Hi Kelly,
You have told me your situation with seizures before but I forgot.
The reson I asked you about changes from surgery is because I
Ve been affected allot in the same ways you have. My IQ didn'd change. Actually I took neuropsycological evaluations both before and after surgery. The tests show no change. BUT, I've notice major changes like you and it's changed in many of the same ways your surgery affected you. I've been able to accept the fact that my cognitive abilities aren't the same but it's been very hard in some ways to get others to understand how hard it's been. But, no question about it, I'm seizure free so how can I complain? I'm so very lucky I know and understand how many others would jump at being where I'm at. It helps me allot understanding it's not only me who's cognitive abilities worsened from surgery. Though I dread it on anybody. But still, being seizure free, how can I complain? Take care, keep a smile on your face.
Steve
--- In epilepsy@yahoogroups.com, Kelly Porter <kellyporter@...> wrote:
>
> Steve,
>
> I am not actually seizure free. I have about 2 a month, but compared to
> multiple seizures a day, I'll take it!
>
> As far as changes, I know I lost at least 14 IQ points. My short term
> memory is definitely affected. It took me over 2 years to adjust to the
> emotional side effects of having my amigdula removed, I now know what I
> can and cannot handle, and what situations to avoid or walk away from.
> Some people get upset at me because I walk away, but I knwo fi I don't I
> can get really mad. I also have pretty bad concentration issues. I get
> distracted really easy, put that with short term memory issues and it's
> a yucky combination. I have to make notes and lists for everything. My
> computer and Droid help me keep track of things. I have also developed
> light sensitivity issues, so I have to wear tinted glasses all of the time.
>
> Put the concentration issues and short term memory together, and I have
> decided I won't drive again even if I do become seizure free. I know
> that my distraction issues would make me unsafe! I am also still on
> Trileptal and Lyrica, but I did go off of Topamax which is awesome! The
> Lyrica also helps me with pain issues.
>
> Kelly
>
> On 3/31/2011 5:13 PM, Steve wrote:
> > Hi Kelly,
> >
> > Conratulations on being seizure free 3 years now (smile). Just wondering, in what ways have you noticed changes in you because of surgery?
> >
> > I had a LTL 4 years 5 months ago and I'm still seizure free. Tests show my cognitive abilities didn't get worse but I aware they did. I by my choice, decided not to reduce me mess. Because I feel they are a back up if a seizure trys to come through.
>
No comments:
Post a Comment