Thanks guys, It's good to know:)
Dana
________________________________
From: Merisia Gutierrez <merisia.gutierrez@yahoo.com>
To: epilepsy@yahoogroups.com
Sent: Mon, February 14, 2011 9:41:08 PM
Subject: Re: [epilepsy] Re: Thanks...more questions
ditto to that ... we are here for each other..
Merisia
________________________________
From: Steve <stephenpales@yahoo.com>
To: epilepsy@yahoogroups.com
Sent: Mon, February 14, 2011 5:44:15 PM
Subject: [epilepsy] Re: Thanks...more questions
Hey Dana,
Most definitely you have friends with epilepsy! You have friends who you can
email with, even talk by voice with. These friends with epilepsy you know, you
can open up to also! These friends are all of us in the group (smile)! Take
care, keep a smile on your face!
Steve
--- In epilepsy@yahoogroups.com, Dana Whiteford <dana_whiteford@...> wrote:
>
> I too am prone to having seizures if I don't get enough sleep, stress I think
> may bring my seizures. When I do have seizures it's usually just when I'm about
>
>
> to fall alseep. I've had epilepsy for 36 years and every test you can think
>of,
>
> they don't know why I'm epileptic there is noboby in my family that is
>epileptic
>
> thank God my kids arn't epileptic. all they know is my whole brain is
>involved
>
> when I have a seizure so we found out I couldn't have surgery.
> Â It's just nice to be able to comunicate with people who have the same thing
> incommon with me. I don't know any epileptics at least I don't think I do.
>
>
>
>
> ________________________________
> From: merisia.gutierrez <merisia.gutierrez@...>
> To: epilepsy@yahoogroups.com
> Sent: Sun, February 13, 2011 8:12:16 PM
> Subject: [epilepsy] Re: Thanks...more questions
>
> Â
> I have been dealing with seizures for the last eight years, and I too are more
> prone to seizures if I don't get enough sleep, my seizures actually started
> after my dad passed away witch makes me belived believed they were brought upon
>
>
> stress and anxiety but now since they have done all types of testing and not
> able to find a cause.
>
>
> --- In epilepsy@yahoogroups.com, "Steve" <stephenpales@> wrote:
> >
> > Hi Janet,
> >
> > Welcome to the group! I've had epilepsy since just after high school coming
>on
>
> >36 years ago!
> >
> >
> > To answer a few of what you said. Yes, stress is a big cause of seizures!!!!
> >Also, each of us are different in our light sensitivity. What brought on
> >seizures for me where flashing lights, to much computer or tv. Bright lights
>in
>
> >stores even! I would type you more but on Vacation in Miami now for 4 more
> >nights. I will be back in Chicago Sunday night so will explain you more about
> >this to you. Also, 25% of people with epilepsy can't get their seizures under
> >control, just remember that. I was one of them till having surgery 4 1/4 years
>
>
> >ago and have been seizure free since (so far). Again, welcome to the group!
>Take
>
> >care, keep a smile on your face!
> >
> > Steve
> >
> > --- In epilepsy@yahoogroups.com, Janet Formichella <im22tired@> wrote:
> > >
> > > Thanks for your feedback. I have more questions. I can’t
>thank you
>
> >enough for
> >
> > > your feedback.
> > > 1)     My son seizures almost always begin on Monday or
>Tuesday at
>
> >school
> >
> > > between 7AM and 7:40 AM. What do you make of that? He also has an
> >occasional
> >
> > > seizure on a weekend afternoon. But the majority are at school early in
>the
>
> >
> > > AM. Can school anxiety trigger seizures? Could something during his
>sleep
>
> >be
> >
> > > causing the AM seizures?
> > > 2)     My husband thinks the seizures could be cause by
>watching too
>
> >much TV
> >
> > > /videogames/computer time on the weekends. If he had a photosensitive
>type
>
> >of
> >
> > > seizure would they occur while he was viewing these things? Or could
>they
>
> >occur
> >
> > > 12 â€" 36 hours later?
> > > 3)     He sleeps in on the weekend. He sleeps less on
>school nights
>
> >because he
> >
> > > has school. He never appears tired in the AM. My husband thinks we
> >shouldn’t
> >
> > > let him sleep in on weekends to keep every day the same. Would sleeping
>in
>
>
> > > cause seizures
> > > 4)     I am keeping track of his seizures â€" time,
>type, day of week,
>
> >length
> >
> > > etc. I work at his school every other day. I even keep track of
>whether I
>
> >work
> >
> > > that day (Most of them occur when I am not working although he
>completely
>
> > > ignores ne when I am there) Should I be tracking food and hours slept
>as
>
> >well?
> > > 5)     In answer to your question, My son has his seizure
>med levels
>
> >checked
> >
> > > often (Trileptal and Depakote).  He also takes Magnesium,
>Riboflavin,
>
> >MAxalt
> >
> > > melt and Zolfron for migraines and vomiting. He takes Adderal for
>autism
>
> >and
> >
> > > ADHD,He takes clonidine for sleep  and he takes Zoloft for anxiety.ÂÂ
>The
>
> >levels
> >
> > > of these meds are not checked. I think he is walking pharmacy
>experiment.ÂÂ
>
> >Last
> >
> > > summer I wanted them to wean him off of the medications under hospital care
>
>
> > > while videoing him and monitoring him with EEG to see where in the brain
>the
>
>
> > > seizures were occuring.  They said that hospital would not cover
>observation
>
> >and
> >
> > > he could go into status elepticus and it would be too dangerous. He had
>a
>
> >sleep
> >
> > > deprived eeg a few years ago and he is scheduled for another one in a
>week
>
> >or
> >
> > > so. Is there other blood work he needs?
> > > 6)     The doctor did give me the packet on the VNS but
>there was no
>
> > > information as to the percentage of success.
> > > 7)     My son was tested for gluten/casein sensitivity when
>he was
>
> >first
> >
> > > diagnosed with autism. He showed no sensitivity, but we tried the
> >restricted
> >
> > > diet for a while anyway. We never saw any improvement with the diet and
>
> > > stopped. Are there particular food that do trigger seizures?
> > > Would they show up immediately or the next day
> > > 8)     Can anxiety trigger seizures. What other
>triggers are common?
> > > ÂÂ
> > > Look forward to hearing from you
> > > Jan
> > > ÂÂ
> > > ÂÂ
> > > ÂÂ
> > > If you can find a path with no obstacles, it probably doesn't lead
>anywhere.
>
>
> > > - Frank A. Clark
> > >
> > >
> > >
> > >
> > > [Non-text portions of this message have been removed]
> > >
> >
>
>
>
>
>
>
> __________________________________________________________
> Don't pick lemons.
> See all the new 2007 cars at Yahoo! Autos.
> http://autos.yahoo.com/new_cars.html
>
> [Non-text portions of this message have been removed]
>
[Non-text portions of this message have been removed]
__________________________________________________________
Sucker-punch spam with award-winning protection.
Try the free Yahoo! Mail Beta.
http://advision.webevents.yahoo.com/mailbeta/features_spam.html
[Non-text portions of this message have been removed]
No comments:
Post a Comment