Saturday, October 3, 2009

Re: [epilepsy] Re: Device for Epi.. VNS INFO

 

Thanks, I appriciate the info. Can use all I can get. They still haven't found a cause. They are saying it is stress - I ask "How do I get rid of that?"

________________________________
From: Susan Barothy <sbarothy35@yahoo.com>
To: epilepsy@yahoogroups.com
Sent: Saturday, October 3, 2009 8:15:08 PM
Subject: Re: [epilepsy] Re: Device for Epi.. VNS INFO

 
There is the Vagal Nerve Stimulator. It is like a pacemaker for the brain. You have a generator put in your chest and they connect lead wires to the vagal nerve in your neck since that nerve doesn't conduct pain. Then the docs sit it to go off every so often. My daughter has had her since 02 and her battery is just now running down. But every 3 minutes hers comes on for 30 seconds and she has a magnet that when one starts you can turn it on and it is at a higher strength of electricity to try to interupt the seizures. We really didn't know if it was doing much at all but since the battery is dying down now we are seeing more activity cause it is not coming on correctly. We will have the battery replaced and she will be good again. She still takes lots of meds but it is better than nothing.

They say about a third of the ppl that get this had a remarkable decrease in their seizures and most have the intensity of the seizure is lessened.

Hope this helps

Sue Barothy
sbarothy35@yahoo. com

____________ _________ _________ __
From: Clifton <cbicook@yahoo. com>
To: epilepsy@yahoogroup s.com
Sent: Sat, October 3, 2009 7:47:54 PM
Subject: [epilepsy] Re: Device for Epi..

I know of someone who has a device implanted in his chest that when a seizure comes on, another person can take a special magnet that will subdue his seizure. I don't know the details as to why or how this works for his circumstances. He also has Cerebral palsy but i don't know how that related.

CBI

--- In epilepsy@yahoogroup s.com, "Millie Myers" <mylmy@...> wrote:
>
>
> hairglu, --you didn't sign your name
>
> The only thing I can think of is to have a dog who can tell you when a sz is
> coming.
>
> Jewl along with a couple others in the group have one. Jewl has a lot of
> info about that..
>
> Millie
>
> ----- Original Message -----
> From: "harisgul88" <harisgul88@ ...>
> To: <epilepsy@yahoogrou p s.com>
> Sent: Saturday, October 03, 2009 1:38 AM
> Subject: [epilepsy] Device for Epi..
>
>
> > Dear Members,
> >
> > Does anybody knows abt any device to detect the epilepsy or seizure before
> > it starts to happen. kindly reply on my mail if any body knows.
> >
> >
> >
> > ------------ --------- --------- ------
> >
> > Just a friendly reminder: Please remember to sign your post and remember
> > to clean up messages when you reply to them. This is especially important
> > if you are on digest. This not only helps out the list owner but, it
> > makes messages much easier to read when they arrive in our inboxes.
> >
> > Yahoo! Groups Links
> >
> >
> >
> >
> >
>

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

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Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply to them.  This is especially important if you are on digest.  This not only helps out the list owner but, it makes messages much easier to read when they arrive in our inboxes.

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