[epilepsy] pseudoseizure questions

 

Hello all! I hope everyone is having an ok day and hanging in there. I've been something of a lurker for some time. I have been diagnosed with pseudoseizures, which makes me a little self-conscious here, especially because that diagnosis doesn't fit 100%. One thing that frustrates me about it is that when I was first diagnosed as having pseudoseizures about 7 years ago, I was told that I should be happy since this would mean that I wouldn't have to endure difficulties or side effects from various medications or surgery, and that pseudoseizures are easy to treat and likely to just disappear. While I do appreciate that I don't have to take the meds anymore (I hated Depakote!), etc, I've noticed that since my diagnosis, all treatment of my seizures has stopped. My area doesn't have the resources for specialized counseling, if such a thing exists. Long story short, since I am trained in psychological research I've taken it upon myself to investigate what treatment options most pseudoseizure sufferers have access to and if there are any basic standards of care on this issue. I am hoping that some members here would feel comfortable answering some questions below on either through this forum or more confidentially through my email at: wintressanna@yahoo.com . This is basically an informal questionnaire, but I do promise (as someone who has independently conducted 3 official surveys in the past) to keep responses confidential, only recording data and not identifying information, plus no ill effects from this survey are expected. Here are the questions (however many you answer are up to you):
1. How long ago were you diagnosed as having pseudoseizures? Do you continue to have seizures?
2. Do you receive regular counseling services specifically for triggers of seizures? How is counseling most helpful for you?
3. Do you regularly see a neurologist or epileptologist? How is he/she most helpful to you?
4. Do you take medications for seizures? For mental health issues? How do you find them helpful?
5. How have your seizures impacted your family/home situation? How has it impacted your employment?
6. Please indicate: age - gender – ethnicity – level of education (studies show that level of education may somehow impact recovery)
Your input is greatly appreciated. Thank you for taking the time to read this over and reply.
Anastasia

__._,_.___

Reply to sender | Reply to group

Messages in this topic (1)

Recent Activity:

• New Members 3

Visit Your Group Start a New Topic

Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply to them.  This is especially important if you are on digest.  This not only helps out the list owner but, it makes messages much easier to read when they arrive in our inboxes.

Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use

.

__,_._,___