Thanks, kelly. They want to do an inhome video monitored eeg. Would it be better to be inpatient? I just read up on nerve damage which couod be posdible. I need new glasses so will ask for FL-41. I live in dallas, tx so will search for eyeglass places that provide this. My neuro is very busy and says my brain is complicated but he seems to respond to any suggestions i give him. Its hard to get in to see him, though. Thank you, i know very little about seizures except for my brothers, type. I trued to buy seized by eve laplante on ipad but did not have it. Readibg up on alk info. Thanks again, nance
--- In epilepsy@yahoogroups.com, Kelly Porter <race_12_1@...> wrote:
>
> You might want to inquire about the following with your neurologist.
> Light sensitivity, I have it and it is awful. It can be made better
> with glasses that have a special tint called FL-41. It is new, and not
> widely abialable, but it made all the difference for me.
>
> Stabbing pain in the face, if on one side, could be nerve damage. If is
> is sudden, stabbing, specifically on one side of the face ask about
> possible cranial nerve damage.
>
> So you are aware a normal in office EEG is never used to rule out
> seizures, only to verify them. It is possible to have a normal EEG come
> back negative even in someone who has seizures, it is complicated. An
> inpatient EEG should be able to verify seizures, and even narrow the
> focus to some extent. These can last 3-5 days in the hospital, and they
> will typically do things to cause seizures, like make you sleep deprived.
>
> You will likely have more questions then answers at the beginning, and
> we are all willing to answer based on our experiences.
>
> Kelly
>
> On 12/14/2012 4:58 PM, Nance wrote:
> >
> > Thank you jewel. Waiting on insurance to approve 3 day EEG. Do you
> > have headaches during an event? I was not aware of what happened
> > Monday, I was unconscious for about 45 secs I think according to the
> > techs. I had no idea I had my fists up or head to side. Just knew my
> > head hurt. The lights in office were killing me and I got really
> > nauseated and next thing I see are 10 people in my drs office. What
> > tests determine seizure? I hope they find out with EEG. I have facial
> > pain kind of like a vise around my head not headache exactly but
> > throbbing stabbing pain.
> >
>
>
>
> [Non-text portions of this message have been removed]
>
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