
Are there any groups in Canada who support new sufferers of
ep? A friend of my sister's just got ep and any info may be
helpful. I don't know all the info. She's asked me to give
her some info but what I have is very different to her
friend, the szs are caused by stroke and head injury.
Regards
Adrien
You can get me off list at:
adriencollins22160@
or
adriencollins22160@
or
adrien.collins@
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-----Original Message-----
From: epilepsy@yahoogroup
[mailto:epilepsy@yahoogroup
mylmy@bnin.net
Sent: 20 June 2009 20:58
To: epilepsy@yahoogroup
Subject: RE: [epilepsy] new with questions
Veronica,
There are at least 25 different kinds of szs. I type
Epilepsy Ontario onto my Yahoo bar. There is a lot of info
there. I think www.epilepsyontario
also.
Millie
>
> Millie,
>
>
>
> that sounds like with MS.. just because the LP comes out
negative
> doesn't mean you don't have MS. Just means it didn't show
in the LP
> fluid at the time the test was done. I've had MS lesions
show up for
> over 12 years now but never had anything in the LP.
>
>
>
> I was amazed when something showed on my EEG. That was the
last thing
> i was expecting. I had no idea i had anything in the way
of a seizure.
> Hell i never blacked out or had convulsions. I thought my
episodes
> where I couldn't communicate well were just due to MS.
Momentary Brain
> farts I would call them.
>
> Veronica Davidson
> http://www.veronica
> <http://www.veronica
>
>
>
>
>
>
>
>
>
>
> To: epilepsy@yahoogroup
<mailto:epilepsy%
> From: mylmy@bnin.net <mailto:mylmy%
> Date: Sat, 20 Jun 2009 14:16:42 -0400
> Subject: Re: [epilepsy] new with questions
>
>
>
>
>
>
>
> Hi Veronica,
>
> Welcome to our group. Yes, a lot of things sound familiar
but
> not for me-- so I will let whoever experience them tell
you.
> I've had EP for 47 years but have learned so much in this
group.
>
> I also want to say in case the EEG comes out negative --
that
> doesn't mean he doesn't have EP. That has happened to
quite a few.
>
> Millie
>
>>
>> Hi everyone!! Thanks for letting me join your group.
>>
>>
>>
>> I have a few questions and I hope you can all help me out
here.
>>
>>
>>
>> First i want to say that this is to do with our 18 year
old son... soon
>> to
>> be 19. Wed. night we got a call from his friends that he
had a seizure
>> and we had to come get him. My husband and i jumped out
of bed and
>> rushed over to get him. HIs friends mother is a retired
RN and his
>> friend
>> is currently and RN. They told me that our son had felt a
bit dizzy so
>> they told him to sit down. He sat down, body went stiff
and his eyes
>> rolled back in his head. THey said he made some weird
gergling noises
>> with his mouth and they tried to wake him up. They told
me he was out
>> for
>> about 1 to 2 minutes tops. When he came around he was
slurring his
>> speach and didn't know what happened. . HE was also very
tired and
>> staggering around.
>>
>>
>>
>> We took him right to the ER where he told the ER dr. that
he was seeing
>> sparkling lights in his vision for awhile and he kept
asking for
>> something
>> to drink and wanted to go to sleep. He was also very
hungry. THe ER dr.
>> checked blood and urine for anything that shouldn't be
there, meaning
>> drugs and alcohol, as well as checking for infection,
high blood sugar,
>> and electrolytes. They did a CT scan to see if he had a
tumor or brain
>> bleed but everything checked out fine. THe ER dr. was
convinced that he
>> did indeed have a seizure and thought it could have been
brought on by
>> his
>> medication Abilify since that was just increased to
30mg's.
>>
>>
>>
>> The ER thought that our son was not in any danger so sent
him home wiht
>> us
>> telling us to keep an eye on him, get him to a
neurologist and get an
>> EEG
>> done.
>>
>>
>>
>> This was all wed. night so thrusday morning I had our son
call his
>> psychiatrist and tell her that he had a seizure and she
told him to stop
>> his meds ASAP. I then got him an appointment with a
neurologist who
>> squeezed him in for Friday.
>>
>> THe neurologist is convinced that our son simply fainted.
BUt wants to
>> get an EEG done to make sure. I'm not all that convinced
that he simply
>> fainted. Dr. said that since our son stood up and then
felt faint it was
>> most likely that his BP was low and the sudden standing
up made him
>> faint,
>> blood rush etc. Our son feels now that he did simply
faint.
>>
>>
>>
>> The day after this insident is what gets me. YOu don't
have a full day
>> or
>> more after a faiting spelll where your so tired you can
barely function
>> and you sleep all day. He also was extremely hungry and
thirsty the next
>> day. Reminded me of our german shepard which had seizure
disorders and
>> would drink execessively the day after a seizure. Found
him face down in
>> the toilet drinking all the time... not that our son has
done this
>> lol...
>> But he drank quite a bit on thursday and did nothing but
eat, drink and
>> sleep.
>>
>>
>>
>> I myself have had mild electrical brain surges which
showed up on an EEG
>> many years ago. This was before i was diagnosed with MS.
In my case i
>> would be allert but unable to distinguish what was being
said to me. I
>> felt disconnected from my body and when people spoke to
me it was as if
>> there was a plate glass window between us. I could see
the person talk
>> to
>> me but didn't know what was being said. Almost like being
under water in
>> a pool filled with screaming kids.
>>
>>
>>
>>
>>
>> Anyway, i was wondering if anyone had a similar
experience as my son
>> did.
>> I'm certainly going to take him for an EEG. I just want
to know if
>> anything he experienced would sound familiar and if so
how do you know
>> what to look for in the future?
>>
>> Veronica Davidson
>> http://www.veronica
<http://www.veronica
>>
>>
>>
>>
>>
>>
>>
>>
>>
____________
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>>
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>>
>>
>>
>
>
>
>
>
>
>
>
>
> ____________
> Microsoft brings you a new way to search the web. Try
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>
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