Welcome! :)
Your best bet is to talk to your pharmacist, and make him your best friend. There are lots of cold meds that aren't safe with AEDs, and it's easy to find out the hard way, as I did a couple of weeks ago. Zicam is a NO-NO with many of them. I'm on Keppra, and I had my first sz in 3 1/2 years because of it (and probably some other things).
Also, find an epileptologist, if you can. Many neuros have only average knowledge about epilepsy, and I quit seeing them because of the bullheaded attitude I kept getting. I also have a neurosurgeon for another condition (he's the one who put me on Keppra), and he listens to all my concerns and questions and works with me, but he's about 80 yo, so I will probably have to find an epi at some point myself.
Good luck!
LIZ in RI, list moderator :)
--- On Sat, 1/2/10, jillybear_778 <jillybear778@
From: jillybear_778 <jillybear778@
Subject: [epilepsy] New to the group...Newly diagnosed...
To: epilepsy@yahoogroup
Date: Saturday, January 2, 2010, 12:17 AM
I just recently got diagnosed w/ nightime seizure activity. I am on Topamax to help treat it and my longtime migraines. My doctor is not sure what is causing the headaches or the seizure activity. I have been having tests done for the last 3yrs w/no definitive answers given. But here is my question for anyone who can help. I asked my neurologist and he wasn't much help w/this topic (not really his area), my primary doctor is non existent (I am so frustrated with him right now-long story-I am hoping to switch drs soon though)but how do I know what cold meds are safe to take w/ seizures and my meds? Are there any sites I can go to for info? With cold season upon us, I am worried about geting sick. My husband is sick right now and I am scared I might be next and I know I have to be careful about what meds I take. Any help would be greatly appreciated! Thanks!!: -)
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