Sunday, January 31, 2010

Re: [epilepsy] I'm baffled

 

Michele,

My first szs were when I was carrying my 2nd and 3rd daughters. But I wasn't diagnosed until I was 30. I then had 3 daughters 2,4, and 6 plus a husband --now ex--. That was 48 years ago.

I have been on Dilantin and Phenabarb for over 20 years and am fairly well controlled. My last sz was over 2 years ago and before that it was 4 years.

I have never had problems with appetite.-- wish I did. But I don't think it is the med that makes me gain weight. It is because I was eating the wrong things-- that put in more calories than what I was working off.

Since January I have really been trying to eat the right things and eat smaller portions. I haven't lost a lot but enough that I want to keep on.

Do you listen to Dr. Oz? I am trying to follow his suggestions. I haven't gotten to walking 10,000 steps a day yet but I am working on it.

It is difficult with a son his age. But what he eats is
one thing he can control. That is what I read about eating disorders.

Millie

----- Original Message -----
From: mlauchner
To: epilepsy@yahoogroups.com
Sent: Sunday, January 31, 2010 8:57 PM
Subject: [epilepsy] I'm baffled

Not quite sure where to begin. I'd like to hear from parents of "older" children, ie over 20. And maybe from those who have been where my son is now. And for that matter, anybody who might be able to impart wisdom. So I guess this is to everybody.

My son (Aaron) will be 23 next month. The meds he's currently taking are Lamictal, Tegretol and Dilantin, which was added only about 4 weeks ago, which replaced Depakote. Some months ago the third med in the trio that he tried was Vimpat. It was not very effective and caused significant loss of appetite and consequently weight loss as well. At that time, the weight loss was actually a welcomed side effect since he was about 217 then and was not happy at all with his appearance. Then Vimpat was replaced with Banzel, which caused further weight loss and still not effective seizure control. December was a record seizure month for him at 18 or 19. We was not liking the loss of appetite, which did subside somewhat, but was really "digging" the weight loss. His "fat" pants were falling down around his ankles and he was pretty jazzed. He said he never ever wanted to weigh that much again and had set a target weight for himself of between 180 and 185 which is what he weighed when he graduated in 2005.

When we saw his neuro Jan 4, she was of course quite surprised by the amount of weight he had lost and told him then that he needed to not lose anymore weight. She weighed him that day and he weighed 167. I was shocked. That same day we began titrating off the Banzel and onto the Dilantin (300 mg/day). The Dilantin actually seems to be doing something positive since he only had 1 seizure last week! On Jan 18 he went in for labs to check levels and it came back showing he was quite low on all 3 drugs. Weird. During the time of getting on the Dilantin he has still not been able/willing to eat much. The Dilantin was increased to 400 mg/day.

As of this morning, my son weighs 158. I am within inches of freaking out. He just won't eat. Can't eat? Is it possible that the Banzel left behind an unwanted side effect or is it long gone from his system and we're dealing with something completely unrelated? He is somewhat immature for his age and would rather spend his money on games/movies than food. But now it's getting ridiculous. It's almost as if his ability or desire for survival has gone out the window! He's wanting to buy a PS3 on Wed so he has flat out refused to purchase any food for himself, expecting me to do that for him.

Has anyone here who takes or has taken Dilantin in the past, had it affect appetite? I have read lots of stuff about Dilantin and loss of appetite wasn't on the list. I am at whit's end. I have tried to talk to him about this and told him that maybe he needs to see the doc to rule out anything more sinister, but he flat out refuses. What can I do? He's an adult. I can't force him!

Sorry for unloading all of this in such a loooooong post. I just figured that someone here may have some insight. There are so many knowledgeable folks here. Any wisdom anyone can offer will be greatly appreciate. Thanks and God bless!
Michelle

[Non-text portions of this message have been removed]

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Re: [epilepsy] Re: Types of Seizures

 

When I had grand mal szs -- I knew nothing that was going on. In fact twice I was taken into the hospital for 6 miles with the sirens blaring and I didn't know a thing until I woke up in bed in the hospital. Now that I have simple or complex szs I am awake but my brain is scrambled my daughters say.

Millie

----- Original Message -----
From: Robert Shaffer
To: epilepsy@yahoogroups.com
Sent: Sunday, January 31, 2010 8:24 PM
Subject: Re: [epilepsy] Re: New Type of Seizure

It sounds like a Grand Mal seizure. What he went through is very similar to the seizures that I have been having all my life. Grand Mal seizures are also called Tonic-Clonic seizures. I too, am fully aware of my surroundings, & people. Most of what you describe is perfectly normal. Post-ictal has a tendency to be fickle. Not everybody gets that particular symptom, and those that do, the sength and duration may vary. I hope this helps.

Respectfully,

Bob.

--- On Sun, 1/31/10, Jennifer Richardson <academyofthepossible@gmail.com> wrote:

From: Jennifer Richardson <academyofthepossible@gmail.com>
Subject: [epilepsy] Re: New Type of Seizure
To: epilepsy@yahoogroups.com
Date: Sunday, January 31, 2010, 1:29 AM

About half an hour ago, my 13 y.o. son had a seizure tonight that last 8

minutes 10 seconds, however he was coherent the whole time. The seizure

started off with him calling me rather scared after he had gone to bed,

yelling and crying that he couldn't move at all. I went in and started

timing his seizure. It started off being completely rigid and stiff as a

board, then went into the jerking motions. His full body was involved, both

arms, hands, legs, feet. He was talking to me during this saying how badly

it hurt in between lip smacking. He remembers having the seizure, and there

was no post ictal state. He did not urinate, vomit or drool. He has diastat,

but he was breathing the entire time. It was like one of his small focal

motor seizures except involving his entire body. I didn't expect at all for

him to have a full body seizure for that long and be coherent. His have

always been less than 5 minutes, grand mals included. We have never had to

use his diastat before.

It is my understanding that diastat is to help stop the seizure when the

child is not breathing. Is this correct? For those of you who use diastat,

how do you decide when to give it and when not to.

Right now, he is sitting at the table doing some art therapy making pictures

with sticks and glue. He was very upset after his seizure, feeling very

disabled. The art helps, and he is now smiling.

Clearly, he has recovered fine. I will of course monitor him closely to be

sure he does not have another seizure tonight, but this one was as close to

a grand mal as you get.

I would appreciate hearing others experiences.

Jennifer

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

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Re: [Prince-4ever] Who Dat? It’s Sheila E. [Dr. FB] ** 1st seen on Sheila E.'s Facebook page **

 

LOVED IT!!!
 
loved the music track too!!

~Purple Peace & Paisley Luv~
Jill 
Dallas, TX


--- On Mon, 1/25/10, kasey armstrong <kaseybreeann@yahoo.com> wrote:

From: kasey armstrong <kaseybreeann@yahoo.com>
Subject: Re: [Prince-4ever] Who Dat? It's Sheila E. [Dr. FB] ** 1st seen on Sheila E.'s Facebook page **
To: Prince-4ever@yahoogroups.com
Date: Monday, January 25, 2010, 2:11 PM

 
hahahhahahhahahaa i love it!!!!!
 
.....on to the next one....



From: Lan <diamonds_n_pearls67 @yahoo.com>
To: Prince-4ever@ yahoogroups. com
Sent: Mon, January 25, 2010 11:42:40 AM
Subject: Re: [Prince-4ever] Who Dat? It's Sheila E. [Dr. FB] ** 1st seen on Sheila E.'s Facebook page **

 
OMG, I think this is totally too funny!!!
 
....how funny for her to do this!! ...and you know Lil Man had to laugh when he saw this!!! ....how could you NOT laugh at this video!!! ...bottom line though....New Orleans did it, BAAAYYYYBEEEEEE! !!!!
 
I swear, New Orleans is just crazy pumped up now!!!!!!  .....BLACK AND GOLD TO THE SUPERBOWL!!! !
 
I have to share this video with all my NOLA peeps now!!
 
LOVE IT!!!!
 
Lan:)

 
Stay Safe, Stay Happy and Continue to Find Reasons to Smile!!!!


--- On Mon, 1/25/10, ~*[[PFL]]*~ <qaidsharif@yahoo. com> wrote:

From: ~*[[PFL]]*~ <qaidsharif@yahoo. com>
Subject: [Prince-4ever] Who Dat? It's Sheila E. [Dr. FB] ** 1st seen on Sheila E.'s Facebook page **
To: "The Live 4 Love Mpls Prince Yahoo! Group" <Live_4_Love_ Minneapolis@ yahoogroups. com>
Date: Monday, January 25, 2010, 1:26 PM

 

Who Dat? It's Sheila E.

http://www.youtube. com/watch? v=qKmHGPs6- dQ

Sheila, you are so wrong!  But…it's kind of funny..  Sheila E. made a "fight song" for the Saints late last night where she dressed up as her friend Prince and made a fight song for the Saints.
This was obviously in response to the fight song Prince made for the Minnesota Vikings late last week..
"Dig If You Will The Playoffs…." is how it starts with a little purple beat.

Let me know what you all think.  Highlarious. -Dr.FB
http://www.drfunken berry.com/ 2010/01/25/ who-dat-its- sheila-e/ #comments
 
 
Peace, Love & Light [& Stay Funky] ...
http://launch. groups.yahoo. com/group/ TheFloridaNPG/
http://launch. groups.yahoo. com/group/ PurpleMusicMansi on/
http://launch. groups.yahoo. com/group/ Live_4_Love_ Minneapolis/
NPG Member 4 Life .... [Live 4 Love]





__._,_.___
.

__,_._,___

[epilepsy] Re: I'm baffled

 

Hi Michelle,

Hey, don't be sorry for venting out!!! This is what this group is all about, support! A place to go bounce thoughts off others who can relate to each other.

I was on Dilantin from 1975-1988, at the time was taking it with Phenobarbital. And from 1988-2004 I was on Tegretol and other meds. In 2004 switched from Tegretol to trileptal which have allot of the same ingredients and are still on it.

So, that makes 22 years of so I've been on Tegretol and Trileptal and like I said, allot of the same ingredients. In all these years I put food in my mouth not as a pleasure to taste it, but to but the food in my mouth because that is what you have to do to survive. What I'm trying to say is that I don't eat because of the taste because I don't feel much of a taste. Yea some things like bubbled water I hate the feelings in my mouth (smile), some really spicy food I taste when very strong and won't eat it. But most foods I just put in and swallow because I have to. I'm a very active person in sports so yea I get very hungry so eat because I have to. Or have bananas to give me energy. But I don't eat it because I like the taste.

I also have a friend who is on Trileptal not for epilepsy and also doesn't have much of a taste.

So, if it is the Trileptal, he simply has to understand that, accept it and live with the situation. I don't mean to be hard but if it is Tegretol which is cutting down his seizures he then has to make a choice. He has to think and decide would I rather have little or less taste and have fewer seizures? Or, would I like my taste back more and have more seizures? I would rather eat cardboard if it was healthy and would control my seizures?

If I can help you in anyway, feel free to email me at stephenpales@yahoo.com When I was his age back in the early 80s, they where my toughest years in my entire 52 years (smile)! When I say tuff, I really mean tuff! My epilepsy started just after high school in 1975. In the early 80s went through depression during those years when I was your sons age. There could be allot going through his mind about growing up, how epilepsy is hindering his life as compared to friends ect... Then you add this tasting food problem and just maybe its what is sticking on his mind to keep his mind off how in different ways his life might be because of the epilepsy? Just a couple thoughts that allot of us could relate to (smile). Take care, keep a smile on your face!

Steve

It never affected my weight. All my life I was a twig, so really couldn't have lost any more weight.

You mentioned

--- In epilepsy@yahoogroups.com, Wendy Baur <wendy.sue@...> wrote:
>
> I can tell that you are scared and have every right to be. Have you thought
> that the undesired medication might be stored in the body's fat stores. The
> fact that your son won't eat and is burning the fat with the undesired
> medication stored in it might be a factor. I know I hated it when Julia was
> on steroids and Iknow that is stored in the fat.
>
> Wendy
>
> On Sun, Jan 31, 2010 at 8:57 PM, mlauchner <oldstuff4me@...> wrote:
>
> >
> >
> > Not quite sure where to begin. I'd like to hear from parents of "older"
> > children, ie over 20. And maybe from those who have been where my son is
> > now. And for that matter, anybody who might be able to impart wisdom. So I
> > guess this is to everybody.
> >
> > My son (Aaron) will be 23 next month. The meds he's currently taking are
> > Lamictal, Tegretol and Dilantin, which was added only about 4 weeks ago,
> > which replaced Depakote. Some months ago the third med in the trio that he
> > tried was Vimpat. It was not very effective and caused significant loss of
> > appetite and consequently weight loss as well. At that time, the weight loss
> > was actually a welcomed side effect since he was about 217 then and was not
> > happy at all with his appearance. Then Vimpat was replaced with Banzel,
> > which caused further weight loss and still not effective seizure control.
> > December was a record seizure month for him at 18 or 19. We was not liking
> > the loss of appetite, which did subside somewhat, but was really "digging"
> > the weight loss. His "fat" pants were falling down around his ankles and he
> > was pretty jazzed. He said he never ever wanted to weigh that much again and
> > had set a target weight for himself of between 180 and 185 which is what he
> > weighed when he graduated in 2005.
> >
> > When we saw his neuro Jan 4, she was of course quite surprised by the
> > amount of weight he had lost and told him then that he needed to not lose
> > anymore weight. She weighed him that day and he weighed 167. I was shocked.
> > That same day we began titrating off the Banzel and onto the Dilantin (300
> > mg/day). The Dilantin actually seems to be doing something positive since he
> > only had 1 seizure last week! On Jan 18 he went in for labs to check levels
> > and it came back showing he was quite low on all 3 drugs. Weird. During the
> > time of getting on the Dilantin he has still not been able/willing to eat
> > much. The Dilantin was increased to 400 mg/day.
> >
> > As of this morning, my son weighs 158. I am within inches of freaking out.
> > He just won't eat. Can't eat? Is it possible that the Banzel left behind an
> > unwanted side effect or is it long gone from his system and we're dealing
> > with something completely unrelated? He is somewhat immature for his age and
> > would rather spend his money on games/movies than food. But now it's getting
> > ridiculous. It's almost as if his ability or desire for survival has gone
> > out the window! He's wanting to buy a PS3 on Wed so he has flat out refused
> > to purchase any food for himself, expecting me to do that for him.
> >
> > Has anyone here who takes or has taken Dilantin in the past, had it affect
> > appetite? I have read lots of stuff about Dilantin and loss of appetite
> > wasn't on the list. I am at whit's end. I have tried to talk to him about
> > this and told him that maybe he needs to see the doc to rule out anything
> > more sinister, but he flat out refuses. What can I do? He's an adult. I
> > can't force him!
> >
> > Sorry for unloading all of this in such a loooooong post. I just figured
> > that someone here may have some insight. There are so many knowledgeable
> > folks here. Any wisdom anyone can offer will be greatly appreciate. Thanks
> > and God bless!
> > Michelle
> >
> >
> >
>
>
> [Non-text portions of this message have been removed]
>

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Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply to them.  This is especially important if you are on digest.  This not only helps out the list owner but, it makes messages much easier to read when they arrive in our inboxes.

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[epilepsy] Re: I'm baffled

 


I am sorry for your struggles with your son right now.
and i do not know about the medicines that he is on.

but What poped to my mind reading this post is. Could it be possiable that with him losing that much weight from not eating and him seeing this has effect him in the way of him not wanting to eat cause he will gain the weight back. Could he have a eating problem?And it not be the medicine. Could it be something like anorexia?

I am saying this because i have been over weight most of my life.And when i hit numbers i never wanted to hit then go over i wanted to do nothing more then stop eating. Even at 23 theres times that i just want to stop and not eat so i would lose the weight. (I can not do this because i know i have to stay healthy for my kids) But when i was 19 and hit the magic numbers of 150 during pregnancy i want them numbers back. the only reason i got that low was becuase of sever morning sickness. but it plays with my mind alot.

maybe you can have his neuro evaluate him for eating problems and not just the medicine.

but as for beign 23 and wanting to spend the money on games nad such. i think its kind of normal.

sarah

--- In epilepsy@yahoogroups.com, "mlauchner" <oldstuff4me@...> wrote:
>
> Not quite sure where to begin. I'd like to hear from parents of "older" children, ie over 20. And maybe from those who have been where my son is now. And for that matter, anybody who might be able to impart wisdom. So I guess this is to everybody.
>
> My son (Aaron) will be 23 next month. The meds he's currently taking are Lamictal, Tegretol and Dilantin, which was added only about 4 weeks ago, which replaced Depakote. Some months ago the third med in the trio that he tried was Vimpat. It was not very effective and caused significant loss of appetite and consequently weight loss as well. At that time, the weight loss was actually a welcomed side effect since he was about 217 then and was not happy at all with his appearance. Then Vimpat was replaced with Banzel, which caused further weight loss and still not effective seizure control. December was a record seizure month for him at 18 or 19. We was not liking the loss of appetite, which did subside somewhat, but was really "digging" the weight loss. His "fat" pants were falling down around his ankles and he was pretty jazzed. He said he never ever wanted to weigh that much again and had set a target weight for himself of between 180 and 185 which is what he weighed when he graduated in 2005.
>
> When we saw his neuro Jan 4, she was of course quite surprised by the amount of weight he had lost and told him then that he needed to not lose anymore weight. She weighed him that day and he weighed 167. I was shocked. That same day we began titrating off the Banzel and onto the Dilantin (300 mg/day). The Dilantin actually seems to be doing something positive since he only had 1 seizure last week! On Jan 18 he went in for labs to check levels and it came back showing he was quite low on all 3 drugs. Weird. During the time of getting on the Dilantin he has still not been able/willing to eat much. The Dilantin was increased to 400 mg/day.
>
> As of this morning, my son weighs 158. I am within inches of freaking out. He just won't eat. Can't eat? Is it possible that the Banzel left behind an unwanted side effect or is it long gone from his system and we're dealing with something completely unrelated? He is somewhat immature for his age and would rather spend his money on games/movies than food. But now it's getting ridiculous. It's almost as if his ability or desire for survival has gone out the window! He's wanting to buy a PS3 on Wed so he has flat out refused to purchase any food for himself, expecting me to do that for him.
>
> Has anyone here who takes or has taken Dilantin in the past, had it affect appetite? I have read lots of stuff about Dilantin and loss of appetite wasn't on the list. I am at whit's end. I have tried to talk to him about this and told him that maybe he needs to see the doc to rule out anything more sinister, but he flat out refuses. What can I do? He's an adult. I can't force him!
>
> Sorry for unloading all of this in such a loooooong post. I just figured that someone here may have some insight. There are so many knowledgeable folks here. Any wisdom anyone can offer will be greatly appreciate. Thanks and God bless!
> Michelle
>

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Re: [epilepsy] Re: New Type of Seizure

 

Robert,
I have Complex partial seizures with the possibility that it may become a secondary generalized seizure. I've fallen to the ground and laid hard and motionless. I'd remain compleatly unconscious, but everyone who witnessed it would always say that you laid still. I quess like I'd experience Post-ictal confusional fatigue.
Tim Baldwin    

________________________________
From: Robert Shaffer <robert_shaffer51@yahoo.com>
To: epilepsy@yahoogroups.com
Sent: Sun, January 31, 2010 8:24:35 PM
Subject: Re: [epilepsy] Re: New Type of Seizure

 
It sounds like a Grand Mal seizure.  What he went through is very similar to the seizures that I have been having all my life. Grand Mal seizures are also called Tonic-Clonic seizures.  I too, am fully aware of my surroundings, & people.  Most of what you describe is perfectly normal.  Post-ictal has a tendency to be fickle.  Not everybody gets that particular symptom, and those that do, the sength and duration may vary.  I hope this helps.

Respectfully,

Bob.

--- On Sun, 1/31/10, Jennifer Richardson <academyofthepossibl e@gmail.com> wrote:

From: Jennifer Richardson <academyofthepossibl e@gmail.com>
Subject: [epilepsy] Re: New Type of Seizure
To: epilepsy@yahoogroup s.com
Date: Sunday, January 31, 2010, 1:29 AM

 

About half an hour ago, my 13 y.o. son had a seizure tonight that last 8

minutes 10 seconds, however he was coherent the whole time. The seizure

started off with him calling me rather scared after he had gone to bed,

yelling and crying that he couldn't move at all. I went in and started

timing his seizure. It started off being completely rigid and stiff as a

board, then went into the jerking motions. His full body was involved, both

arms, hands, legs, feet. He was talking to me during this saying how badly

it hurt in between lip smacking. He remembers having the seizure, and there

was no post ictal state. He did not urinate, vomit or drool. He has diastat,

but he was breathing the entire time. It was like one of his small focal

motor seizures except involving his entire body. I didn't expect at all for

him to have a full body seizure for that long and be coherent. His have

always been less than 5 minutes, grand mals included. We have never had to

use his diastat before.

It is my understanding that diastat is to help stop the seizure when the

child is not breathing. Is this correct? For those of you who use diastat,

how do you decide when to give it and when not to.

Right now, he is sitting at the table doing some art therapy making pictures

with sticks and glue. He was very upset after his seizure, feeling very

disabled. The art helps, and he is now smiling.

Clearly, he has recovered fine. I will of course monitor him closely to be

sure he does not have another seizure tonight, but this one was as close to

a grand mal as you get.

I would appreciate hearing others experiences.

Jennifer

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

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Re: [epilepsy] I'm baffled

I can tell that you are scared and have every right to be. Have you thought
that the undesired medication might be stored in the body's fat stores. The
fact that your son won't eat and is burning the fat with the undesired
medication stored in it might be a factor. I know I hated it when Julia was
on steroids and Iknow that is stored in the fat.

Wendy

On Sun, Jan 31, 2010 at 8:57 PM, mlauchner <oldstuff4me@cox.net> wrote:

>
>
> Not quite sure where to begin. I'd like to hear from parents of "older"
> children, ie over 20. And maybe from those who have been where my son is
> now. And for that matter, anybody who might be able to impart wisdom. So I
> guess this is to everybody.
>
> My son (Aaron) will be 23 next month. The meds he's currently taking are
> Lamictal, Tegretol and Dilantin, which was added only about 4 weeks ago,
> which replaced Depakote. Some months ago the third med in the trio that he
> tried was Vimpat. It was not very effective and caused significant loss of
> appetite and consequently weight loss as well. At that time, the weight loss
> was actually a welcomed side effect since he was about 217 then and was not
> happy at all with his appearance. Then Vimpat was replaced with Banzel,
> which caused further weight loss and still not effective seizure control.
> December was a record seizure month for him at 18 or 19. We was not liking
> the loss of appetite, which did subside somewhat, but was really "digging"
> the weight loss. His "fat" pants were falling down around his ankles and he
> was pretty jazzed. He said he never ever wanted to weigh that much again and
> had set a target weight for himself of between 180 and 185 which is what he
> weighed when he graduated in 2005.
>
> When we saw his neuro Jan 4, she was of course quite surprised by the
> amount of weight he had lost and told him then that he needed to not lose
> anymore weight. She weighed him that day and he weighed 167. I was shocked.
> That same day we began titrating off the Banzel and onto the Dilantin (300
> mg/day). The Dilantin actually seems to be doing something positive since he
> only had 1 seizure last week! On Jan 18 he went in for labs to check levels
> and it came back showing he was quite low on all 3 drugs. Weird. During the
> time of getting on the Dilantin he has still not been able/willing to eat
> much. The Dilantin was increased to 400 mg/day.
>
> As of this morning, my son weighs 158. I am within inches of freaking out.
> He just won't eat. Can't eat? Is it possible that the Banzel left behind an
> unwanted side effect or is it long gone from his system and we're dealing
> with something completely unrelated? He is somewhat immature for his age and
> would rather spend his money on games/movies than food. But now it's getting
> ridiculous. It's almost as if his ability or desire for survival has gone
> out the window! He's wanting to buy a PS3 on Wed so he has flat out refused
> to purchase any food for himself, expecting me to do that for him.
>
> Has anyone here who takes or has taken Dilantin in the past, had it affect
> appetite? I have read lots of stuff about Dilantin and loss of appetite
> wasn't on the list. I am at whit's end. I have tried to talk to him about
> this and told him that maybe he needs to see the doc to rule out anything
> more sinister, but he flat out refuses. What can I do? He's an adult. I
> can't force him!
>
> Sorry for unloading all of this in such a loooooong post. I just figured
> that someone here may have some insight. There are so many knowledgeable
> folks here. Any wisdom anyone can offer will be greatly appreciate. Thanks
> and God bless!
> Michelle
>
>
>


[Non-text portions of this message have been removed]

------------------------------------

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[epilepsy] I'm baffled

 

Not quite sure where to begin. I'd like to hear from parents of "older" children, ie over 20. And maybe from those who have been where my son is now. And for that matter, anybody who might be able to impart wisdom. So I guess this is to everybody.

My son (Aaron) will be 23 next month. The meds he's currently taking are Lamictal, Tegretol and Dilantin, which was added only about 4 weeks ago, which replaced Depakote. Some months ago the third med in the trio that he tried was Vimpat. It was not very effective and caused significant loss of appetite and consequently weight loss as well. At that time, the weight loss was actually a welcomed side effect since he was about 217 then and was not happy at all with his appearance. Then Vimpat was replaced with Banzel, which caused further weight loss and still not effective seizure control. December was a record seizure month for him at 18 or 19. We was not liking the loss of appetite, which did subside somewhat, but was really "digging" the weight loss. His "fat" pants were falling down around his ankles and he was pretty jazzed. He said he never ever wanted to weigh that much again and had set a target weight for himself of between 180 and 185 which is what he weighed when he graduated in 2005.

When we saw his neuro Jan 4, she was of course quite surprised by the amount of weight he had lost and told him then that he needed to not lose anymore weight. She weighed him that day and he weighed 167. I was shocked. That same day we began titrating off the Banzel and onto the Dilantin (300 mg/day). The Dilantin actually seems to be doing something positive since he only had 1 seizure last week! On Jan 18 he went in for labs to check levels and it came back showing he was quite low on all 3 drugs. Weird. During the time of getting on the Dilantin he has still not been able/willing to eat much. The Dilantin was increased to 400 mg/day.

As of this morning, my son weighs 158. I am within inches of freaking out. He just won't eat. Can't eat? Is it possible that the Banzel left behind an unwanted side effect or is it long gone from his system and we're dealing with something completely unrelated? He is somewhat immature for his age and would rather spend his money on games/movies than food. But now it's getting ridiculous. It's almost as if his ability or desire for survival has gone out the window! He's wanting to buy a PS3 on Wed so he has flat out refused to purchase any food for himself, expecting me to do that for him.

Has anyone here who takes or has taken Dilantin in the past, had it affect appetite? I have read lots of stuff about Dilantin and loss of appetite wasn't on the list. I am at whit's end. I have tried to talk to him about this and told him that maybe he needs to see the doc to rule out anything more sinister, but he flat out refuses. What can I do? He's an adult. I can't force him!

Sorry for unloading all of this in such a loooooong post. I just figured that someone here may have some insight. There are so many knowledgeable folks here. Any wisdom anyone can offer will be greatly appreciate. Thanks and God bless!
Michelle

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Re: [epilepsy] Re: New Type of Seizure

 

It sounds like a Grand Mal seizure.  What he went through is very similar to the seizures that I have been having all my life. Grand Mal seizures are also called Tonic-Clonic seizures.  I too, am fully aware of my surroundings, & people.  Most of what you describe is perfectly normal.  Post-ictal has a tendency to be fickle.  Not everybody gets that particular symptom, and those that do, the sength and duration may vary.  I hope this helps.

Respectfully,

Bob.

--- On Sun, 1/31/10, Jennifer Richardson <academyofthepossible@gmail.com> wrote:

From: Jennifer Richardson <academyofthepossible@gmail.com>
Subject: [epilepsy] Re: New Type of Seizure
To: epilepsy@yahoogroups.com
Date: Sunday, January 31, 2010, 1:29 AM

 

About half an hour ago, my 13 y.o. son had a seizure tonight that last 8

minutes 10 seconds, however he was coherent the whole time. The seizure

started off with him calling me rather scared after he had gone to bed,

yelling and crying that he couldn't move at all. I went in and started

timing his seizure. It started off being completely rigid and stiff as a

board, then went into the jerking motions. His full body was involved, both

arms, hands, legs, feet. He was talking to me during this saying how badly

it hurt in between lip smacking. He remembers having the seizure, and there

was no post ictal state. He did not urinate, vomit or drool. He has diastat,

but he was breathing the entire time. It was like one of his small focal

motor seizures except involving his entire body. I didn't expect at all for

him to have a full body seizure for that long and be coherent. His have

always been less than 5 minutes, grand mals included. We have never had to

use his diastat before.

It is my understanding that diastat is to help stop the seizure when the

child is not breathing. Is this correct? For those of you who use diastat,

how do you decide when to give it and when not to.

Right now, he is sitting at the table doing some art therapy making pictures

with sticks and glue. He was very upset after his seizure, feeling very

disabled. The art helps, and he is now smiling.

Clearly, he has recovered fine. I will of course monitor him closely to be

sure he does not have another seizure tonight, but this one was as close to

a grand mal as you get.

I would appreciate hearing others experiences.

Jennifer

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

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[epilepsy] to Millie

 

Here is what I did find out under health reports for you . Did you read the whole thing , if yes why you say you do not believe . 
Reverse Osteoporosis NaturallyNot only is it possible to stop this debilitating disease in its tracks, you can actually increase bone density and return your bones to full health. However, it's not as simple as taking extra calcium. Read on to discover the real causes behind osteoporosis, and what you can do increase bone density and reverse osteoporosis.The incidence of osteoporosis has increased dramatically in recent years. Consider these startling facts:o Osteoporosis affects an estimated 10 million Americans over the age of 50. Some reports say the numbers are as high as 28 million people..o 33 million people, mostly women, are afflicted with low bone density, placing them at an increased risk for developing this condition in the future..o Close to 1.2 million bone fractures in the United States each year are related to osteoporosis.o 50,000 people die each year from post-fracture complications.o As many as one-fifth of people suffering from
osteoporosis end up in nursing homes.What's more…Women are extremely vulnerable to osteoporosis.o At menopause, bone loss can range from 4% to 8%.o A common consequence of osteoporosis is the collapsing of the bones in the spine, called compression fractures-but also known as a "dowager hump."o Every year 300,000 women suffer hip fractures due to weakened bones from osteoporosis. Within a year approximately one-fifth of those will die. Half of the survivors will never fully recover and will eventually require nursing care.Clearly, osteoporosis is not something you should ignore. You may be wondering…What causes osteoporosis in the first place?Bones are living tissues that must be constantly rebuilt via a two part process. First, cells called osteoclasts clear old minerals out of weakened, mottled bone tissue and carry them into the bloodstream where they can be filtered and disposed of. Next, osteoblasts deposit new minerals and collagen
back into the bone.Osteoclasts and osteoblasts are activated by parathyroid hormone (PTH) which signals osteoclasts to pull calcium from the bones. Calcitonin is the hormone that stimulates osteoblasts to deposit calcium into the bones. The problems begin when the delicate balance between PTH and Calcitonin is disrupted.Lack of magnesium may be the cause of your osteoporosisCalcitonin relies on magnesium to function properly. When we lack magnesium, the balance between PTH and calcitonin tilts too far toward PTH. This results in excessive stimulation of osteoclasts, which causes net bone loss.In other words, Magnesium suppresses the hormone that tells your body to pull calcium from the bones, and stimulates the hormone that tells the body to put calcium in your bones.Excess acidity in your food intake and drinks may cause osteoporosisWhen your diet contains too many acid foods like grains, pasta, bread, meat, soft drinks, with too few fruits and
vegetables, your body starts to get acidic. As the blood must be a neutral pH, your body pulls calcium from the bones to neutralize the acidity. This is often the major factor in the development of osteoporosis. Get some pH strips from your drug store and check your salvia to see if it is too acidic.The imbalance of the hormones DHEA and Cortisol may result in osteoporosisCortisol is a stress hormone, produced when there is stress. It will pull calcium from bones. Cortisol and DHEA balance each other out, if one is high the other is low. So one of the best ways to keep your levels of cortisol low is to make sure you are taking plenty of DHEA so that its levels are high. Low hormone levels in general can lead to loss of bones, which is why many women start to loose bone density after menopause. However, this would not happen if these other causes weren't there. Correct them and you'll regain bone density.You can prevent and reverse even advanced
osteoporosisTo completely reverse Osteoporosis, we recommend using the Stage 1 for 3 months and then the minimum number of products to use would be All 6 products in the Combo O stage 2. Used in the quantities suggested, you should see bone density improve within 12 months or, your money will be refunded for the product. Yes, this is a 12 month guarantee that there will be an increase in your bone density. The limits for this guarantee are as follows: You must use the Combo O Stage 1 for 3 months using at least 700 mg of magnesium per day - with no calcium in any supplements and dairy limited to 2 servings a day at the most. Then, using Combo O Stage 2 All 6 products for the remaining 9 months. You would need a Dexa scan before and after using the protocol. Twelve months is the standard period for Dexa scans so folks may be able to get them covered by insurance.Osteoporosis is a reversible disease. Even elderly people with very low bone density can
increase density and prevent future problems like fractures and skeletal breakdown. Take a look at this email I received from Tanya.Dear Robert,We are thrilled to let you know some fabulous news.A little over 15 months ago, I found your site on behalf of my then 74-year-old mother. She has suffered from Atypical Basiliar Migraines and SEVERE Osteoporosis for over 10 years now. After being discharged from the hospital (she has had several visits back to back for years), we decided to take it upon ourselves to have another bone density test done. The readings were horrible. The Osteoporosis Center here in Georgia wanted her to start taking Actonel immediately. I was furious. I knew there had to be a better way. My heavens, you certainly proved that to be true! We are so thankful to have found you! ...She has consistently taken these supplements. She has NOT exercised nor taken any other supplements. We went in for her 18-month check-up and walked out
leaving the nurse in shock! My mother's bone density had grown 3.5% in one year! They have never seen such aggressive results. Thank you, Robert.Tanya J.Why commercial medications may do more harm than goodBiphosphonate drugs, like Fosamax, Actonel and Boniva work by killing off osteoclasts which are supposed to resorb old, infirm bone. So when you take these medications, your bones may stay denser, but they will be composed of a higher amount of old, poor quality bone cells. The bone structure is made up of both of collagen and calcium, which means they will be more brittle and weak. You must have balanced bone resorption and creation. These drugs create an unbalanced environment which can't create strong healthy bones..In fact, one of those drugs has been shown to increase rates of bladder cancer in the people who use it. There are also other prescription drugs that block the absorption of calcium into bones. Prednisone does this. It is commonly
used to treat autoimmune, asthma, and inflammatory diseases.Research any drug your doctor recommends online first to read about what its side effects are.There are other companies that claim their one calcium product can take care of osteoporosis on its own. Well, that may be true in some cases where lack of calcium is the culprit, but most of the time many more issues are involved and have to be dealt with. They may even talk about collagen and osteoclasts, but don't give any accurate science behind why a calcium amino acid chelate will effect these.We don't tout our main calcium product suggestion as being all you need to take, even though it is better that the highly advertised calcium chelate because it has the all important magnesium. In most cases, osteoporosis is more complicated than simple calcium deficiency.As you will see, just taking any old calcium supplement is not the answer. Combining many supplements will help you reverse or prevent
osteoporosis because they work on different issues. And they work better than the more common toxic drugs because they address the real underlying causes of osteoporosis.There is one issue you should check the next time you go to your doctor. About 1 in 50,000 people have a problem with their parathyroid gland. When it malfunctions, it forms a small tumor that constantly signals the body to pull calcium from the bones. Fortunately, there is a simple way to determine whether you have this issue or not. Get your blood calcium levels checked. If they are high, a parathyroid tumor is the probable cause of your osteoporosis.You may decide to have an operation to get rid of that particular malfunctioning gland. Or, there are a few products that we know of that can help dissolve the tumor over a period of about 4 months.. You would need 2 containers of PapayaPro which, when taken on an empty stomach, dissolves tumorous tissue, 1 bag of MSM Powder to help
soften and dissolve the tumor and 3 bottles of Defense, a very powerful immune system product. Once the parathyroid issue is under control, you can move on to the Osteoporosis products.To read more about the Parathyroid gland: www.parathyroid.comLifestyle changes make a huge differenceThere may be any number of reasons you're experiencing bone loss. And while supplements can help rebuild bone over the long term, there are several things you can start doing right now that will help your body increase bone density or at least stop it from decreasing further.1. Stop drinking soft drinks.Soft drinks are high in phosphoric acid and sugar, making these drinks highly acidic. Calcium is the main mineral the body uses to neutralize that acid. So phosphoric acid depletes calcium levels by causing it to be pulled from the bones. Calcium is pulled out of the body when this happens, and this lowers blood calcium levels. To remedy this, the parathyroid gland
restores calcium balance in the blood by pulling even more calcium from your bones. It's a downward spiral.Soft drinks aren't the only culprits, either. A diet high in meat and carbohydrates, with few greens or fruits will be highly acidic also, causing the body to utilize calcium to neutralize the acids.Stop excess consumption of milk and milk products. (Or take extra magnesium when you do so.)For over 50 years milk has pitched as a wonder food whose calcium is the only protection we need against weak bones. Yet, Americans have one of the worlds high calcium intakes, but still suffer from one of the worlds highest rates of osteoporosis.African women in the United States eat at least four times more calcium than African women in Africa, and have nine times more osteoporosis. Asian women in the United States eat at least 60% more calcium than Asian women in Asia, and have three times more osteoporosis. Calcium consumption in Hong Kong and Greece doubled
in the last 30 years, and the rate of osteoporosis tripled in Hong Kong, and more than doubled in Greece.Post-menopausal women in America who consume calcium rich dairy products have over three times more osteoporosis than those who do not. The Harvard Nurses Study, and a similar study done by the dairy industry found that the more dairy products we consume, the more bone we lose.Another study concluded that women who drank two or more glasses of milk per day increased their risk of fractures compared with women who drank less than one glass per week, and that consumption of yogurt, cheese and other dairy products also increased the risk of fractures.This is because milk products have about 10 times more calcium than magnesium.Increasing Magnesium Intake Is VitalLow magnesium intake, high calcium intake resulting in an imbalance of magnesium and calcium in your body is the single most important cause of bone loss. This imbalance literally signals your
body to pull calcium from the bones, as strange as that may seem. And it causes the calcium you get in your diet or take as a supplement to be unusable. It must have magnesium to get into your bones. And causes the calcium to be deposited in arteries, joints, as bone spurs or kidney stones.In addition lack of magnesium leads to stress, heart arthymia, poor circulation and more.Rates of osteoporosis are lowest in cultures where the ratio of calcium to magnesium is between 2 parts calcium to 3 parts magnesium, down to as much as 3 parts calcium to 2 parts magnesium. The ratio of calcium to magnesium in dairy products is 10:1, way too high.In nations with high rates of osteoporosis, the ratio of total calcium to magnesium intake is at least 2:1, usually over 3:1. For example…o The South African population has a healthy ratio of 2 parts calcium to 3 parts magnesium in the average diet, and has an osteoporosis rate of 7.o In the USA, the ratio is 4 parts
calcium to 1 part magnesium and the osteoporosis rate is 144.o In dairy-loving Switzerland, the ratio is 5.5 calcium to 1 magnesium and the rate is 188.Lack of magnesium causes calcium to be pulled from the bones. This calcium is all too often deposited in soft tissue, where it can cause arthritis and arteriosclerosis. If you have been accumulating calcium in your body for a length of time you may need to take an absorbable magnesium supplement to balance the excess calcium with the magnesium deficiency. It will pull out the unwanted calcium from arteries and joints and help to put it back in your bones where it belongs.Bones are living tissues that must be constantly rebuilt via a two part process. First, cells called osteoclasts clear old minerals out of bone tissue that has become weak and mottled, and carry it into the blood. Next, osteoblasts deposit new minerals and collagen back into the bone.Osteoclasts and osteoblasts are activated by the
parathyroid hormone which encourages osteoclasts to pull calcium from the bones. Calcitonin is the hormone that stimulates osteoblasts to deposit calcium into the bones.When we lack magnesium, the balance between PTH and calcitonin tilts too far toward PTH. This results in excessive stimulation of osteoclasts, which causes net bone loss. Increasing magnesium is the only natural way to correct this.Magnesium suppresses the hormone that tells your body to pull calcium from the bones, and stimulates the hormone that tells the body to put calcium in your bones. Lack of magnesium causes calcium to be pulled from the bones. This calcium is all too often deposited in soft tissue, where it can cause arthritis and arteriosclerosis. If you have been accumulating calcium in your body for a length of time you may need to take an absorbable magnesium supplement to balance the excess calcium with the magnesium deficiency. It will pull out the unwanted calcium from
arteries and joints and help to put it back in the bones.On the average, a vegan diet (no meat or milk) provides about 500 mg. per day of both calcium and magnesium. Studies show that vegans have stronger bones than meat and milk product eaters, especially after the age of 50. Studies also show that magnesium supplements, even when used without calcium, increase bone density. In two such studies, bone density was increased, within nine months, by 7% and 8%. Another study, by renowned gynecologist Guy Abraham, provided a supplement that included 500 mg. per day of calcium, and 600 mg. of magnesium. Women using this supplement increased bone mass by over 11% within nine months.Most grains are acid-forming, except millet and buckwheat, which are slightly alkaline. Sprouted seeds and grains become more alkaline in the process of sprouting. Vegetable and fruit juices are highly alkaline. The most alkaline foods are: figs, juices of all green vegetables and
tops of carrots and beets, celery, pineapple and citrus juices. Vegetable broth.Reduce stress.Cortisol is a hormone produced when your body is under stress that causes calcium to be pulled from the bones. In this day and age, it isn't easy to reduce stress, so excess cortisol may well be initiating the pull of calcium your bones. We suggest keeping a set of the Usherite Tetrajacks next to you to help with this. The subtle energies the special geometric shaped Tetrajacks emit help reduce stress at the cellular level. DHEA balances out cortisol, so the higher the DHEA levels you have, the lowr the cortisol levels. There are a host of benefits from raising your levels of DHEA.By the way, some medicines actually block the absorption of calcium into bones. Prednisone, a commonly used medicine, does this. It is used to treat autoimmune, asthma, and inflammatory diseases. www.breakthroughhealthproducts.com/DHEA.html covers an excellent DHEA supplement.So
what can you do to reverse osteoporosis and increase bone density as quickly as possible?Before we get started on a comprehensive supplement regime to reverse osteoporosis, let's cover something very basic. Weight-bearing exercise, whether it is walking, doing squats or push-ups, or working out with weights, will help to increase the density of the bones. And gives you lots of other health benefits too. The long term results makes exercise well worth doing. Studies even show it increases mental ability and function.Using several of the right kind of supplements is necessary to reverse or prevent osteoporosis. Contrary to what some internet websites say, just one supplement or drug is not going to get the job done in 99 out of 100 cases. And because the right natural supplements address the real, underlying causes of osteoporosis, they work better than the toxic drugs that don't address these underlying fundamental issues. One of those drugs has been
shown to increase rates of bladder cancer in the people who use it. Research any drug your doctor recommends online first to read about what its side effects are.Biphosphonate drugs, like Fosamax, Actonel and Boniva work by killing off osteoclasts which are supposed to resorb old, infirm bone. So not as much bone gets resorbed when you use the drugs. Unfortunately, though your bones may stay denser when you take Fosamax, they are composed of a higher amount of old, poor quality bone cells, both of collagen and calcium, so will be more brittle and weak. You must have balanced bone resorption and creation for healthy bones. These drugs creates an unbalanced environment - which can't create healthy bones. There are other companies that claim their one calcium product can take care of osteoporosis on its own. Well, it may be able to in a very few cases where lack of calcium is a culprit, but most of the time many more issues are involved and have to be
dealt with. They may even talk about collagen and osteoclasts, but don't give any accurate science behind why a calcium amino acid chelate will effect these. So while we could tout a calcium supplement suggestion as being all you need to take, and how it is better than the highly advertised calcium chelate because it has the all important magnesium, we would be doing you a disservice. Osteoporosis is more complicated then this in most cases.So let's take a look at a complete and highly effective osteoporosis fighting regime. Even one or two products can help, but using the suggested protocols will provide the fastest results.Supplements That Work Together To Reverse OsteoporosisThis protocol is divided up into the first three months for a Stage 1 where no calcium is taken, and then the rest of the time you take both calcium and magnesium. The reason for this is that in Western societies virtually everyone is deficient in magnesium, and has excess
calcium. And even if you are not deficient, if you have osteoporosis, you need more magnesium to signal your body to put calcium into the bones.Your bone density will increase fastest if you don't take any calcium supplements at all for at least 3 months. Researchers that have been specializing in Magnesium supplementation for decades have found that if you do not stop all calcium supplementation for approximately 3 months (reducing dairy intake is good to do also), and take just magnesium and whatever else you want that does not contain calcium, then the magnesium levels in your body do not adjust well.So do not take any calcium supplements, check your multi-vitamin also, for the first three months. The Magnesium will be pulling calcium from where excess calcium is deposited in your body. Your arteries, your joints, kidney stones, etc. So you bones will have a source of calcium, and because it would be combined with magnesium, your body will be
signaling to put the calcium in the bones.If you know you have calcified, partially blocked arteries, or calcified joints, arthritis, do not take any calcium supplements for at least 4 months while using Stage 1 - the no calcium stage. This gives your body more time to be cleaning the calcium out of those arteries and joints. Once they are clear, add on the best Calcium / Magnesium product we have found along with a second calcium based Pearl Powder Extract.NOTE: If you have already been taking a lot of magnesium for several months or longer, you can skip Stage 1 and go right on to the Calcium and Magnesium combos in Stage 2.Stage 1 of the Reversing Osteoporosis ProtocolIonic Fizz MagnesiumIt combines optimal amounts of magnesium, vitamin C, potassium, vitamin B12 and B6, along with manganese, zinc, folate, biotin, copper, Vitmin D3, Vitamin A, potassium, ionic silica and ionic trace minerals from seawater, in order to provide a magnesium-rich
multi-mineral complex formula. These co-nutrients work together to make for a very absorbable effervescent drink that supplies 700 mg of magnesium daily.The Vitamin B12 in it supports the hormonal system which is always involved in osteoporosis. The B6 aids in the absorption of magnesium. Its Vitamin C is needed to make collagen, essential for the maintenance of bones and teeth, and enhances the absorption of magnesium. The Folate helps produce new bone and other cells.Use this product for three months before switching over to our suggested calcium and magnesium supplement. In this time frame, the magnesium will be pulling calcium out of joints and arteries and signaling the body to put the calcium in your bones. So your best results will come if you are also taking three other products that will accelerate this process. Our top additional suggestion is a remarkable new product that has only recently reached the market. In fact, only one supplier has
it, and they have the exclusive rights to it so you won't read about it anywhere else. The product is...Regenerative ElixirRegenerative Elixir is a frequency enhanced water energized with frequencies that stimulate your cells to regenerate. Similar to the way a homeopathic formula works, when you drink small amounts of this water, it transfers its unique frequencies to your body, or specifically to the cells in your body as they do communicate electrically. The reason Regenerative Elixir is so valuable for osteoporosis is that it tells your bone cells to regenerate, to repair themselves. Turning on the bone cells in this way may greatly speed up the increase in bone density. Regenerative Elixir's frequencies also are rejuvenating at the cellular level for both organs and the immune system.Regenerative Elixir is a top product for osteoporosis or any organ that needs rejuvenation.NutraWoundBones are made primarily of collagen and calcium. There is
more collagen in your bones than any other substance. Collagen is the structure around which the calcium is placed in the bones. When bone density is too low, with bones brittle and weak, the amount of collagen in your bones needs to be increased. NutraWound does just this. It has been found in clinical studies to increase collagen production by 200% in your bones. Doubling the speed at which broken bones heal. It also helps improve all joints and tendons strength as a side-benefit. It has significant benefit for anyone with osteoporosis, or for someone who wishes to prevent its development.NutraWound uses a unique and highly effective nitric oxide delivery system that delivers specific nutrients to your bone cells to target collagen production. This will not only increase collagen production, actually double it, but it is so effective at producing nitric oxide, nothing else even comes close. Nitric Oxide gives you many other side benefits. It kills all
pathogens, increases circulation, reduces high blood pressure as it opens up the arteries, and more. NutraWound is without par in its ability to increase collagen production and thus improve bone strength and flexibility. Nothing else even comes close. To reverse osteoporosis or osteopenia, use two bottles per month, which is 3 capsules twice a day an hour away from meals.. You cannot use anti-inflammatory medicines or supplements like MSM when using NutraWound.Remember how too low of a pH level, meaning too much acid in your body, causes calcium to be pulled from the bones to neutralize that acid. This next product increases your pH levels so that calcium doesn't have to be pulled from your bones.Zeo3This is the fourth product in this protocol because it does an excellent job of adjusting the pH levels in your body. About 40% of osteoporosis is occurs because the body pulls calcium from the bones to neutralize pH levels in the body. Zeo3, by improving
pH levels so rapidly and effectively, stops the outflow of calcium from the bones.Besides its ability to improve pH levels, Zeo3 seems to spark quick turnarounds in health and energy, increase mental clarity, and help speed recovery. This atomizer spray delivers a highly absorbable zeolite-Humic-fulvic complex in an oxygenated structured water base. It gives you instant oxygen, electrons, micronutrients, enzymes and cofactors. Calming results can be felt right away with physical results following within days. Zeo3 is produced using a proprietary process involving thousands of heating and cooling cycles in an ozonated chamber to produce a highly functional, purified water with an increased hydrogen bond angle. In essence this is exactly the process water goes through in nature, heating (evaporation), cooling (rain) and ozonation as the water vapor high in the atmosphere is exposed to sunlight. With Zeo3 decades of nature's cleaning are done in one day.
This produces a fully charged water with oxygen levels back at around 38% and with a high level of hydrogen ions, pH. Tap water comes in at 8 to 10% oxygen. For osteporosis, what is important is the large number of hydrogen ions that rapidly adjust pH levels."This A.M. my pH was 7.0 and this is the start of my 3rd day.""Just checked my saliva and my pH is 7.25.""Now after 3 days my head is completely clear.""I have been trying for 3 year to get my pH up to 7. Now after a week it's at 7.25 in the morning.""The feeling is coming back and the numbness is nearly gone.""My wife who is a cancer survivor normally has a morning pH of 5.5. After just 5 days her pH tested 7.2.."Everyone should use the next two products, Vitamin D and K. They are inexpensive and last around a year. Useful for prevention and for reversing osteoporosis.Vitamin D Forte EmulsifiedAdequate levels of vitamin D are important in the prevention and reversal of cancer, osteoporosis and a
host of other illnesses. Including the common cold. Over the last few years, the opinion of vitamin D researchers is that the recommended daily allowance for vitamin D is way too low. Dr. Cees Vermeer found that women who lose abnormally high amounts of calcium through their urine could cut the loss by up to 50 percent when they took high levels of vitamin D. The amount they took was much higher than the normal suggestion of 400 IU a day.Dr. Robert Rowen, MD now recommends vitamin D supplementation of 5,000 units daily.. Other alternative MDs are also recommending as much as 5000 IUs daily. Even if you get out in the sun in the South, without sunscreen, you may not be getting enough of it. One study showed that 30% of the people in the study, in Hawaii, were vitamin D deficient, even though they were out in the sun 2 hours daily with no sunscreen. It makes sense to add it on. Vitamin D is a very important nutrient, the lack of which is connected up to
numerous health conditions, from cancer to MS to osteoporosis.Vitamin D Forte is a one ounce bottle of emulsified (oil based for absorption) vitamin D that gives you 2000 units per drop. There are 600 drops in the bottle, making it just about the least expensive supplement you can take to fight osteoporosis. Using 3 drops daily to combat osteoporosis, a bottle will last 200 daysVitamin K EmulsifiedStudies show vitamin K is also important in treating osteoporosis. It inhibits the loss of calcium from bones, and is needed to get calcium into bones. One study demonstrated a reduction in calcium loss by up to 50% in osteoporotic individuals when given vitamin K.The short reason it works is this. Osteocalcin is a protein that binds to calcium and builds bones. It is vitamin K dependent. Lack of vitamin K leads to not enough osteocalcin being utilized - it remains free - so not enough calcium will get into your bones.Astronauts suffer from osteoporosis, being
in a weightless environment. In one study done on Russian cosmonauts, levels of free osteocalcin skyrocketed within 4 days. This means it was not being utilized. When one astronaut was given vitamin K during part of his mission, his levels returned to normal. When he stopped taking it, the high levels returned.Vitamin K regulates calcium and keeps it in the bones and out of arteries -- preventing strokes, heart attacks and osteoporosis at the same time.Vitamin K works through an amino acid called GLA. GLA is part of a protein that controls calcium. Researchers believe there are at least one hundred of these calcium controlling proteins scattered throughout the body. Vitamin K is the only vitamin that makes these proteins work. They do this by a process of carboxylation which gives the proteins claws so they can hold onto calcium. Once the protein grabs onto calcium -- it can be moved and utilized by the bones. Proteins that don't get enough vitamin K
can't hold on to calcium. Without a functioning protein to control it, calcium drifts out of bone and into arteries and other soft tissue. Vitamin K redirects the "lost" calcium back to the bone bank.Vitamin K is a liquid emulsified K which makes it well absorbed and easy to take. One drop provides 500 mcg. More can be taken if desired but one drop daily is enough. There are about 600 drops in a bottle so it is very affordable as it lasts well over a year. Vitamin K supplementation is generally contraindicated in patients who are taking coumadin/warfarin. Pregnant women should avoid supplementation with vitamin K is doses exceeding 65 mcg unless directed by a doctor..These are the most important products to be using for Stage 1 which emphasizes magnesium only for 3 months. If you wanted to use all these and be a little more aggressive, you can add on a few other products that are useful. They are not as important as the above, but certainly worth
doing.Ionic Strontium ConcentrateThere has been much research showing that strontium is highly effective at improving bone density. Studies have shown a 15% increase in lumbar spine bone mineral density over a two year period, 14.4% over a three year period along with an 8.3% increase in hip density. We like Ionic Strontium Concentrate because, being in an ionic form, it's absorption will not be blocked by calcium as will other forms of strontium, though it is best to take away from calcium. Just 30 drops a day, supplying 90 mgs. of ionic strontium is all you need to take. That is one bottle for a month's supply.Total Hormone SupportAs you may remember reading, a wacked out hormonal system, producing too much cortisol and too little DHEA can cause bone loss. Total Hormone Support is a liquid hormonal solution that supports the entire hormonal system for males and females. All chronic illnesses have a collapsed hormone system. This unique product
feeds the hormonal system and activates it so that it can help the body fight diseases and also osteoporosis. It is a clear liquid herbal concentrate in 10% alcohol. The 2 ounce dropper bottle that lasts 2 months. It is made from isolated fractions of a variety of Indonesian yams combined with a subtle frequency technology. It contains no glandular material.Stage 2 of the Reversing Osteoporosis ProtocolThis stage starts 3 months after you start the magnesium based Stage 1.Stage 2 contains all of the products found in Stage 1 ( Regenerative Elixir, Ionic Fizz Magnesium, NutraWound and Zeo3) in the same quantities. Plus, it adds on two very important calcium supplements. The first is the best calcium and magnesium bone growth supplement we have found. It is called...MineralMatrix8MineralMatrix8 is gets more calcium into your cells because most of it's calcium comes from fossilized red algae, called Aquamin. It comes from large red algae growing in
bays off the coast of Iceland and Ireland. At the bottom of these bays are calcium and magnesium deposits of the mineral structure that is left when the algae decomposes. So it is just like eating plants to get your calcium/magnesium. The perfect source. As it is plant based, the calcium has been transformed by the plant into a form that our cells can best absorb.What makes MineralMatrix8 even better is that other ingredients are included that enhance absorption and fight osteoporosis in other ways. In fact, the absorption is so good, you can use a smaller amount of calcium than your doctor recommends. A 6 capsule serving is all you need to use daily. This doctor formulated supplement supplies in total about 600 mg of calcium and 500 of magnesium when you total the amounts in the various ingredients. Here is the story on MineralMatrix8.MineralMatrix8 delivers a broad spectrum of synergistic nutrients to fight osteoporosis that:1. Removes
"calcium-blockers", barriers to calcium and essential mineral absorption.2.. Instructs the body to maintain - NOT lose bone density.3. Provide "body friendly" forms of calcium, silica and magnesium.4. Provide the full spectrum of auxiliary trace minerals that are required for healthy bone and collagen growth.5. Provide the vitamins that are required for healthy bone and collagen growth.6. Improves mineral and protein absorption by modulating pH levels.7. Enhance mineral dispersion using natural carrier agents (microporous silica).8. Opens and clears mineral delivery pathways using full spectrum free radical scavengers.Below is an overview of raw materials used in the MineralMatrix8, and how they improve bone, collagen and muscle wellness. It's most important ingredient is:Patent pending highly bone friendly forms of calcium (Auqamin– with "predigested" calcium extracted from organic algae). Aquamin also contains high levels of natural
magnesium, plus more than 70 trace minerals, and phytonutrients - all pre-digested by a unique marine algae. It is a remarkable whole-food, calcium and mineral source. You get a full spectrum of minerals and sea plant nutrients working for you instead of a single element like most calcium sources.Next comes another patented natural ingredient – OsteoGene. Research shows that OsteoGene has a demonstrated ability to turn off your body's bone loss cycle – vital for your progress. OsteoGene is a proprietary extract from the hops plant that supports bone strength by inhibiting the activity of osteoclast cells that break down bone. It also has proven anti-inflammation properties. There a great deal of research showing the value of the hops extract in fighting osteoporosis.ClearEarth is the source of a very special silica. One of its purposes in MineralMatrix8 is to absorb and remove heavy metals from your body. These interfere with the absorption and
use of calcium, zinc, magnesium and other essential minerals. Of the 10,000 plus forms of plankton based silica, ClearEarth exhibits unique absorptive and clearing properties. Each serving contains millions of tiny micro porous silica "sieves", each with a hollow center and scores of microscopic pores. This unique porous structure gives ClearEarth the highest absorptive capacity of any of the "clay" family of internal cleaners.An additional benefit is that it is an effective, all-natural, anti-parasitic, anti yeast, anti-mould and anti-fungal agent. One longterm user wrote, "In my 28 years of using FSF (ClearEarth) daily, I have only had one episode of sickness, and that was when I traveled to Minnesota without my supply. At 88, I'm thankful to report I'm still in top shape, and happily still work full time. FSF is one of Natures best kept secrets." W. Thorpe New MexicoClearEarth has high natural silica (99.9%) and trace mineral content
which is supportive of ligament, bone collagen and hair growth. Silica is important to the cross linking of bone collagen. It helps set calcium into this collagen structure. Bone collagen gives your bone flexibility and resilience, yet it is rarely dealt with in osteoporosis program. NutraWound and ClearEarth in MineralMatrix8 do just that.In addition, MM8 contains wildcrafted citrus pectin which absorbs toxic debris and stabilizes digestion. Current research on citrus pectin shows promising results in human health and you'll be hearing more about it in the near future.You get more mineral cofactors from Mezotrace, a full spectrum mineral blend which provides more than 70 trace minerals and additional calcium and magnesium.Next come organic Humic and Fulvic Acids. They were produced by plants in order to change inorganic minerals into organic minerals. So they help take the minerals in MineralMatrix8 into your cellls, increasing their absorption.
Known as miracle minerals, humic and fulvic acid have assets not found in other minerals. They are extremely valuable in acting as a chelator toward unwanted calcium deposits in arteries, joints and organs. Most importantly, they change inorganic minerals into organically complex minerals that are well absorbed into cells and bones. In fact, it is so effective in this regard, in experiments it has been shown to turn inorganic calcium into an organic bio-active cellular regenerative calcium conducive to new bone growth.Other experiments show that humic and fulvic acid activate and stimulate white blood cells, promotes healing, stimulate cellular growth and regeneration, and inhibit the HIV virus. They are a protector against toxic heavy metals, improve brain function, balance and energize cells. Acting as a "free-radical" scavenger, they supply vital electrolytes, transport nutrients, catalyze enzyme reactions, increase assimilation, stimulate
metabolism, modify the damage of toxic compounds such as heavy metals and free radicals, and increases the permeability of cell membranes to enhance nutrient absorption.Lesser important ingredients include vitamin cofactors including small amounts of vitamins C and K2. These essential vitamins play important roles in nutrient absorption, bone and collagen strength. Also included in MineralMatrix8 is Aulterra powder. This is a homeopathically activated combination of natural paramagnetic and diamagnetic minerals which produce a significant enhancement of absorption when combined with nutraceuticals.This combination of ingredients makes MineralMatrix8 the very best calcium, magnesium osteoporosis supplement we have found.By the way, when your doctor tells you to take 1500 mg of calcium daily, he is suggesting calcium supplements that may have, at best, about 30% absorption in the stomach. About 450 may get absorbed. Not only is the calcium in
MineralMatrix8 better absorbed by far, it is much better utilized in the cells. So a much smaller amount will produce much better results.The second additional product we suggest for Stage 2 is...Pearl Powder ExtractPearl powder is one of the best and most bioavailable source of calcium. However it contains no magnesium so we suggest continuing to use the Magnesium product when using this product. The primary reason we include it in this protocol is that this particular pearl powder extract contains Signal Proteins that act as messengers by sending out signals that control cellular growth. The signal proteins in pearls can stimulate bone regeneration and increase existing bone density. In the shell of the oyster, it is the signal proteins which control the process of calcium absorption as well as the other mineral and nutrients necessary in pearl formation. Interestingly, the DNA in the signal protein in pearls is quite similar to our own DNA that is
responsible for calcium regulation. So it greatly enhances the amount of calcium that is put down in your bones.In a study published in July 2004, Dr.. S. Li and his colleagues isolated part of the DNA of pearl that can reproduce a complete full-length of one of the signal proteins. To their amazement, they found that the pearl signal protein DNA encodes a protein which shares high similarity with our own human calcium binding proteins.The research done by Dr. Li and his colleagues, as well as many other scientists, indicates that the regulation of calcium uptake, transport, and secretion involved in creating pearl is similar to the regulation of calcium uptake, transport, and absorption in the human body. This may also account for why pearl is so compatible and osteogenic for our human bones and at the same time, nutritious and healing for so much of the human body.Pearl Powder also benefits the body by strengthening the heart, assisting in controling
blood pressure, calming the nervous system, reducing stress and supporting the immune system. Osteoporosis Meds have been Linked to Heart Problems. Bisphosphonates, medications commonly prescribed to build thinning bones, have been linked to a serious heart problem. A review of recent research found that atrial fibrillation, an erratic heartbeat that can lead to heart attacks and stroke, may be linked to the bone-building drugs which include Fosamax and Boniva.Pearl powder is a potent antioxidant that enhances the activity of Superoxide Dismutase (SOD), one of the body's strongest antioxidant enzymes, and also reduces peroxidation, one of the body's most destructive aging processes. The signal proteins help to maintain youthful skin tone and support vital skeletal and bone health as it stimulates collagen regeneration and new skin growth.There are 120 capsules in a container of Pearl Powder Extract. Take two capsules in the morning, and two at night on
an empty stomach. They supply 475 mg of calcium and 10 mg of signal protein.What to take...Our recommended supplier, GetHealthyAgainStore.com has a couple of Combo Specials with very significant discounts.The Basic Osteoporosis ProtocolCombo O Stage 1: Includes a one month supply -1 bottle of Regenerative Elixir1 container Ionic Fizz Magnesium2 bottles NutraWound1 bottle Zeo3You will need to use this combo, or at least some of the products in this combo for the first 3 months and then move on to...Combo O Stage 2: One month supply of -1 bottle MineralMatrix81 bottle Regenerative Elixir1 container Pearl Powder Extract1 container Ionic Fizz Magnesium2 bottles NutraWound1 bottle Zeo3In either case, remember to add on:1 bottle Vitamin K Emulsified - 1 drop daily1 bottle Vitamin D Forte Emulsified - use 3 drops dailyOnce you increase your bone density up to normal. continue to use a bottle a month of the two most important products discussed below,
MineralMatrix8 and Regenerative Elixir. Using them will keep your bone density high. These two, of course, could also be used as a preventative so that you don't develop osteoporosis.Even though the drugs for osteoporosis don't work and have a host of not so good side effects, if you are taking one of them, you can still use these products. They will not interfere with the drugs, though the drugs will hinder slightly the effectiveness of these or any other natural products to help with osteoporosis.The Vitamin D and K will last for around a year. Certainly consider any of the other products if you wish to be even more active in defeating osteoporosis. Just a reminder, if your parathyroid is the problem, with a growth on it, a few product suggestions may reduce the tumor. Try using one bag monthly of the MSM Powder to help soften and dissolve the tumor and 2 containers monthly of PapayaPro. This enzyme rich formulation, when taken on an empty
stomach, will digest the parathyroid tumor. Finally, 3 bottles monthly of Defense, an excellent immune system product.Testimonial:"Just thought I would fill you in on some good news..I was first diagnosed with "light bones" in 2002 and, in spite of calcium tablets, it slowly declined until, in March 2008, I was diagnosed with Osteoporosis in the Femur (T was -3.14). My doctor suggested Fosamax but I heard that it was fairly dramatic and was known to degenerate jaw bones. After a lot of searching, I found your system, and, in consultation with my doctor, decided to give it a try.I have just had a further Dexa and the results below speak for themselves.I am very happy with the density increase in the FemurMarch 2008 BMD (g/cm2)Neck: 0.7154 Total 0.830December 2008 BMD (g/cm2)Neck: 0.770 Total 0.889Percentage increase March 7.6% // Dec. 7.1%March 2008 T Score -3.14 Total -2.57December 2008 T Score -2.30 Total -1.5However I am delighted with the
density increase in the Lumbar which is really incredible.March 2008 BMD (g/cm2) L2 –L4 0.8834, 0.8309, 0.8703, 0.9451December 2008 BMD (g/cm2) L2-L4 1.1000, 0.9650, 1.1940, 1.1370Percentage increase 24.5%, 16.1%, 37..2%, 20.3%March 2008 T Score, -1.53, -1.83, -1.63, -0.95December 2008 T Score, -1.2, -2.3, -0.4, -0.9Let me know what you think of these resultsMerry Christmas from AustraliaGreg"How To Order These Osteoporosis Fighting SupplementsThe online alternative health product store where you can find all of the products listed above is GetHealthyAgainStore.com. Many of them you can't find anywhere else. To get pricing on these supplements, or to buy them... Click Here 
Call 800-832-9755 to order by phone.Call 907-235-5556 to order from outside the USA or Canada.All of these individual products come with a 30-day money back satisfaction guarantee of course but also, Get Healthy Againfeels confident enough aboutthe Osteoporosis Protocol outlined above that they are offering a 12 month money back guarantee on the products. Your bone scan will show an increase in bone density after the 12 months or, your product cost is refunded.The following instructions need to be complied with:You must use the Combo O Stage 1 for three (3) months taking at least 700 mg of magnesium per day - with no calcium in any supplements and dairy limited to 2 servings a day at the most.Then, using Combo O Stage 2 All 6 products for the remaining nine (9) months. You would need a Dexa (bone) scan before and after using the protocol. Twelve months is the standard period for Dexa scans so folks may be able to get them covered by insurance.
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