Tuesday, November 30, 2010

Re: [fast5] Is exercise necessary?

 

There really isn't a lot of data that says "hours" of exercise does much good. For building muscle, a few repetitions of intense weight actually work very well. In one article I read, the amount of weight to use was the amount where the MOST a person could do was 8 reps. The idea is to stress out the muscle, and the bone, which builds both.


That kind of exercise, is done in 15 minutes. Very fast. And it should be done slowly, which makes it almost zen-like. Doesn't give joint injuries either.

As for aerobic exercise: some types of it aren't very good for you. It can cause joint and other issues. I think it is better to "get moving" with something that you enjoy, and maybe does some good, like gardening.

Also there is the hyper-fast kind of stress out your breathing kinds of exercise, like "spinning". I think that is good for pulmonary function, again, without taking tons of time.

But in terms of "peace of mind" ... it depends WHY exercise gives you that peace. Some of it might be that it helps "burn off" cortisol (I don't recall the exact way it does this, but excess cortisol is one problem people have and exercise counteracts it). Fast-5 does, I think, help regulate cortisol also. So does yoga and meditation. 

So yeah, it might help. But of course the way to figure it out is to try it and see!



On Tue, Nov 30, 2010 at 2:17 PM, April Morse <april_murderdolls_22@yahoo.com> wrote:
Hello, Fast Fivers! I have yet another question, and I am just looking for general input/advice/points of view, not just the quote from the book. My question is, is exercise absolutely necessary?

Before you think I'm being lazy, let me explain. For the last three years, I have exercised NONSTOP, and made it a daily/almost daily habit to get at least an hour at a time in. It hasn't helped much with my weight anyways, although I can't say it hasn't done ANYTHING for me. I truly love working out, but sometimes I feel. . .burnt out. I feel tired of it, and taking two-three days off at a time doesn't help. Right now, I have gone two weeks without a workout, and kind of liking the break. While doing Fast Five, I don't feel the need to really exercise like crazy to burn calories, because fasting already burns stored fat. I don't feel as guilty as I would if I were snacking all day. I guess what I'm trying to ask is, is this bad? Do you all go through the same things? What do you do to get at least 1/2 hour in a day?

I also have a question regarding this on a more spiritual/philisophical level, if anyone cares to go here with me: Could fasting like this bring about a peace that enables me to not always feel the need to workout? Could this be my own way of 'healing' my obsession with exercise? Any thoughts on this?

Thank you for any input!!
April



----------- 
 
 

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[epilepsy] 7 years seizure-free

 

Today completes 7 years of my left ATL surgery and 7 years of being
free of seizures and auras. I had left mesial temporal sclerosis and
drug resistant CPS. Now I'm 44.

Best wishes and prayers to all,

(Liz George)

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[Beyonce_Knowles_Fanz] play on Games, 12/1/2010, 12:00 am



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RE: [epilepsy] intro & looking for help please

 

Hi Barbara, Many folks have shared much so far. May I add this for you
regarding
""She also has fibromyalgia from the trauma of stem cell transplant for
Lymphoma. Is there any correlation with this and epilepsy?""

High levels of oxidative stress, lymphoma, fibromyalgia and even seizures
may be linked to being dehydrated and overly acidic.
Does your neice drink plenty of water?? as in half her body weight in ounces
daily??

Check out this Lymphatic information www.Acid-Imbalance.com and read the 2
online documents available at www.brainadvance.org
under the "Kangen" tab on left side of home page. Both are good and 1 of the
2 docs deals with detoxifying and hydrating the brain. Drop me an email if
you want more info. Pat D.


Aina & Pat DeLorenzo

Sharing Better Health:

<http://www.thekangenwatersecret.com/> www.TheKangenWaterSecret.com

Get the amazing free E-Book!

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From: epilepsy@yahoogroups.com [mailto:epilepsy@yahoogroups.com] On Behalf
Of Elizabeth Quinn
Sent: Tuesday, November 30, 2010 4:15 PM
To: epilepsy@yahoogroups.com
Subject: Re: [epilepsy] intro & looking for help please

Hi Barbara!

Welcome to the group! I've been all of those, and some others :) The best
thing is for her to see someone in neurology who specializes in epilepsy.

Trying to answer your questions in order:

1) Give the medicine up to a month to work/get in her system. After that,
who knows--it could be the "miracle" drug, like Keppra was for me, or it
might not work at all--it really is trial or error.

2) Depakote causes itching when you switch someone off/on it--you have to do
it SLOWLY!! You can also get a rash. Depakote definitely adds weight on as
well. I didn't realize that until I stopped taking it.

3) Medication can do both--lessen the amount of seizures, or get rid of
them. Again, it's trial and error.

4) Can you get off meds? Probably not...I was told once 2 years seizure
free, and my doctor would think about reducing my meds, and seeing how it
goes. As adults, most likely you will never be seizure free.

5) I don't know if it's related to lymphoma...some people never know why it
starts. If there's no history of brain injury, tumor, or anything else in
the brain, etc...it's called idiopathic. I have a clump of cells in my brain
that never formed correctly at birth. Also, in women, hormones play a huge
role.

6) Another note about Topamax: it cause major memory issues!! Mostly word
recall problems--I stopped taking it, it was so bad. Plus, it did nothing
for my seizures.

Overall, a lot of this is quality of life. How much can someone take the
side effects of a medication/amount of seizures in a month?

Hope this helped!!

elizabeth

----- Original Message -----
From: imbeez
To: epilepsy@yahoogroups.com <mailto:epilepsy%40yahoogroups.com>
Sent: Tuesday, November 30, 2010 10:32 AM
Subject: [epilepsy] intro & looking for help please

Hi! My name is Barbara.

My 28 yr old niece was recently diagnosed with generalized epilepsy.

Her symptoms are myclonic jerks and passing out.
She has problems sleeping.

First they put her on Lamictal which gave her meningitis symptoms.

They changed it to Keppra, but she still had the jerks/seizures.

It was changed to Depakote last week, which made her itchy and gain weight
but the epilepsy symptoms stopped.

My niece had Hodgkin's Lymphoma in the past and itchiness was a major
symptom, so it is a concern and the doctor changed the medication.

Now she is back to Keppra 1,000mg twice a day and Topamax 25mg which will
increase slowly.

This is all happened in the last 3 months.

My questions are:

How long after taking medication does it take not to have seizures/black
outs?

Has anyone ever had problems with itching on any of the medications?

Does medication control it or just lessen the episodes?

Does anyone ever get well and get off medication?

She also has fibromyalgia from the trauma of stem cell transplant for
Lymphoma.
Is there any correlation with this and epilepsy?

I know everyone is different, but I would appreciate any information.
I have been researching online, but I find it better to talk to people going
through this.
They seem to have the most knowledge.

I am trying to prepare for her doctor visit on Friday.

Thanks for listening and would appreciate any help you could give me.
Barbara

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

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Re: [epilepsy] Surgery

Rebecca,

I had surgery 6 years ago. My seizure activity is in the left temporal lobe.
I will never regret having the surgery. I still have a few seizures ecery
month, but not 25-30 like I had before I had the surgery. I worried for
months before I had it done, and had a lot of seizures getting ready to have
the surgery. I was in the hospital for two more days after the day I had the
surgery done. I guess it might have been a couple of weeks to totally
recover from it. My medicine Is not near as much as it used to be.I wish you
the very best and hope whatever you decide to it helps you. If I can help,
write anytime. Take care.

Tammy

On Tue, Nov 30, 2010 at 7:43 PM, None unless you call me something different
<par_thomas@yahoo.com> wrote:

>
>
> Hi, I am new to the group, 32 year old woman living day to day with
> epilepsy. For the past year and a half I have been through test after test
> to see if I am eligible for the surgery. I am on the last leg of this race
> and it is coming soon. The Doctor called Monday to tell me the team of
> Doctors will be reviewing my MEG, the last test, and I will know something
> next week. I try to stay calm but anxiety and excitement seem to over rule.
> Has anyone had the surgery? Where was your seizure activity from, temporal
> lobe, occipital lobe, right or left? What were your results? Positives and
> negatives. How long was your hospital stay? And your recovery? So many
> questions and I feel like no answer could be thorough enough. Thank you in
> advance for your help and answers.
>
> Rebecca
>
>
>


[Non-text portions of this message have been removed]

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Re: [epilepsy] intro & looking for help please

Barbara,

My seizures are complex partials and they were from a head injury when I was
a baby. That was about 40 years ago. Stress seems to make my seizures worse,
when I get worried about something, that is when I have most of mine right
now.Except for when I went through the surgery 6 years ago, which they where
controlled for a few months, mine have never been controlled completely.I
have fewer now than I did before the surgery.Lamictal is the only medicine
that caused a rash for me and had to be changed.Some of the medicines they
give for seizures they give for pain too, Keppra is one of them. I take it
for seizures, and a friend of mine gets it for pain. I hope this helps. Take
care.

Tammy

On Tue, Nov 30, 2010 at 10:32 AM, imbeez <imbeez@comcast.net> wrote:

>
>
> Hi! My name is Barbara.
>
> My 28 yr old niece was recently diagnosed with generalized epilepsy.
>
> Her symptoms are myclonic jerks and passing out.
> She has problems sleeping.
>
> First they put her on Lamictal which gave her meningitis symptoms.
>
> They changed it to Keppra, but she still had the jerks/seizures.
>
> It was changed to Depakote last week, which made her itchy and gain weight
> but the epilepsy symptoms stopped.
>
> My niece had Hodgkin's Lymphoma in the past and itchiness was a major
> symptom, so it is a concern and the doctor changed the medication.
>
> Now she is back to Keppra 1,000mg twice a day and Topamax 25mg which will
> increase slowly.
>
> This is all happened in the last 3 months.
>
> My questions are:
>
> How long after taking medication does it take not to have seizures/black
> outs?
>
> Has anyone ever had problems with itching on any of the medications?
>
> Does medication control it or just lessen the episodes?
>
> Does anyone ever get well and get off medication?
>
> She also has fibromyalgia from the trauma of stem cell transplant for
> Lymphoma.
> Is there any correlation with this and epilepsy?
>
> I know everyone is different, but I would appreciate any information.
> I have been researching online, but I find it better to talk to people
> going
> through this.
> They seem to have the most knowledge.
>
> I am trying to prepare for her doctor visit on Friday.
>
> Thanks for listening and would appreciate any help you could give me.
> Barbara
>
> [Non-text portions of this message have been removed]
>
>
>


[Non-text portions of this message have been removed]

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RE: [epilepsy] Surgery

 

Rebecca,

Welcome to the group, I have never had surgery but I am here for you just
the same.


Jewl, TX

Information on Seizure Response/Alert Dogs
http://tagert.homestead.com/msjewl.html

[Non-text portions of this message have been removed]

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[epilepsy] Surgery

 

Hi, I am new to the group, 32 year old woman living day to day with epilepsy. For the past year and a half I have been through test after test to see if I am eligible for the surgery. I am on the last leg of this race and it is coming soon. The Doctor called Monday to tell me the team of Doctors will be reviewing my MEG, the last test, and I will know something next week. I try to stay calm but anxiety and excitement seem to over rule. Has anyone had the surgery? Where was your seizure activity from, temporal lobe, occipital lobe, right or left? What were your results? Positives and negatives. How long was your hospital stay? And your recovery? So many questions and I feel like no answer could be thorough enough. Thank you in advance for your help and answers.

Rebecca

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Re: [epilepsy] intro & looking for help please

 

Hi Barbara!

Welcome to the group! I've been all of those, and some others :) The best thing is for her to see someone in neurology who specializes in epilepsy.

Trying to answer your questions in order:

1) Give the medicine up to a month to work/get in her system. After that, who knows--it could be the "miracle" drug, like Keppra was for me, or it might not work at all--it really is trial or error.

2) Depakote causes itching when you switch someone off/on it--you have to do it SLOWLY!! You can also get a rash. Depakote definitely adds weight on as well. I didn't realize that until I stopped taking it.

3) Medication can do both--lessen the amount of seizures, or get rid of them. Again, it's trial and error.

4) Can you get off meds? Probably not...I was told once 2 years seizure free, and my doctor would think about reducing my meds, and seeing how it goes. As adults, most likely you will never be seizure free.

5) I don't know if it's related to lymphoma...some people never know why it starts. If there's no history of brain injury, tumor, or anything else in the brain, etc...it's called idiopathic. I have a clump of cells in my brain that never formed correctly at birth. Also, in women, hormones play a huge role.

6) Another note about Topamax: it cause major memory issues!! Mostly word recall problems--I stopped taking it, it was so bad. Plus, it did nothing for my seizures.

Overall, a lot of this is quality of life. How much can someone take the side effects of a medication/amount of seizures in a month?

Hope this helped!!

elizabeth

----- Original Message -----
From: imbeez
To: epilepsy@yahoogroups.com
Sent: Tuesday, November 30, 2010 10:32 AM
Subject: [epilepsy] intro & looking for help please

Hi! My name is Barbara.

My 28 yr old niece was recently diagnosed with generalized epilepsy.

Her symptoms are myclonic jerks and passing out.
She has problems sleeping.

First they put her on Lamictal which gave her meningitis symptoms.

They changed it to Keppra, but she still had the jerks/seizures.

It was changed to Depakote last week, which made her itchy and gain weight
but the epilepsy symptoms stopped.

My niece had Hodgkin's Lymphoma in the past and itchiness was a major
symptom, so it is a concern and the doctor changed the medication.

Now she is back to Keppra 1,000mg twice a day and Topamax 25mg which will
increase slowly.

This is all happened in the last 3 months.

My questions are:

How long after taking medication does it take not to have seizures/black
outs?

Has anyone ever had problems with itching on any of the medications?

Does medication control it or just lessen the episodes?

Does anyone ever get well and get off medication?

She also has fibromyalgia from the trauma of stem cell transplant for
Lymphoma.
Is there any correlation with this and epilepsy?

I know everyone is different, but I would appreciate any information.
I have been researching online, but I find it better to talk to people going
through this.
They seem to have the most knowledge.

I am trying to prepare for her doctor visit on Friday.

Thanks for listening and would appreciate any help you could give me.
Barbara

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

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Re: [epilepsy] intro & looking for help please

 

Welcome, Barbara!
 
I'm sorry your niece is having a difficult time, but it doesn't surprise me. Epilepsy meds are famous for side effects, and it's a rare individual who has none. The best most of us can hope for is that we have bearable ones. I am super-sensitive to all the AEDs I have taken. I am 44 and have always had epi. I am currently on 250 mg. of Keppra and finally have complete control of all my szs without debilitating effects, but the pharmacist told me he was baffled that I could get complete control on so little med.
 
I won't lie; it took until last year for me to get this level of control, and I was first put on phenobarital as an infant. AEDs can only treat epi, not cure it. It's much like insulin is to diabetes.
 
Sadly, too, some never have complete control, and at 28, she is highly unlikely to "outgrow" it. She'd have a much better chance if she were an infant or young child, but excellent control is still a possibility. I encourage learning of any and all possible triggers, too. I have learned that managing and avoiding triggers is about 90-95% of my epilepsy management. Things such as sleep loss and disturbance, illness, stress, anxiety, and hormonal disturbances are common triggers. Sometimes even things in the daily diet, such as gluten, alcohol, or caffeine, can be triggers, too.
 
I also strongly suggest that she take extra Vitamin D, since AEDs deplete it. It may help her fibro, too.
 
I hope this helps! Good luck, and please feel free to ask any other questions at anytime.
 
LIZ in RI :)
 
--- On Tue, 11/30/10, imbeez <imbeez@comcast.net> wrote:

From: imbeez <imbeez@comcast.net>
Subject: [epilepsy] intro & looking for help please
To: epilepsy@yahoogroups.com
Date: Tuesday, November 30, 2010, 10:32 AM

 

Hi! My name is Barbara.

My 28 yr old niece was recently diagnosed with generalized epilepsy.

Her symptoms are myclonic jerks and passing out.
She has problems sleeping.

First they put her on Lamictal which gave her meningitis symptoms.

They changed it to Keppra, but she still had the jerks/seizures.

It was changed to Depakote last week, which made her itchy and gain weight
but the epilepsy symptoms stopped.

My niece had Hodgkin's Lymphoma in the past and itchiness was a major
symptom, so it is a concern and the doctor changed the medication.

Now she is back to Keppra 1,000mg twice a day and Topamax 25mg which will
increase slowly.

This is all happened in the last 3 months.

My questions are:

How long after taking medication does it take not to have seizures/black
outs?

Has anyone ever had problems with itching on any of the medications?

Does medication control it or just lessen the episodes?

Does anyone ever get well and get off medication?

She also has fibromyalgia from the trauma of stem cell transplant for
Lymphoma.
Is there any correlation with this and epilepsy?

I know everyone is different, but I would appreciate any information.
I have been researching online, but I find it better to talk to people going
through this.
They seem to have the most knowledge.

I am trying to prepare for her doctor visit on Friday.

Thanks for listening and would appreciate any help you could give me.
Barbara

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

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[epilepsy] Re: intro & looking for help please

 

Hi Barb,

Welcome to the group (smile). I've had epilepsy for 35 years, I'm young, only 53 years young. My seizures never where able to get under control with meds. That happens to about 25% of us with epilepsy. 4 years ago had surgery which to this day has stopped my seizures.

A good web site with allot of imformation concerning epilepsy is my.epilepsy.com Also, the Epilepsy Foundation of America you can see at efa.org There are branch offices in cities across the country. Their are support groups in different areas also. I go to a local epilepsy support group each month by me.

Keep in touch (smile), you are among friends here. Take care, keep a smile on your face!

Steve

--- In epilepsy@yahoogroups.com, "imbeez" <imbeez@...> wrote:
>
> Hi! My name is Barbara.
>
> My 28 yr old niece was recently diagnosed with generalized epilepsy.
>
> Her symptoms are myclonic jerks and passing out.
> She has problems sleeping.
>
> First they put her on Lamictal which gave her meningitis symptoms.
>
> They changed it to Keppra, but she still had the jerks/seizures.
>
> It was changed to Depakote last week, which made her itchy and gain weight
> but the epilepsy symptoms stopped.
>
>
> My niece had Hodgkin's Lymphoma in the past and itchiness was a major
> symptom, so it is a concern and the doctor changed the medication.
>
> Now she is back to Keppra 1,000mg twice a day and Topamax 25mg which will
> increase slowly.
>
> This is all happened in the last 3 months.
>
> My questions are:
>
> How long after taking medication does it take not to have seizures/black
> outs?
>
> Has anyone ever had problems with itching on any of the medications?
>
> Does medication control it or just lessen the episodes?
>
> Does anyone ever get well and get off medication?
>
> She also has fibromyalgia from the trauma of stem cell transplant for
> Lymphoma.
> Is there any correlation with this and epilepsy?
>
> I know everyone is different, but I would appreciate any information.
> I have been researching online, but I find it better to talk to people going
> through this.
> They seem to have the most knowledge.
>
> I am trying to prepare for her doctor visit on Friday.
>
> Thanks for listening and would appreciate any help you could give me.
> Barbara
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>

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RE: [epilepsy] intro & looking for help please - Thanks

 

I have a few other questions:

No one knows what causes this, correct?
It varies, genetic, accident, virus, brought on by another condition brain
tumors, to many things.

. Stress seems to make it worse?
Yes, stress is a big factor for most of us.

Could a large amount of pain medicine cause epilepsy, as she is on a lot of
meds for fibro?

That is a possible but I am not a doctor.

Does the medication zone you out?

Some of it does, each meds varies on what side effects cause what.

How would you know if you passing out from epilepsy or from the meds?
Now that is a new one. You would have to do it every time you took the
meds. Like the meds cause a rash it would only occur when you took the meds.



Jewl, TX

Information on Seizure Response/Alert Dogs
<http://tagert.homestead.com/msjewl.html>
http://tagert.homestead.com/msjewl.html

[Non-text portions of this message have been removed]

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