Sunday, January 3, 2010

[epilepsy] At the end of my rope!!!!!!! Keppra and insomnia...please help!!

 

Okay, so I started Keppra in July, as some of you probably remember, and I promptly had severe thyroid problems until both my nsg (who prescribed the Keppra) and endo worked with me to get my dose down and calm the thyroid down again. I also started 5-HTP and added B6 (in addition to B-complex) twice a day to help with sleep, and I was doing okay for awhile. Now, it appears I'm back at Square One with my sleep inability. I often wake up in the middle of the night and take more 5-HTP, and sometimes, I go back to sleep, but fairly often, I don't, or I start to and then it's time to get up.
 
I'm only on 500 mg of Keppra a day, and my insomnia is this bad!!!!!! I seriously don't know what to do anymore. On a good night, I might get 3-4 hours. Sometimes, I can go back to sleep for a couple of hours after getting my son off to school, but fairly often, I don't have that option. I would have given up on it a long time ago except that it's the ONLY med to ever control my simple partial clusters (which are worse than my GMs, as I will get up to 25 SPs in 18 hours before they stop) and leave me wishing for death--post-ictal fever, nausea, exhaustion, monster headache, pasty/metallic taste in my mouth, no appetite for days. Since the Keppra keeps all of that away, I really want to stick with it, but I don't know what to do about this horrific insomnia.
 
Suggestions??
 
Anything and everything is deeply appreciated!
 
Thanks!
 
LIZARD

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