Monday, March 30, 2009

Re: [epilepsy] Re: Does This Happen To You? [Annette]

Annette,

You usually pass out with a GM. With a Complex partial
or an absence or other kinds- you don't pass out.-- your
brain just isn't working like usual. You don't hear
what is going on and sometimes can't talk. There are 25
different kinds of szs.

Millie

> Hi Millie:  I don't get Medicare  I get "Minnesota  Care"  Because I am
> from Minnesota-- I getmy meds Cheap  cuz the State pays for it and I pay a
> CO---Pay.  Oh, I was taking to a friend and she said the seizures I was
> have were GM.  But I don't understand I was sitting>>>>  I thought the GM
> is ONLY when you fall to the floor? 
>
>
>
> From: mylmy@bnin.net <mylmy@bnin.net>
> Subject: Re: [epilepsy] Re: Does This Happen To You? [Annette]
> To: epilepsy@yahoogroups.com
> Date: Saturday, March 28, 2009, 8:44 AM
>
>
>
>
>
>
> Annette,
>
> Before Medicare d -- I had been getting my meds almost free.
> Dilantin (brand name) was free. Then Medicare D came in and
> they changed it to generic. I had a complex partial-- or
> something like it and my Dr. ordered the brand name. I had
> been sz free for 4 years. I've been on a combination of Dilantin
> and Phenabarb for over 20 years.
>
> Millie
>
>>   Hi Millie : My Insurance that I get thru the State does't cover
>> regular
>> EP  meds I was on it but now I sopose cuz the Country's pinching
>> pennies 
>> they want to try me out on Generic  .   I have been on these 2 types of
>> Meds 4 years.  Maybe I will have 2 b a Guinne Pig again   ( which I
>> really
>> don't)  Maybe it takes longer/  who knows  thanks 4 your reply. 
>> ~~Annette~~
>>
>> --- On Fri, 3/27/09, mylmy@bnin.net <mylmy@bnin.net> wrote:
>>
>>
>> From: mylmy@bnin.net <mylmy@bnin.net>
>> Subject: Re: [epilepsy] Re: Does This Happen To You? [Annette]
>> To: epilepsy@yahoogroup s.com
>> Date: Friday, March 27, 2009, 8:47 PM
>>
>>
>>
>>
>>
>>
>> Anne,
>>
>> Generic meds for EP don't seem to work too well. I know I need
>> to take the Brand name. It is more expensive but if it works--fine.
>>
>> Or maybe you need another med. There are 30 different kinds of meds.
>> Or a combination. Each person has to find the one that works for them.
>>
>> Millie
>>
>>>   Hi  At   first it was Grandmal  then  I started haveing what are
>>> called
>>> Complex Partial, and Simple Partial  I just called them Medium Seizures
>>> or
>>> Small Seizures  cuz to me that is what they are to me  also "Clusters" 
>>> haveing small ones right after another. I am sopose to take Lorazapam 1
>>> mg.  When it does that,  But Latnight I was on the computer and I had 3
>>> (
>>> what I call) Complex Partial and very different I just sat at my chair
>>> andjust shook and then my head hurt like my brain was rattled
>>> (headache) 
>>> Then I read that Lamictial makes ya not sleepy  I doesnt matter what
>>> time
>>> I take my meds I still can't fall asleep.   I am now on Both Generic
>>> Keppra  & Generic Lamictal    to me I think it isn't working cuz I have
>>> not had these many seizures in years.  ~Hope this answers your
>>> questions~~      ~~Annette~~
>>>
>>> --- On Fri, 3/27/09, pat040394 <ltpat228@comcast. net> wrote:
>>>
>>>
>>> From: pat040394 <ltpat228@comcast. net>
>>> Subject: [epilepsy] Re: Does This Happen To You? [Annette]
>>> To: epilepsy@yahoogroup s.com
>>> Date: Friday, March 27, 2009, 5:18 PM
>>>
>>>
>>>
>>>
>>>
>>>
>>> Annette - what kind of epilepsy were you diagnosed?
>>>
>>> ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~
>>>
>>> --- In epilepsy@yahoogroup s.com, Annette Holm <annetteholm69@ ...>
>>> wrote:
>>>>
>>>>   I don't really know What I do know is that I have G.M (grandmals, Cp
>>>> -complex partial  what I call med.  seizures   and Sp Simple Partial
>>>> what I call little ones cuz they  last only sec.)  I have a V.N.S.  
>>>> Vagel Nerve Stimalator   I like it .  going on 8 yrs now .   
>>>> ~~Annette~~
>>>>
>>>> --- On Wed, 3/25/09, pat040394 <ltpat228@.. .> wrote:
>>>>
>>>>
>>>> From: pat040394 <ltpat228@.. .>
>>>> Subject: [epilepsy] Re: Does This Happen To You?
>>>> To: epilepsy@yahoogroup s.com
>>>> Date: Wednesday, March 25, 2009, 7:09 PM
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>> Well I called my Neuro today and left a message with her Nurses about
>>>> my
>>>> episode.
>>>> For me it's paramount as hopefully this will aide her in my diagnosis.
>>>>
>>>> What kind of epilepsy do you have?
>>>>
>>>> ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~
>>>>
>>>> --- In epilepsy@yahoogroup s.com, Annette Holm <annetteholm69@ ...>
>>>> wrote:
>>>> >
>>>> >   ok-- I was standing outside  A Hospital   cuz my stepdaughter just
>>>> had twins  and felt weird I could feel my head turn to the right  ( I
>>>> knew it wasn't sopose to )  I new it was an involentary movement (
>>>> there were other people standing near me)  but didn't notice .  which
>>>> was ok  don't want to freak them out ( some of the people know about
>>>> my seizures)   it also was 2-3 pm.   and also I felt like I was
>>>> spacy~~!!  It just seemed really odd I sopose I should tell my neuro 
>>>> X-Cept  I don't want her to(up) the meds . I hate that when they do
>>>> that. 
>>>> >
>>>> > --- On Wed, 3/25/09, pat040394 <ltpat228@ .> wrote:
>>>> >
>>>> >
>>>> > From: pat040394 <ltpat228@ .>
>>>> > Subject: [epilepsy] Re: Does This Happen To You?
>>>> > To: epilepsy@yahoogroup s.com
>>>> > Date: Wednesday, March 25, 2009, 5:19 PM
>>>> >
>>>> >
>>>> >
>>>> >
>>>> >
>>>> >
>>>> > Please tell me, Annette, what exactly happened with you.
>>>> >
>>>> > My episode occured mid afternoon.
>>>> >
>>>> > ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~
>>>> >
>>>> > --- In epilepsy@yahoogroup s.com, Annette Holm <annetteholm69@ ...>
>>>> wrote:
>>>> > >
>>>> > >   Hi~~ Yes, this has happened to me about 3 wks ago, I wasn't at
>>>> the
>>>> computer, but I have noticed it a few times,  I don't know what I'd
>>>> call it I  think it is a type of seizure cp-----sp  ?   I don't know
>>>> if this has happened to you besides being on the computer  I have
>>>> noticed when I play .  certain games on the computer this happenes
>>>> to me .  ~~Annette~~  I cannot say about others cuz they are all
>>>> different just like we are.
>>>> > >
>>>> > > --- On Wed, 3/25/09, pat040394 <ltpat228@ .> wrote:
>>>> > >
>>>> > >
>>>> > > From: pat040394 <ltpat228@ .>
>>>> > > Subject: [epilepsy] Does This Happen To You?
>>>> > > To: epilepsy@yahoogroup s.com
>>>> > > Date: Wednesday, March 25, 2009, 3:08 PM
>>>> > >
>>>> > >
>>>> > >
>>>> > >
>>>> > >
>>>> > >
>>>> > > Last Sunday I was sitting here at my computer when it occured to
>>>> me
>>>> I was staring, then my neck and head started to pull/twitch to the
>>>> right. I think when the pulling began, that's when I realized
>>>> something was odd and I shook my body so it would stop. I really had
>>>> to concentrate and force myself so my neck would go back right.
>>>> > >
>>>> > > I really can't say how long it lasted but maybe up to 30 seconds?
>>>> > > I say this as when I stare, I truly don't know how much time goes
>>>> by.
>>>> > > Afterwards I felt worn out for some reason.
>>>> > >
>>>> > > As most of you know, I'm still being tested and haven't yet been
>>>> diagnosed with epilepsy, although my Neurologist suspects absence
>>>> petit mals.
>>>> > >
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