Elizabeth,
Since '74 I've had intractable, refractory, idiopathic complex-partial epilepsy. I've never been without having a seizure which I'm aware of every 3-7 weeks, there are plenty more that I'm not aware of. When in a Complex-partial seizure the person is unconscious, and in the period (post-ictal period) that follows the brain while the brain is recovering from the unconsciousness it may be seconds or many minutes until it's fully together.
On June 9, 1992, I had a seizure at the train station, Union Station in Washington, DC. Washington Post 6/18/92 it said, Amtrak police officials said that I was "infirm". Meaning: weak of mind, feeble, not solid or stable. I guest that's why they attempted to send me to a place referred to as an infirmary (a mental hospital)... I've been though it all and know that it can be bad. When in or a while after a seizure I don't know much.
Tim
____________
From: Elizabeth Last NameSilva <elizabethkaron@
To: epilepsy@yahoogroup
Cc: elizabethkaron@
Sent: Wednesday, June 17, 2009 4:38:46 PM
Subject: Re: [epilepsy] Re: Facing epilepsy from 15 years
Aamir,
Im sorry you feel left out or criticised. Epilepsy is NOT a disease! When people will only give you sympathy if you are asking just for sympthy thats one thing but why not make something out of what you have or what you have learned from having this epilepsy? Why dont you educate others about it so that they know so that maybe they can help others with epilepsy. You wont neccessarly be dependant on everyone else the rest of your life. I have seen people make something out of it and help others. It just depends on what you make of it! And yes "others just dont understand" you can't look at epilepsy and only see the negative it not the end of the world.
Elizabeth
____________ _________ _________ __
From: aamir shah <aryan_ami@yahoo. com>
To: epilepsy@yahoogroup s.com
Sent: Wednesday, June 17, 2009 3:09:31 PM
Subject: Re: [epilepsy] Re: Facing epilepsy from 15 years
Martha/Millie,
Sorry for my such a bad response with you people. I am getting alot frm this community. But you know very well when you have in this disease you will be dependent on others in many ways. you can not drive you cannot go alone. these things hurts that i am not like a
common man and people just give you sympathies.
Amir
--- On Wed, 6/17/09, Martha Wilson-Harris <macarimo@gmail. com> wrote:
From: Martha Wilson-Harris <macarimo@gmail. com>
Subject: Re: [epilepsy] Re: Facing epilepsy from 15 years
To: epilepsy@yahoogroup s.com
Date: Wednesday, June 17, 2009, 9:55 AM
Hi. This is Martha. I have TLE. When I have my seizures, I feel very much
alone and out of place after I have had one or two. They leave me feeling
sick, tired, sometimes sore, sometimes paralyzed as I have brain damag too.
This group has been very helpful to learn of all of the people who have
seizures that I may not be able to converse with, but atleast I can email
back and forth with. That does help on the days when I am alone.
On Wed, Jun 17, 2009 at 10:28 AM, neraymond2010 <neraymond2010@ yahoo.com>wrote:
>
>
> yeah that is why i joined so maybe people will understand what i go through
> when i have issues with my seizures. Does anyone ever feel like they useless
> at time after seizures happen or issues with them and your family doesnt
> quite understand. I try to explain it but sometimes they don't get it I know
> people on here will understand more. Yes so many different kinds of meds i
> have found but mine is such a high dose. I take 1000mg Dilantin daily. DOes
> any take that high of a dose or similar on other meds?
>
> --- In epilepsy@yahoogroup s.com <epilepsy%40yahoogr oups.com> , mylmy@....
> wrote:
> >
> > Aamir,
> >
> > We join this group for the support of people who are going
> > thru the same things we are. It just helps that we are not
> > the only one who has szs.
> >
> > As you read the messages you will find that there are many kinds
> > kinds of szs and many kind of meds. Each person has to find
> > the med for them.
> >
> > Millie
> >
> >
> >
> >
> >
> >
> > > Why this is uncurable and if it is not then why you people join ths
> group.
> > >
> > > --- On Fri, 6/5/09, Nancy Livesay <nlivesay1801@ ...> wrote:
> > >
> > >
> > > From: Nancy Livesay <nlivesay1801@ ...>
> > > Subject: Re: [epilepsy] Facing epilepsy from 15 years
> > > To: epilepsy@yahoogroup s.com <epilepsy%40yahoogr oups.com>
> > > Date: Friday, June 5, 2009, 12:34 PM
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > > This is not cureable.will probaly have it for therest of your life.
> > >
> > > ____________ _________ _________ __
> > > From: aryan_ami <aryan_ami@yahoo. com>
> > > To: epilepsy@yahoogroup s.com
> > > Sent: Friday, June 5, 2009 12:07:48 PM
> > > Subject: [epilepsy] Facing epilepsy from 15 years
> > >
> > > Dears,
> > >
> > > My name is Aamir. I am from Pakistan. I am 27 year old doing job in a
> > > local bank. I have done MBA finance. But with all this i am facing
> > > epilepsy from 15 years. I have no fit from last 2 and half years. i am
> > > taking Epival CR which contains divalprox sodium from Last five to
> seven
> > > years. I have visited many doctors here but in vain. What can i do to
> > > prevent from this disease and what measures should i taken to cure this
> > > desease
> > >
> > > Please Help me in this regard
> > >
> > > Thank you
> > >
> > > [Non-text portions of this message have been removed]
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > > [Non-text portions of this message have been removed]
> > >
> > >
> >
>
>
>
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