Some more...
1) My son seizures almost always begin on Monday or Tuesday at school
between 7AM and 7:40 AM. What do you make of that? He also has an occasional
seizure on a weekend afternoon. But the majority are at school early in the
AM. Can school anxiety trigger seizures? Could something during his sleep be
causing the AM seizures?
My seizures ALWAYS happened in the morning while I was getting ready for school as a kid. Since I didn't know they were seizures (a lot of deja vu), I never told my parents. So it's probably not anxiety, but just a set schedule in his body :(
2) My husband thinks the seizures could be cause by watching too much TV
/videogames/computer time on the weekends. If he had a photosensitive type of
seizure would they occur while he was viewing these things? Or could they occur
12 – 36 hours later?
3) He sleeps in on the weekend. He sleeps less on school nights because he
has school. He never appears tired in the AM. My husband thinks we shouldn't
let him sleep in on weekends to keep every day the same. Would sleeping in
cause seizures
I don't know...I sleep in every weekend, and take as many naps as possible. Only because I do get tired, and I don't want to get over-tired and trigger a seizure. I've done this for as long as I can remember. Keeping a set schedule is fine, but I don't think sleeping in is bad.
4) I am keeping track of his seizures – time, type, day of week, length
etc. I work at his school every other day. I even keep track of whether I work
that day (Most of them occur when I am not working although he completely
ignores ne when I am there) Should I be tracking food and hours slept as well?
I think any info you can give the doctor is helpful. I try to keep track of mine, but am terrible at it. If I do have a major seizure, I will mark it on the calendar, and what happened.
5) In answer to your question, My son has his seizure med levels checked
often (Trileptal and Depakote). He also takes Magnesium, Riboflavin, MAxalt
melt and Zolfron for migraines and vomiting. He takes Adderal for autism and
ADHD,He takes clonidine for sleep and he takes Zoloft for anxiety. The levels
of these meds are not checked. I think he is walking pharmacy experiment. Last
summer I wanted them to wean him off of the medications under hospital care
while videoing him and monitoring him with EEG to see where in the brain the
seizures were occuring. They said that hospital would not cover observation and
he could go into status elepticus and it would be too dangerous. He had a sleep
deprived eeg a few years ago and he is scheduled for another one in a week or
so. Is there other blood work he needs?
6) The doctor did give me the packet on the VNS but there was no
information as to the percentage of success.
7) My son was tested for gluten/casein sensitivity when he was first
diagnosed with autism. He showed no sensitivity, but we tried the restricted
diet for a while anyway. We never saw any improvement with the diet and
stopped. Are there particular food that do trigger seizures?
Would they show up immediately or the next day
8) Can anxiety trigger seizures. What other triggers are common?
Look forward to hearing from you
Jan
If you can find a path with no obstacles, it probably doesn't lead anywhere.
- Frank A. Clark
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