Re: [epilepsy] Informing about EP

Sounds like you did a great job and provided some really good information,
It may have changed some of their negative beliefs about ep and sz, -
Dani's Dad Tim Heller

On Sun, Feb 26, 2012 at 5:18 PM, Millie Myers <mylmy@gogreencroft.net>wrote:

> **
>
>
> Hi everyone,
>
> I have lived in a 3 bedroom with bath apt in a retirement center
> for 15 years. Last Tues I was to MC our monthly birthday
> party. The MC is to get the program. I had asked quite a
> few people -- but I couldn't find anyone to give a program.
>
> So I decided I was going to tell them about my 50 years of
> EP. There are 150 apartments in my building and there were
> about 80 people at the party.
>
> I told them that my first szs started when I was carrying my 2nd
> and 3rd daughters but I was not DXed until my 3rd daughter was
> 2 years old. My girls were then 2, 4 and 6. They are in their
> 50's now.
>
> I told them that my szs at first were grand mal but now are more
> like complex partials-- and explained both; how much meds I
> take daily, and gave some examples of when I had szs. I told
> them there are 25 different kind of szs and about that many meds.
>
> I told them to call my daughters living in my town if I don't act
> like my usual self -- stare, act like I don't hear them, don't
> answer their questions and don't ask questions . I told them
> that my daughter's phone numbers are in my Medical Alert on
> my right wrist and on the back of my apartment door. I had also
> made papers that they could take home if they wanted my
> daughters phone numbers.
>
> I also told them about you in this group and how I had learned
> so much from you. I told them I feel very fortunate compared to
> quite a few of you who are still having szs although you have
> tried many meds, have had operations and still have szs. I also
> told them about dogs that are trained to know when you will have
> a sz.
>
> I told them that the reason I was telling them about my szs is that
> they will know what to do if and when I have another sz. I have been
> on Dilantin and Phenabarb for over 20 years and my last sz was
> 5 years ago.
>
> I got a lot of compliments that I was willing to share my story.
>
> I am telling you this because I truly believe we who have EP are the
> ones to inform and teach -- if we want people to understand EP.
>
> Millie
>
> [Non-text portions of this message have been removed]
>
>
>

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[Non-text portions of this message have been removed]

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