thinking anything I saw at the Drug store must be safe. Ohhhhhh yeh..(:smile:) I didn't have seizures that I
know of but I was sure dancing on the walls and on another planet somewhere, very unstable and not knowing
what I was doing or who I was. Must remember that everyone is different even should have the same type of
seizure.
If you do not have confidence in your doctor anymore, try another one. That 2nd-3rd opinion could be the
answer.
Getting sick in any way, your immune system is down and when this happens this is when your seizure threshold
lowers.
Julie
Julie Hope
epilepsyhealth@sasktel.net
http://www.2betrhealth.com
----- Original Message -----
From: "jillybear_778" <jillybear778@hotmail.com>
To: <epilepsy@yahoogroups.com>
Sent: Tuesday, January 05, 2010 12:41 AM
Subject: [epilepsy] Re: New to the group...Newly diagnosed...Lots of questions..
My name is Jill. Thanks for the Welcome to the group. I know that my dr. Said sudafed and benadryl were not
safe to take, but that was about it. Didn't really give me much more info. I have night-time partial seizure
activity (brain spikes as he called them) in my frontal lobes. But he also some spikes in my temporal lobes
at one time. He has done two-24 EEG's which have not been conclusive in diagnosing the seizure activity to the
full extent. He said it just shows brain spikes that are abnormal and indictive of seizures, so we tried
medication(I have been having trouble w/ muscle pain, cramping/spasms/numbness,headaches, fatigue,etc. for 3
years, had every test and work up imaginable done, some tests you would never even believe!)But I am
responding well to medication, I have been on Topamax since February (mostly for migraines- but he increased
the amount. I take because of the seizures, said it was also anti-seizure med) So I am really overwhelmed and
confused and not really sure where to go for answers. My doctor was trying to help me at first but I don't
know anymore? I feel like he is giving up...I am going to take people's advice and maybe talk to the
pharmacist. and see waht advice I can get about cold meds...Thanks everyone for helping me out so much the
response has be greatly appreciated!
--- In epilepsy@yahoogroups.com, Tristin Seagraves <tristinspike26@...> wrote:
>
> Hi. Welcome to the group. My name is Tristin. What's your name? In response to your questions about cold
> meds, I think any over the counter cold medication is safe to take without interacting with AEDs, except
> antihistamines. As a child, anytime I would take or was given an antihistamine, it would trigger seizures.Â
> That's all the knowledge I have for that topic. :)
> Â
> What kind of seizures do you have? What medication(s) are you on?Â
> Â
> I was diagnosed with temporal lobe epilepsy back in 1993. I have mostly partial and complex partial
> seizures. I had a left temporal lobectomy Nov 08, and I've been seizure free since the surgery.Â
> Â
> Sincerely,
> Â Â Â Â Â Â Â Â Tristin :)
> --- On Sat, 1/2/10, jillybear_778 <jillybear778@...> wrote:
>
>
> From: jillybear_778 <jillybear778@...>
> Subject: [epilepsy] New to the group...Newly diagnosed...Lots of questions...
> To: epilepsy@yahoogroups.com
> Date: Saturday, January 2, 2010, 12:17 AM
>
>
> Â
>
>
>
> I just recently got diagnosed w/ nightime seizure activity. I am on Topamax to help treat it and my longtime
> migraines. My doctor is not sure what is causing the headaches or the seizure activity. I have been having
> tests done for the last 3yrs w/no definitive answers given. But here is my question for anyone who can help.
> I asked my neurologist and he wasn't much help w/this topic (not really his area), my primary doctor is non
> existent (I am so frustrated with him right now-long story-I am hoping to switch drs soon though)but how do
> I know what cold meds are safe to take w/ seizures and my meds? Are there any sites I can go to for info?
> With cold season upon us, I am worried about geting sick. My husband is sick right now and I am scared I
> might be next and I know I have to be careful about what meds I take. Any help would be greatly appreciated!
> Thanks!!: -)
>
>
>
>
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
------------------------------------
Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply
to them. This is especially important if you are on digest. This not only helps out the list owner but, it
makes messages much easier to read when they arrive in our inboxes.
Yahoo! Groups Links
------------------------------------
Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply to them. This is especially important if you are on digest. This not only helps out the list owner but, it makes messages much easier to read when they arrive in our inboxes.
Yahoo! Groups Links
<*> To visit your group on the web, go to:
http://groups.yahoo.com/group/epilepsy/
<*> Your email settings:
Individual Email | Traditional
<*> To change settings online go to:
http://groups.yahoo.com/group/epilepsy/join
(Yahoo! ID required)
<*> To change settings via email:
epilepsy-digest@yahoogroups.com
epilepsy-fullfeatured@yahoogroups.com
<*> To unsubscribe from this group, send an email to:
epilepsy-unsubscribe@yahoogroups.com
<*> Your use of Yahoo! Groups is subject to:
http://docs.yahoo.com/info/terms/
No comments:
Post a Comment