Hang in there you might and might not have ep. We took my 6 and half year old daughter all over Texas to differant neurologist and they said they didn't have anything show up on the VEEG we had them say they saw something but then they didn't see it again and blew it off. We were told everything from I was a new mother and had no clue what I was doing to it being behavioral with my daughter. We went to Houston to Texas Children's Hospital and within 24 hours the doctor came in and said that my daughter had a seizure and she has epilepsy.
I encourage you to hang in ther and we'll be praying for you! It's a hard road to go down but your not alone.
____________
From: Adrien <adriencollins22160@
To: epilepsy@yahoogroup
Sent: Wednesday, June 24, 2009 12:43:43 PM
Subject: RE: [epilepsy] new with questions
Hi
I have had two eeg's in the past and on both occasions, the
eeg didn't show anything up, they were not convinced that I
had ep.
Regards
Adrien
You can get me off list at:
adriencollins22160@ googlemail. com
or
adriencollins22160@ hotmail.fr
or
adrien.collins@ orange.fr
Speakon is a free fully self-voicing accessible multimedia
program for
the visually impaired, find out more by downloading the
software from:
http://www.a-
You can join the speakon user group by sending a blank
e-mail to:
speakon-subscribe@ yahoogroups. com
-----Original Message-----
From: epilepsy@yahoogroup s.com
[mailto:epilepsy@
mylmy@bnin.net
Sent: 20 June 2009 20:17
To: epilepsy@yahoogroup s.com
Subject: Re: [epilepsy] new with questions
Hi Veronica,
Welcome to our group. Yes, a lot of things sound familiar
but not for me-- so I will let whoever experience them tell
you.
I've had EP for 47 years but have learned so much in this
group.
I also want to say in case the EEG comes out negative --
that doesn't mean he doesn't have EP. That has happened to
quite a few.
Millie
>
> Hi everyone!! Thanks for letting me join your group.
>
>
>
> I have a few questions and I hope you can all help me out
here.
>
>
>
> First i want to say that this is to do with our 18 year
old son...
> soon to be 19. Wed. night we got a call from his friends
that he had a
> seizure and we had to come get him. My husband and i
jumped out of bed
> and rushed over to get him. HIs friends mother is a
retired RN and his
> friend is currently and RN. They told me that our son had
felt a bit
> dizzy so they told him to sit down. He sat down, body went
stiff and
> his eyes rolled back in his head. THey said he made some
weird
> gergling noises with his mouth and they tried to wake him
up. They
> told me he was out for about 1 to 2 minutes tops. When he
came around
> he was slurring his speach and didn't know what happened.
. HE was
> also very tired and staggering around.
>
>
>
> We took him right to the ER where he told the ER dr. that
he was
> seeing sparkling lights in his vision for awhile and he
kept asking
> for something to drink and wanted to go to sleep. He was
also very hungry. THe ER dr.
> checked blood and urine for anything that shouldn't be
there, meaning
> drugs and alcohol, as well as checking for infection, high
blood
> sugar, and electrolytes. They did a CT scan to see if he
had a tumor
> or brain bleed but everything checked out fine. THe ER dr.
was
> convinced that he did indeed have a seizure and thought it
could have
> been brought on by his medication Abilify since that was
just increased to 30mg's.
>
>
>
> The ER thought that our son was not in any danger so sent
him home
> wiht us telling us to keep an eye on him, get him to a
neurologist and
> get an EEG done.
>
>
>
> This was all wed. night so thrusday morning I had our son
call his
> psychiatrist and tell her that he had a seizure and she
told him to
> stop his meds ASAP. I then got him an appointment with a
neurologist
> who squeezed him in for Friday.
>
> THe neurologist is convinced that our son simply fainted.
BUt wants to
> get an EEG done to make sure. I'm not all that convinced
that he
> simply fainted. Dr. said that since our son stood up and
then felt
> faint it was most likely that his BP was low and the
sudden standing
> up made him faint, blood rush etc. Our son feels now that
he did simply faint.
>
>
>
> The day after this insident is what gets me. YOu don't
have a full day
> or more after a faiting spelll where your so tired you can
barely
> function and you sleep all day. He also was extremely
hungry and
> thirsty the next day. Reminded me of our german shepard
which had
> seizure disorders and would drink execessively the day
after a
> seizure. Found him face down in the toilet drinking all
the time... not that our son has done this lol...
> But he drank quite a bit on thursday and did nothing but
eat, drink
> and sleep.
>
>
>
> I myself have had mild electrical brain surges which
showed up on an
> EEG many years ago. This was before i was diagnosed with
MS. In my
> case i would be allert but unable to distinguish what was
being said
> to me. I felt disconnected from my body and when people
spoke to me it
> was as if there was a plate glass window between us. I
could see the
> person talk to me but didn't know what was being said.
Almost like
> being under water in a pool filled with screaming kids.
>
>
>
>
>
> Anyway, i was wondering if anyone had a similar experience
as my son did.
> I'm certainly going to take him for an EEG. I just want to
know if
> anything he experienced would sound familiar and if so how
do you know
> what to look for in the future?
>
> Veronica Davidson
> http://www.veronica slavishlathers. com
> <http://www.veronica slavishlathers. com>
>
>
>
>
>
>
>
>
> ____________ _________ _________ _________ _________ _________ _
> Microsoft brings you a new way to search the web. Try
BingT now
>
http://www.bing. com?form= MFEHPG&publ= WLHMTAG&crea= TEXT_MFEHP
G_Core_tag
> line_try
>
<http://www.bing. com?form= MFEHPG&publ= WLHMTAG&crea= TEXT_MFEH
PG_Core_ta
> gline_try>
> bing_1x1
>
> [Non-text portions of this message have been removed]
>
>
>
> ------------ --------- --------- ------
>
> Just a friendly reminder: Please remember to sign your
post and
> remember to clean up messages when you reply to them. This
is
> especially important if you are on digest. This not only
helps out the
> list owner but, it makes messages much easier to read when
they arrive in our inboxes.
>
> Yahoo! Groups Links
>
>
>
>
[Non-text portions of this message have been removed]
Change settings via the Web (Yahoo! ID required)
Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional
Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe
No comments:
Post a Comment