Actually Millie, and anyone else who's reading my reply,
We all have a variety of reasons to complain. But not necessarily should any of those reasons pertain to what we had when we were born, or what may have happened at some point in our lives. Easy example, pretty much everyone who registers to become a member with this epilepsy Yahoo group, or any other epilepsy support group online, they are either "looking for answers" to questions pertaining to seizures and epilepsy; or "sharing answers" pertaining to seizures and epilepsy; or doing both the "looking" and "sharing". Communication can be very helpful at decreasing the complaints and confusions.
Now, no matter who has seizures, or who has witnessed someone having a seizure, fear is always going to be something people cannot get rid of. This is natural just as it is natural for people to be asking, "What if this happens...", "What if that happens...", "What is this", or "What is that", simply because they are looking for clues to the puzzle. Some people don't even know what questions they should or need to be asking. So when people first find out that they have epilepsy themselves, or when people find out that a friend or a loved one has epilepsy, they're going to be shocked, and may have feelings of doubt or confusion, simply because they need directions to learn how to understand and how to adjust to situations dealing with epilepsy.
Have you ever been provided with any information about seizures and epilepsy from your own doctor or any other medical personnel? Have you ever even seen any handouts, pamphlets, leaflets, books, or anything else about seizures and epilepsy inside any of the waiting rooms at the doctor's offices or medical centers? If you haven't, then maybe the next time you go in to see the doctor, whether if it's for you, or a loved one who has epilepsy, if you don't see any information about seizures or epilepsy, then ask your doctor or any other medical personnel if they have any type of information about epilepsy that you can take with you. If they provide you with the information this time, but didn't provide to you before, then asked them "Why didn't you give me any of this information when you first diagnosed me with having epilepsy?" One time several years ago, I walked into the neurology department in a hospital just to see if there was any information available concerning epilepsy in the waiting room. I did not see anything other than your typical magazines and newspapers. So I asked the receptionist if they had any handouts about seizures and epilepsy, and they did. It's just that the information was "hidden" in a location where patients wouldn't be able to easily notice it.
The overall point I'm trying to explain is that there is a lot of information about seizures and epilepsy; it's just a matter of getting the people who know about seizures and epilepsy, to provide the information to those who do not know about seizures and epilepsy. The information needs to be provided for everyone, everywhere.
The lack of communication concerning seizures and epilepsy is my most common complaint.
Bruce
--- In epilepsy@yahoogroup
>
> Bruce,
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> Thanks for giving us the chance to see Faith the walking dog and Nick born with no arms and no legs.
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> Unbelievable -- yet true
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> We really don't have any reason to complain - do we?
>
> Millie
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