Hi Tammy
Ok I collected my cepra this evening, I am just looking on
google at the info about it but there is loads, not quite
sure of the best place but will probably ring a pharmacist
tomorrow. Yes I hope the cepra along with the tegretol
completely stops the minor seizures and the ongoing problems
I have on a day to day basis. I note your advice on staying
with the proper medications, I don't use generic because it
doesn't work as well for me with the tegretol so hopefully
it'll be the same with the cepra. Nice to hear from you.
Thanks for your tips and stay well.
Regards
Adrien
-----Original Message-----
From: epilepsy@yahoogroups.com
[mailto:epilepsy@yahoogroups.com] On Behalf Of uniquepnk
tds.net
Sent: Wednesday, September 04, 2013 3:05 AM
To: epilepsy@yahoogroups.com
Subject: Re: [epilepsy] Re: going on to cepra
Adrien,
I haven't wrote much on here lately, but I read your letter
and thought I
would respond. I have been on the Keppra every since it came
out. It has
helped my seizures better than any other med has. I don't
think the generic
is as good as the brand name kind, but everybody doesn't
have that feeling
I know. I started out with the brand name and then had to
get the
generic.What ever you start with, stay with it. I have left
temporal
complex partial seizures. The Keppra cut the length of the
seizures and the
amount of seizures I had every month.I do have to take
antidepressants with
it, because of the mood swings. I don't take Tegretol
though. My other
seizure med is Vimpat. The Keppra also comes in Keppra XR,
which I am
on(1,000 mgs a day). I don't have to take as much as I did
the regular
Keppra. It helps with headaches I was getting after the
seizures when I
started it and still does. I hope this helps you and I hope
it works for
you. TC
Tammy
On Tue, Sep 3, 2013 at 12:42 PM, Adrien Collins <
adriencollins22160@gmail.com
<mailto:adriencollins22160%40gmail.com> > wrote:
> **
>
>
> Hi Suzanne
>
> Ok yes I am on 1100 mg of tegretol per day, not sure what
> the dose of the cepra will be all I know is that I will be
> taking half a tablet twice a day. I more or less have the
> epilepsy completely controlled, it is the masked seizures
> the ones that occur like the lack of concentration,
clonnic
> seizures, things like that they want to stop but I know
> myself they will never be completely stopped but will give
> the cepra a try. I am happy just taking the tegretol but
am
> willing to try something new. Even if it means I can
slowly
> reduce the tegretol a bit but one step at a time. I
stopped
> the tegretol which I obviously won't, I would after a few
> days have a full seizure and stop breathing so am not
> willing to tamper with it too much. Will see how it goes.
>
>
> Regards
>
> Adrien
>
> -----Original Message-----
> From: epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com>
> [mailto:epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com> ] On Behalf Of Suzanne
> Sent: Tuesday, September 03, 2013 5:46 PM
> To: epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com>
> Subject: [epilepsy] Re: going on to cepra
>
> Hi
>
> I am a bystander am on the same drugs as you Adrien
>
> I have temporal lobe epilepsy as a result of an infection
> caught in
> France 45 years or so ago. It is the sort of epilepsy
where
> I get no
> cues - it's not set off by bright lights, computer screens
> etc etc
>
> I am on Tegretol 200mg a day & Keppra 1000mg a day - both
> now generic
> replacements which have not affected me at all.
>
> I have been through a range of anti epileptic drugs over
the
> last 45
> years or so, Tegretol more or less stopped the night time
> seizures but
> for me Keppra has been magic. Like Tegretol it doesn't do
> much for my
> memory but from the day I started Keppra 12 years or so
ago
> I haven't
> had a seizure strong enough to render me unconscious just
> 'deja vues'
> and even those apart from once in a blue moon aren't bad
> enough for
> anyone to notice. It's supposed to make you sleepy but for
> me it makes
> it difficult to sleep, and it does sometimes make my
> emotions too near
> the surface, also in the morning for the 1st few seconds
or
> so after
> getting out of bed I am a little unsteady on my feet.
> When I started taking Keppra it took a bit of time for my
> head to get
> used to it, I felt as if I was high on something, Dizzy
and
> really
> unsteady on my feet. I started on 250mg a day and worked
it
> up to
> 1000mg. It's not a very high dose but it did the job for
me
>
> Suzanne
>
> ----------
>
> No virus found in this outgoing message.
> Checked by AVG - www.avg.com
> Version: 9.0.932 / Virus Database: 3222.1.1/6133 - Release
> Date: 09/03/13 07:14:00
>
> [Non-text portions of this message have been removed]
>
>
>
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