Adrien,
I haven't wrote much on here lately, but I read your letter and thought I
would respond. I have been on the Keppra every since it came out. It has
helped my seizures better than any other med has. I don't think the generic
is as good as the brand name kind, but everybody doesn't have that feeling
I know. I started out with the brand name and then had to get the
generic.What ever you start with, stay with it. I have left temporal
complex partial seizures. The Keppra cut the length of the seizures and the
amount of seizures I had every month.I do have to take antidepressants with
it, because of the mood swings. I don't take Tegretol though. My other
seizure med is Vimpat. The Keppra also comes in Keppra XR, which I am
on(1,000 mgs a day). I don't have to take as much as I did the regular
Keppra. It helps with headaches I was getting after the seizures when I
started it and still does. I hope this helps you and I hope it works for
you. TC
Tammy
On Tue, Sep 3, 2013 at 12:42 PM, Adrien Collins <
adriencollins22160@gmail.com> wrote:
> **
>
>
> Hi Suzanne
>
> Ok yes I am on 1100 mg of tegretol per day, not sure what
> the dose of the cepra will be all I know is that I will be
> taking half a tablet twice a day. I more or less have the
> epilepsy completely controlled, it is the masked seizures
> the ones that occur like the lack of concentration, clonnic
> seizures, things like that they want to stop but I know
> myself they will never be completely stopped but will give
> the cepra a try. I am happy just taking the tegretol but am
> willing to try something new. Even if it means I can slowly
> reduce the tegretol a bit but one step at a time. I stopped
> the tegretol which I obviously won't, I would after a few
> days have a full seizure and stop breathing so am not
> willing to tamper with it too much. Will see how it goes.
>
>
> Regards
>
> Adrien
>
> -----Original Message-----
> From: epilepsy@yahoogroups.com
> [mailto:epilepsy@yahoogroups.com] On Behalf Of Suzanne
> Sent: Tuesday, September 03, 2013 5:46 PM
> To: epilepsy@yahoogroups.com
> Subject: [epilepsy] Re: going on to cepra
>
> Hi
>
> I am a bystander am on the same drugs as you Adrien
>
> I have temporal lobe epilepsy as a result of an infection
> caught in
> France 45 years or so ago. It is the sort of epilepsy where
> I get no
> cues - it's not set off by bright lights, computer screens
> etc etc
>
> I am on Tegretol 200mg a day & Keppra 1000mg a day - both
> now generic
> replacements which have not affected me at all.
>
> I have been through a range of anti epileptic drugs over the
> last 45
> years or so, Tegretol more or less stopped the night time
> seizures but
> for me Keppra has been magic. Like Tegretol it doesn't do
> much for my
> memory but from the day I started Keppra 12 years or so ago
> I haven't
> had a seizure strong enough to render me unconscious just
> 'deja vues'
> and even those apart from once in a blue moon aren't bad
> enough for
> anyone to notice. It's supposed to make you sleepy but for
> me it makes
> it difficult to sleep, and it does sometimes make my
> emotions too near
> the surface, also in the morning for the 1st few seconds or
> so after
> getting out of bed I am a little unsteady on my feet.
> When I started taking Keppra it took a bit of time for my
> head to get
> used to it, I felt as if I was high on something, Dizzy and
> really
> unsteady on my feet. I started on 250mg a day and worked it
> up to
> 1000mg. It's not a very high dose but it did the job for me
>
> Suzanne
>
> ----------
>
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>
>
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