Sunday, October 26, 2014

Re: [epilepsy] CLOBAZAM

 

Thanks Joe.....
Did any of these other drugs you've mentioned ever control you totally but then stopped controlling ?
If any did control you ....how long was the longest time with control ?

And how long now on Onfi ?

Many Thanks
Your info means a lot to me
 


From: "Joe jdieng9@yahoo.com [epilepsy]" <epilepsy@yahoogroups.com>
To: "epilepsy@yahoogroups.com" <epilepsy@yahoogroups.com>
Sent: Sunday, October 26, 2014 7:10 PM
Subject: Re: [epilepsy] CLOBAZAM

 
I'm on Depakote ER, Keppra, Lamictal, Trileptal, and the Onfi.

Sent from my iPhone



On Oct 26, 2014, at 7:00 PM, 'logme@rogers.com' logme@rogers.com [epilepsy] <epilepsy@yahoogroups.com> wrote:

 
Hello 
I can't thank you enough for responding to my email. 
May I ask you "How long you have been on it exactly?" because my neuro calls it a Honeymoon drug.  
They added the clobazam to the keppra. 
They first added 5 mgs and grand mal seizure came back. 
Now going up to 10 mgs..... 
I am just wondering if it will last ? 
Do you mind if I ask you if you are something else along with the clobazam ? 
 
Simy 

From: "Joe jdieng9@yahoo.com [epilepsy]" <epilepsy@yahoogroups.com>
To: "epilepsy@yahoogroups.com" <epilepsy@yahoogroups.com>
Sent: Sunday, October 26, 2014 6:40 PM
Subject: Re: [epilepsy] CLOBAZAM

 
I'm on 20mg, and I haven't had any side effects but it's helped me extremely.  I was having grand mal seizures, and after taking this medicine for awhile I've had less, and less seizures.

Sent from my iPhone



On Oct 26, 2014, at 6:28 PM, 'logme@rogers.com' logme@rogers.com [epilepsy] <epilepsy@yahoogroups.com> wrote:

 
Hello
Has anyone been or is anyone now on CLOBAZAM not CLONAZEPAM  for seizures ?
If so, what qty ?
Do you have any side effects ?
How long have you been on it ?


Thanks
Simy
Ottawa, ON, Canada






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