Hi Suzanne
Glad you got your tegretol to a comfortable level, I was
getting many spells on the 1000 per day so the specialist
increased it to 1200 but I felt very ill taking that but
1100 is fine with me, probably gaining a bit of weight so
the tegretol wasn't quite as effective but it is working
just fine now. Perhaps the cepra will boost what the
tegretol is doing, time will tell. Take care.
Regards
Adrien
-----Original Message-----
From: epilepsy@yahoogroups.com
[mailto:epilepsy@yahoogroups.com] On Behalf Of Suzanne
Sent: Wednesday, September 04, 2013 5:47 PM
To: epilepsy@yahoogroups.com
Subject: [epilepsy] Re: going on to cepra
Hi Adrian
15 or so years ago I was on 1400mg of Tegretol which had
been increased
during the time I was trying out a lot of other drugs. I
felt too
drugged up so I, without consulting the medical world,
decided to
decrease the dose. I did it really gradually by reducing it
by 100mg
(1/2 a tablet) in the spring and autumn, as the clocks went
back &
forward (I am in the UK). So I reduced it by 200mg a year. I
always keep
a record of when I have seizures so knew that I would be
able to tell
over the 12 month period if they had increased. I went from
1400mg down
to 400mg, at 300mg I had a seizure so went back to 400mg. It
took me 5
years to lose those 1000mg but proves that I was being
overdosed.
I guess as I get older and my lifestyle changes things will
need to be
reviewed, but the specialist said he no longer needed to see
me as I had
found a good balance of medication.
Suzanne
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