Hi Craig,
When you called the EFA by phone, how many different people did you speak to about your questions? How many different times did you call them. Did you call the national office or branch office. Do you have the names of the people who you spoke to? Did you recall them to ask what was looked into on the subject? Would be interested in hearing your response. Take care, keep a smile on your face!
Steve
--- In epilepsy@yahoogroup
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> Does anyone in here ever get satisfaction from the EFA ? Here's why I ask. I have tried to get the EFA to publish in their magazine and on their web site to post a survey of what we believe causes our seizures we all get of every type. I have a hard time believing the EFA really wants to help us all. They have not, from what I have seen, put anything on their web site or email alerts about MSG MonoSodiumGlutamate & Nitrates in foods that "could" cause seizures in some or most of us reading this. The people who suffer the most from nitrates and MSG are being victims of the FDA,AMA,doctors,
> and nitrates in foods. "All pork meats and pork seasones products along with smoked foods will be loaded with nitrates". If people would notice an aura/s or a seizure/s within 15 minutes to 12 hours later, odds are MSG, nitrates or both helped that to have happened. I have been trying to get the EFA to publish a seizure ALERT about these foods with MSG & nitrates. I told them what happens to be now, compared to what use to happen before my surgery in 2001. I being just 1 person, can not make an influence on them as I have been told not much can be done about it all. I recently emailed a friend about this and she emailed the EFA. She was told that her & I are the only 2 people the EFA knows that has this problem with MSG. Really ? That is our EFA people. They seem to not worry about alerting any of you of what the 2 of us know the reality of MSG & nitrates. So MSG and nitrates may not affect any of you who reads this. Does that mean tomorrow,
> next week, next month or next year MSG and nitrates will not affect you or your child ? The kids and infants are at the most risk as their brains are not like an adults brain. MSG has been in our food supply since 1950. www.travelingsalema
> people telling Joe to get to work about the MSG & nitrate dangers of causing seizures, we can have our voices heard LOUD AND CLEAR. Yes I shouted because I am mad that people are so ignorant that they have no idea what we fear on a daily basis. I know some people do live in fear. I try to stay away from foods without MSG and nitrates. I do not eat outside of home much for that reason. Am I living in fear for that or am I being smart, knowing foods outside the home in fast food places and others have MSG in their foods. ALERT> String Beans at the Golden Corrals have MSG and Nirates in them as the pots have bits of ham in the beans that has MSG in it all. Ham has the nitrates. I told the manager last summer what happened to me later that evening. I knew when I ate them NOT to eat any of the ham and drain any broth from the spoon. I only ate 1/3 of a cup of the beans only. Ten hours later a GM attack happened that only lasted 3 minutes according to my
> sister. If I ate more than I did, it may had lasted 15 minutes or longer. In saying all of this, hopefully any of you that are affected the same way will use the phones and email people I mentioned. Katie at NIH also told be to contact the C D C in Atlanta Ga about food safety and the chemicals used in them. Believe me I am. Any of you can too. There is no letter " I " in the word TEAM. If we ALL team up to do what it takes, hopefully public ALERTS will be made on CNN, FNC and other news outlets. Anyone can contact me by email about this. With Gods help we can get something done here.
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