I have a VNS and since I've had it, I has helped alot. I am in more control. I still take 2 meds but with the VNS, I went from about 20-30 a month to maybe 3 a month. Ask your doctor about it. With them being that bad, see i they think it may help.
Jamie
--- In epilepsy@yahoogroup
>
>
>
> --- In epilepsy@yahoogroup
> >
> > Carolyn,
> >
> > 1000 in a weekend? What kind of szs does he have? Is he in contact with
> > his Dr? See if you can get more details. He must be in constant szs!
> >
> > What meds is he on? Is surgery an option?
> >
> > Millie
> >
> >
> >
> >
> > ----- Original Message -----
> > From: "Carolyn Burby" <cjbkunzie@>
> > To: <epilepsy@yahoogroup
> > Sent: Friday, October 02, 2009 3:35 PM
> > Subject: [epilepsy] Any suggestions? HELP!!!
> >
> >
> > Hi, Carolyn here haven't been on in awhile, moving looking for work, etc.
> > Anyway I have a question.
> >
> > I have been on a chat group with someone with similar epilepsy as myself. He
> > wanted me to talk with a woman who's son can have up to 1000 seizures in a
> > weekend, never said how many in a week. She wants my advice but all I could
> > say is "Should he be in the hospital" or "What about his meds?" She said
> > nothing works
> >
> > Does anyone here have any ideas of how to help? I felt like a jerk because I
> > don't know what to say. I have had epilepsy for 32 years but nothing this
> > severe. Maybe you guys can help me. You may know more than me because
> > believe me I feel like an idiot. I would be interested in knowing also on hw
> > to respond.
> >
> > Thanks,
> > Carolyn
> >
> > If anyone has ideas can you let me know also? I would be interested. I can
> > I've got this divese Its a inplantcalled Veracos nerve stimulartor Its reduce my seizures drasticly I was haveing from 6-10 aweek to 4 ayearask your Nerlogist about it & this might be your answer
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
> >
> >
> > ------------
> >
> > Just a friendly reminder: Please remember to sign your post and remember to
> > clean up messages when you reply to them. This is especially important if
> > you are on digest. This not only helps out the list owner but, it makes
> > messages much easier to read when they arrive in our inboxes.
> >
> > Yahoo! Groups Links
> >
>
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