Right on Kelly. Am happy for you that you are seizure free. If we keep worrying about that 'what if' it is
just like looking over our shoulder to see if the train is coming. This is what I found also. We are willing
to admit that we have Seizures, and do what you can about it not watching for the next one as in that time we
are liable to have more than one.
Julie
Julie Hope
epilepsyhealth@sasktel.net
----- Original Message -----
From: "Kelly Porter" <race_12_1@comcast.net>
To: <epilepsy@yahoogroups.com>
Sent: Monday, January 30, 2012 10:01 PM
Subject: Re: [epilepsy] I am so depressed
First, breath. The worst thing to do for yourself is worry and panic
aobut it. Stop yourself from asking all the "what if" questions,
because they will just cause you mind to race on a lot of things that
are not likely true.
I had my right temporal lobectomy in March of 08, and not unitl last
year was a finally declared seizure free. I had to learn not to put
myself in situations that would cause triggers. Heat, stress,
dehydration, not enough sleep, to name a few. Once I learned what to
avoid, it helped a lot. Many cold meds, especially those contained
psuedophedrine, are known to interfere with your bodies absorbtion of
AED meds.
When I had my surgery this is what I was told statistic wise for my type
of seizures/surgery. This varies by seizure type, surgery, and area of
the brain. Only 10% of patients never have another seizure. The other
90% see a great reduction in the number, and a large percentage of those
eventually report being seizure free.
Even after almost 4 years I am still on 2 meds. Much less of each then
before, and off a 3rd completely. I know I will stay on them, because I
know with triggers I can have seizures still, and those would only
happen more not on meds.
I would ask your Dr. the following:
-Do we need to adjust my meds?
-What over the counter meds do I need to avoid?
Kelly
On 1/30/2012 1:26 PM, kim wrote:
>
> After my two part double surgery I had a couple of seizures the other
> day. I am still getting over it i feel. I should be seizure free and
> they can still happen with it removed!
>
[Non-text portions of this message have been removed]
------------------------------------
Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply
to them. This is especially important if you are on digest. This not only helps out the list owner but, it
makes messages much easier to read when they arrive in our inboxes.
Yahoo! Groups Links
No comments:
Post a Comment