Hi Suzanne
Ok yes I am on 1100 mg of tegretol per day, not sure what
the dose of the cepra will be all I know is that I will be
taking half a tablet twice a day. I more or less have the
epilepsy completely controlled, it is the masked seizures
the ones that occur like the lack of concentration, clonnic
seizures, things like that they want to stop but I know
myself they will never be completely stopped but will give
the cepra a try. I am happy just taking the tegretol but am
willing to try something new. Even if it means I can slowly
reduce the tegretol a bit but one step at a time. I stopped
the tegretol which I obviously won't, I would after a few
days have a full seizure and stop breathing so am not
willing to tamper with it too much. Will see how it goes.
Regards
Adrien
-----Original Message-----
From: epilepsy@yahoogroups.com
[mailto:epilepsy@yahoogroups.com] On Behalf Of Suzanne
Sent: Tuesday, September 03, 2013 5:46 PM
To: epilepsy@yahoogroups.com
Subject: [epilepsy] Re: going on to cepra
Hi
I am a bystander am on the same drugs as you Adrien
I have temporal lobe epilepsy as a result of an infection
caught in
France 45 years or so ago. It is the sort of epilepsy where
I get no
cues - it's not set off by bright lights, computer screens
etc etc
I am on Tegretol 200mg a day & Keppra 1000mg a day - both
now generic
replacements which have not affected me at all.
I have been through a range of anti epileptic drugs over the
last 45
years or so, Tegretol more or less stopped the night time
seizures but
for me Keppra has been magic. Like Tegretol it doesn't do
much for my
memory but from the day I started Keppra 12 years or so ago
I haven't
had a seizure strong enough to render me unconscious just
'deja vues'
and even those apart from once in a blue moon aren't bad
enough for
anyone to notice. It's supposed to make you sleepy but for
me it makes
it difficult to sleep, and it does sometimes make my
emotions too near
the surface, also in the morning for the 1st few seconds or
so after
getting out of bed I am a little unsteady on my feet.
When I started taking Keppra it took a bit of time for my
head to get
used to it, I felt as if I was high on something, Dizzy and
really
unsteady on my feet. I started on 250mg a day and worked it
up to
1000mg. It's not a very high dose but it did the job for me
Suzanne
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