Hi Elizabath,
I'm back indoors with the screen door wide open (its been wide open since getting here Saturday afternoon). Oh, one thing about this trip concerning epilepsy is the following!!!! Since my seizures began in October of 1975, I haven't step foot in a swimming pool. That is because of the possible outcomes of having a seizure in a pool. Well, this week I've been swimming!!!! Kind of overwhelming thinking about the entire thoughts about it (big smile). I'm seizure free since 4 1/4 years so far since my LTL. Oh ya, haven't work a long sleeve shirt or long pants since arriving down in Florida on Saturday. Late night Sunday will be back in Chicago to do more shoveling of the 2 feet of snow that hit last week! Take care, keep a smile on your face!
Steve
--- In epilepsy@yahoogroups.com, "Elizabeth Quinn" <equinn76@...> wrote:
>
> Oh geez Steve, rub in the vacation!! Some of us are freezing (just kidding!!). Have fun!!
>
> elizabeth
>
>
> ----- Original Message -----
> From: Steve
> To: epilepsy@yahoogroups.com
> Sent: Wednesday, February 09, 2011 9:54 PM
> Subject: [epilepsy] Re: Thanks...more questions
>
>
>
> Hi Janet,
>
> Welcome to the group! I've had epilepsy since just after high school coming on 36 years ago!
>
> To answer a few of what you said. Yes, stress is a big cause of seizures!!!! Also, each of us are different in our light sensitivity. What brought on seizures for me where flashing lights, to much computer or tv. Bright lights in stores even! I would type you more but on Vacation in Miami now for 4 more nights. I will be back in Chicago Sunday night so will explain you more about this to you. Also, 25% of people with epilepsy can't get their seizures under control, just remember that. I was one of them till having surgery 4 1/4 years ago and have been seizure free since (so far). Again, welcome to the group! Take care, keep a smile on your face!
>
> Steve
>
> --- In epilepsy@yahoogroups.com, Janet Formichella <im22tired@> wrote:
> >
> > Thanks for your feedback. I have more questions. I can’t thank you enough for
> > your feedback.
> > 1)Â Â Â Â Â My son seizures almost always begin on Monday or Tuesday at school
> > between 7AM and 7:40 AM. What do you make of that? He also has an occasional
> > seizure on a weekend afternoon. But the majority are at school early in the
> > AM. Can school anxiety trigger seizures? Could something during his sleep be
> > causing the AM seizures?
> > 2)Â Â Â Â Â My husband thinks the seizures could be cause by watching too much TV
> > /videogames/computer time on the weekends. If he had a photosensitive type of
> > seizure would they occur while he was viewing these things? Or could they occur
> > 12 â€" 36 hours later?
> > 3)     He sleeps in on the weekend. He sleeps less on school nights because he
> > has school. He never appears tired in the AM. My husband thinks we shouldn’t
> > let him sleep in on weekends to keep every day the same. Would sleeping in
> > cause seizures
> > 4)     I am keeping track of his seizures â€" time, type, day of week, length
> > etc. I work at his school every other day. I even keep track of whether I work
> > that day (Most of them occur when I am not working although he completely
> > ignores ne when I am there)Â Should I be tracking food and hours slept as well?
> > 5)Â Â Â Â Â In answer to your question, My son has his seizure med levels checked
> > often (Trileptal and Depakote).  He also takes Magnesium, Riboflavin, MAxalt
> > melt and Zolfron for migraines and vomiting. He takes Adderal for autism and
> > ADHD,He takes clonidine for sleep  and he takes Zoloft for anxiety. The levels
> > of these meds are not checked. I think he is walking pharmacy experiment. Last
> > summer I wanted them to wean him off of the medications under hospital care
> > while videoing him and monitoring him with EEG to see where in the brain the
> > seizures were occuring. Â They said that hospital would not cover observation and
> > he could go into status elepticus and it would be too dangerous. He had a sleep
> > deprived eeg a few years ago and he is scheduled for another one in a week or
> > so. Is there other blood work he needs?
> > 6)Â Â Â Â Â The doctor did give me the packet on the VNS but there was no
> > information as to the percentage of success.
> > 7)Â Â Â Â Â My son was tested for gluten/casein sensitivity when he was first
> > diagnosed with autism. He showed no sensitivity, but we tried the restricted
> > diet for a while anyway. We never saw any improvement with the diet and
> > stopped. Are there particular food that do trigger seizures?
> > Would they show up immediately or the next day
> > 8)     Can anxiety trigger seizures. What other triggers are common?
> > Â
> > Look forward to hearing from you
> > Jan
> > Â
> > Â
> > Â
> > If you can find a path with no obstacles, it probably doesn't lead anywhere.
> > - Frank A. Clark
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
>
>
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> [Non-text portions of this message have been removed]
>
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