Jill my suggestion to you is that you might want to seak not only a second
opinion but also a third. try your hardest to find doctors that are not in
the same group/affiliated with one another and dont tell them everything
the doctor before him did. let the doctor diagnose you as if it was your
first time. after seeing doctors if 2 agree with one another and not the third
common knowledge stick with one of the two.
you have to go with your gut feelings when it comes to picking out the
right doctor(s)
Brian
ps after you pick a doctor then share all other information with him/her.
In a message dated 1/4/2010 10:41:45 P.M. Pacific Standard Time,
jillybear778@
My name is Jill. Thanks for the Welcome to the group. I know that my dr.
Said sudafed and benadryl were not safe to take, but that was about it.
Didn't really give me much more info. I have night-time partial seizure activity
(brain spikes as he called them) in my frontal lobes. But he also some
spikes in my temporal lobes at one time. He has done two-24 EEG's which have
not been conclusive in diagnosing the seizure activity to the full extent.
He said it just shows brain spikes that are abnormal and indictive of
seizures, so we tried medication(I have been having trouble w/ muscle pain,
cramping/spasms/
know that my dr. Said sudafed and benadryl were not safe to take, but that
was about it. Didn't really give me much more info. I have night-time
partial seizure activity (brain spikes as he called them) in my frontal lobes.
But he also some spikes in my temporal lobes at one time. He has done
two-24 EEG's which have not been conclusive in diagnosing the seizure activity
to the full extent. He said it just shows brain spikes that are abnormal and
indictive of seizures, so we tried medication(I have been having trouble
w/ muscle pain, cramping/spasms/
for 3 years, had every test and work up imagina
--- In _epilepsy@yahoogrou
Tristin Seagraves <tristinspike26@
>
> Hi. Welcome to the group. My name is Tristin. What's your name?Â
In response to your questions about cold meds, I think any over the
counter cold medication is safe to take without interacting with AEDs, except
antihistamines. As a child, anytime I would take or was given an
antihistamine, it would trigger seizures. That's all the knowledge I have for that
topic. :)
> Â
> What kind of seizures do you have? What medication(s) are you on?Â
> Â
> I was diagnosed with temporal lobe epilepsy back in 1993. I have mostly
partial and complex partial seizures. I had a left temporal lobectomy Nov
08, and I've been seizure free since the surgery.Â
> Â
> Sincerely,
> Â Â Â Â Â Â Â Â Tristin :)
> --- On Sat, 1/2/10, jillybear_778 <jillybear778@
>
>
> From: jillybear_778 <jillybear778@
> Subject: [epilepsy] New to the group...Newly diagnosed... Subject:
[epilepsy]
> To: _epilepsy@yahoogrou
> Date: Saturday, January 2, 2010, 12:17 AM
>
>
> Â
>
>
>
> I just recently got diagnosed w/ nightime seizure activity. I am on
Topamax to help treat it and my longtime migraines. My doctor is not sure what
is causing the headaches or the seizure activity. I have been having tests
done for the last 3yrs w/no definitive answers given. But here is my
question for anyone who can help. I asked my neurologist and he wasn't much help
w/this topic (not really his area), my primary doctor is non existent (I am
so frustrated with him right now-long story-I am hoping to switch drs soon
though)but how do I know what cold meds are safe to take w/ seizures and
my meds? Are there any sites I can go to for info? With cold season upon us,
I am worried about geting sick. My husband is sick right now and I am
scared I might be next and I know I have to be careful about what meds I take.
Any help would be greatly appreciated! Thanks!!: -)
>
>
>
>
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
[Non-text portions of this message have been removed]
Tuesday, January 5, 2010
Re: [epilepsy] Re: New to the group...Newly diagnosed...Lots of questions..
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