Hi all,
You all have too much to say! I can barely keep up with you. I was
five digests behind this afternoon! I'm doing to just do all my
replies to the two remaining digests in this email. BTW, it would
really help me and others who are on digest format if you would trim
your quoted material when replying. A lot of times, there is about 3
or 4 times as much quoted material in each digest as new material.
Annette, I am insured by my state's health risk sharing pool, which
means that I pay premiums like an insurance plan, but it has similar
restrictions to medicare. I think that in most cases, if your doctor
indicates that the brand name medication is "medically necessary" you
can get the brand name approved. We were able to do this for Megan,
in spite of the new drug policy indicating that no brand name drugs
would be covered if there was a generic available. We pay a higher co-
pay ($30 for each Rx), but it's well worth it in terms of Megan's
better seizure control.
Also for Annette: Grand mal seizures are also known as generalized
tonic clonic seizures. You can fall to the floor, but if you are
seated, you might remain so even while having a tonic clonic seizure.
You generally lose consciousness during the seizure, and your muscles
spasm or contract. When Megan feels like she is going to have a
seizure and can let us know, we either sit her down or get her to
lie down so she doesn't injure herself while falling. That said,
Megan generally has only superficial injuries as the result of her
seizures. Bruises or small abrasions are usually all that happens.
It is possible for you to have more than one kind of seizure. When
you were sitting, was there anyone around to describe what was
happening? Do you have any recollection of that time? Best wishes in
getting this figured out.
For Kirst and Meghan: first off, how old is your Meghan? My Megan is
19 and will be 20 in May. We also call our Megan "Meggers" although
she is also known as Monkey and Magpie by various people :) I am
unfamiliar with the Walk for Epilepsy. Do they only do this in DC, or
are there events staged in other cities in the US on the same day?
For Melissa and Steve's reply: Steve, I think it is so great that
your surgery had such good results for you. Melissa, since
medications do not work for you and you apparently have a focus of
seizure activity in your brain, I certainly would encourage you to
explore the option of surgery.
For Jill: I can understand your worry and concern for your husband.
It sounds like he has only had one seizure so far. While it is wise
to look into it, this one seizure could just be an anomaly. Best
wishes to you both.
For travilin2, if you feel this second doctor is a better fit for
you, and you don't have much confidence in the way your case is being
handled by the first doctor and his office, I think changing would be
a good idea. You might want to investigate the reputation and
credentials of doctor number 2 before making the switch, just to be
sure.
OK, this is long and I've only read the one digest, so I'll send this
now.
Tammy
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