Hi Libby,
Its great to see you in the group now (smile)! You are very lucky to have your Aunt Linda, I can tell she really cares about you so much (smile). Believe me, you are among friends here who all give support to each other in ways much farther than words can say (smile).
I had my surgery on the left side 3 years ago, so far so good for me. I've had epilepsy since 1975 when just out of high school. Like you, I had mostly complex partials. I also had auras, but never before a seizure. I couldn't drive most of my years with epilepsy till 1 1/2 years ago, been driving again since (smile). Like you I tried so many meds. never was able to find that magic match that worked for me. I'm seizure free and taking Keppra and Trileptal.
Auras, is interesting hearing everybody trying to put those feelings into words (smile). Lets see, I would always first feel and hear this click in my ears, then this inner sudden awareness of the now. I would still be able to work, hearing and talking and walking but would inside me play difference if that makes sense. I would wonder if others could notice it in me, sometimes they could, sometimes they couldn't. I would walk knowing somethings not right. If at home, I would lay down to take a nap. If away would try to take it easy but continue what I was doing. Gosh, playing tennis when an aura would happen and I would try to play it out of me, usually that worked, very bizarre fighting myself and a tennis game at the same time (big smile). When I felt these feelings I would quickly raise both hands up, level to my chest to see if they where shaking. In that situation my right hand would shake allot more than usual. I could also feel this sense of not consentrating as well as usual though still would be aware of everything. Sometime others noticed, most times not. When in a tennis game sometimes my doubles partner would ask if I was feeling a seizure. I must have made some odd moves, who knows? These aura's are very hard to put into words!
Its to bad your surgery didn't stop your seizures, you aren't the only one it didn't work for. Hey, take a look at the web site my.epilepsy.
Steve
--- In epilepsy@yahoogroup
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> Hi everyone!
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> My name is Libby. My aunt is the one who wrote in asking questions about me. I first want to thank you for helping her and the invites to join.
> I was diagnosed with complex partial epilepsy and have petit mal seizures. I was hit on the head in the swimming pool at the age of 12. I was contolled right away with topamax for 13 years. I started having seizures again after my 2nd child was born (I did not come of med.s while pregnant). I have seen a neurologist and now a epileptologist. In the last 6-7 years I have been on almost all of the med.s available. I went in for a right temporal lobectomy 2yrs ago with no improvement.
> I do have auras. They seem to be a feeling of being scared? I am realizing I may be having a panic or anxiety attack??? I am currently on Lamictal.
> I am curious to what others feel when they have an aura?
> Thank You again for the chance to join a support group like this.
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> Libby
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