That was a good way to introduce everyone to epilepsy and tell them how to help.
In most cases I am comfortable telling others about my epilepsy. I will not ever mention it in a work environment again. I was fired from a job after telling someone about it. I have filed a Federal lawsuit against them and have asked for the company to pay the Epilepsy Foundation to train all their employees about EP. Take care.
Terry
Sent from my iPhone
On Feb 26, 2012, at 5:18 PM, "Millie Myers" <mylmy@gogreencroft.net> wrote:
> Hi everyone,
>
> I have lived in a 3 bedroom with bath apt in a retirement center
> for 15 years. Last Tues I was to MC our monthly birthday
> party. The MC is to get the program. I had asked quite a
> few people -- but I couldn't find anyone to give a program.
>
> So I decided I was going to tell them about my 50 years of
> EP. There are 150 apartments in my building and there were
> about 80 people at the party.
>
> I told them that my first szs started when I was carrying my 2nd
> and 3rd daughters but I was not DXed until my 3rd daughter was
> 2 years old. My girls were then 2, 4 and 6. They are in their
> 50's now.
>
> I told them that my szs at first were grand mal but now are more
> like complex partials-- and explained both; how much meds I
> take daily, and gave some examples of when I had szs. I told
> them there are 25 different kind of szs and about that many meds.
>
> I told them to call my daughters living in my town if I don't act
> like my usual self -- stare, act like I don't hear them, don't
> answer their questions and don't ask questions . I told them
> that my daughter's phone numbers are in my Medical Alert on
> my right wrist and on the back of my apartment door. I had also
> made papers that they could take home if they wanted my
> daughters phone numbers.
>
> I also told them about you in this group and how I had learned
> so much from you. I told them I feel very fortunate compared to
> quite a few of you who are still having szs although you have
> tried many meds, have had operations and still have szs. I also
> told them about dogs that are trained to know when you will have
> a sz.
>
> I told them that the reason I was telling them about my szs is that
> they will know what to do if and when I have another sz. I have been
> on Dilantin and Phenabarb for over 20 years and my last sz was
> 5 years ago.
>
> I got a lot of compliments that I was willing to share my story.
>
> I am telling you this because I truly believe we who have EP are the
> ones to inform and teach -- if we want people to understand EP.
>
> Millie
>
> [Non-text portions of this message have been removed]
>
>
>
>
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