My partner has finally had success with keppra xr and topamax together..it's
been four months seizure free, the longest she has ever gone in the ten
years she has had them..she hated the meds as she started each of them,
especially the topamax,..but I keep making her take them..eventually most of
the side effects went away..but the issue of word recall with the topamax is
still there..but...no seizures..so at least she can now work..
On Jun 22, 2011 9:32 PM, "Steve" <stephenpales@yahoo.com> wrote:
> Hi Susan,
>
> When beginning a new med it takes time for your entire body to accept a
new med. Just be careful in everyday life in the coming weeks. Relax, don't
over worry about it. If it become to much, then contact your Dr. They can
always start you with a lower dosage. It takes your body time to get used to
the med. It might just be feelings that will go away in a few days or weeks?
keep in touch!
>
> Steve
>
>
>
> --- In epilepsy@yahoogroups.com, Susan Wain <susan.wain@...> wrote:
>>
>> I started today actually with the depakote. My neurologist has me on
300 at
>> night and 100 in the am for 3 weeks. If it works....I'll ask to be put
on it
>> permanetly. If not I'll ask for Keppra or Lamitcal - whichever does NOT
cause
>> hair loss. What side effects did U have on Keppra? I have depression
and
>> anxiety and am on Paxil and other meds. My doctor told me you can have
>> hallucinations with Keppra. Did you experience anything similar?Â
BTW:Â Did U
>> have blurry vision?
>>
>>
>>
>>
>> ________________________________
>> From: Steve <stephenpales@...>
>> To: epilepsy@yahoogroups.com
>> Sent: Wed, June 22, 2011 6:28:25 PM
>> Subject: [epilepsy] Re: change of medicatio
>>
>> Â
>> Hi Susan,
>>
>> Way way back in time, early 90s, I tried Neurontin, I became Zomie!!! I
told my
>> Dr. I'm getting off it now, will try another med. That is when I tried
Keprra
>> and have been on it since.
>>
>> Now, that doesn't mean Neurontin can't work for you! All our bodies react
>> differently to a med. Also, it takes time for our bodies to adjust to a
new med,
>> so give it time.
>>
>>
>> How long have you been on it now? If so, what dosage did you start with,
and
>> what was the plan in time and dosage to increase dosage to a particular
dosage?
>> Interested hearing back from you.
>>
>> Just remember, everybody reacts differently to each med. And dosage. Keep
in
>> touch with us as to how it's working for you. take care, keep a smile on
your
>> face!
>>
>> Steve
>>
>> --- In epilepsy@yahoogroups.com, Susan Wain <susan.wain@> wrote:
>> >
>> > Steve......Did you ever try Neurontin? If so......did U have blurry
vision?ÂÂ
>> >
>> > How long did the blurry vision last?
>> >
>> >
>> >
>> >
>> > ________________________________
>> > From: Steve <stephenpales@>
>> > To: epilepsy@yahoogroups.com
>> > Sent: Sat, June 18, 2011 4:48:15 PM
>> > Subject: [epilepsy] Re: change of medicatio
>> >
>> > ÂÂ
>> > Generally in Illinois you need to be seizure free a year to drive. The
laws in
>>
>> > Illinois very somewhat. Not driving for 20 years I really didn't think
much of
>>
>> > driving again. I mean, wasn't trying to get so psyched up that if a
seizure
>> > accured, I would dive into depression. In all reality, sort of stayed
mellow
>> > taking life day by day trying to adjust to not thinking seizures 24/7.
I had an
>> >
>> > appointment with my epileptogist, was going to bring up driving later
in the
>> > appointment. well, the Dr sat down with me and said I have something
important
>>
>> > to talk with you about. Quickly got quiet, his words where "it's about
time you
>> >
>> > start driving again". Well, the tears quickly rolled down my cheeks. He
gave me
>> >
>> > the paper work, walked out of his office and in the waiting room cried
harder
>> > and more than I ever did in my entire life! 2 weeks later had my
permit, 2
>> >weeks
>> >
>> > later my license, and 3 weeks later bought a new Toyota Matrix '09!
I've been
>> > driving just over 3 years now!
>> >
>> > As far as being scared of having a seizure, as time goes on being
seizure free,
>> >
>> > very slowly you adapt to it in ways not able to explain in words, it
can only
>> >be
>> >
>> > felt in my heart. This may not make sense, but, it's still hard to
absorb that
>>
>> > I've been seizure free 4 years, 3 months and 29 days! take care, keep a
smile
>> >on
>> >
>> > your face!
>> >
>> > Steve
>> >
>> > --- In epilepsy@yahoogroups.com, Susan Wain <susan.wain@> wrote:
>> > >
>> > > Steve: Do U drive and if so are you afraid that you may have
a seizure
>> >and
>> >
>> > > cause an accident?
>> > >
>> > >
>> > >
>> > >
>> > > ________________________________
>> > > From: Steve <stephenpales@>
>> > > To: epilepsy@yahoogroups.com
>> > > Sent: Sat, June 18, 2011 10:10:39 AM
>> > > Subject: [epilepsy] Re: change of medicatio
>> > >
>> > > ÂÂÂ
>> > >
>> > > Hi Tim,
>> > >
>> > > How many different meds. Have you tried so far? Also remember, meds
can stop
>>
>> > > your seizures but to this day there is no cure to epilepsy. I've been
seizure
>> >
>> > > free since 10-19-06 but I still and and always will have epilepsy
till a cure
>> >
>> > >is
>> > >
>> > > created. Meds aren't a cure, they are simply a way to keep seizures
under
>> > > control. Best of luck Tim.
>> > >
>> > > Steve
>> > >
>> > > --- In epilepsy@yahoogroups.com, TIMOTHY BALDWIN <tbb1@> wrote:
>> > > >
>> > > > Steve,
>> > > > Maybe what FDA just approved earlier this week could be useful by
people
>> >over
>> >
>> > >
>> > > > 16y.o. having uncontrolled refractory partial seizures by providing
a
>> >better
>> >
>> >
>> > > > chance of curing my epilepsy.Potiga (ezogabine) which is the same
as
>> >Trobalt
>> >
>> >
>> > > > (retigabine) as it's referred to in Europe,is the first medicine
that will
>>
>> > >work
>> > >
>> > > >
>> > > > to keep the brains potassium channel open.Allot of current
medicines work
>> > > >toward
>> > > >
>> > > > the sodium channel.Maybe they're targeting to wrong place in
me.Afterward
>> > >maybe
>> > >
>> > > >
>> > > > I'll start driving if its prescribed and it works.Its different
than
>> >anything
>> >
>> > >
>> > > > I'd ever tried for 37 years. Timothy Baldwin
>> > > >
>> > > >
>> > > >
>> > > > ________________________________
>> > > > From: Steve <stephenpales@>
>> > > > To: epilepsy@yahoogroups.com
>> > > > Sent: Fri, June 17, 2011 5:55:14 PM
>> > > > Subject: [epilepsy] Re: change of medicatio
>> > > >
>> > > >
>> > > >
>> > > > Hey, Mark,
>> > > >
>> > > > Never say never about driving again'!!!!!!! You have only had
epilepsy just
>> >5
>> >
>> > >
>> > > > years now, that all, You have no way of knowing what the future
will bring
>>
>> > > you!
>> > > >
>> > > > Hey, in high school I never thought I would be able to survive as
an adult
>>
>> > > > because of my learning disability. Then hell began when seizures
began in
>> > >1975.
>> > >
>> > > >
>> > > > seizures couldn't get under control for the next 31 years. And now
look
>> >back
>> >
>> > >in
>> > >
>> > > >
>> > > > time at the reality of being at the same job coming on 24 years
next month.
>> >
>> > >And
>> > >
>> > > >
>> > > > this week hitting 4 2/3 years seizure free after my
>> > > > LTL!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
>> > > >
>> > > > Mark, how long have you been at your current job now? How many
people do
>> >you
>> >
>> >
>> > > > think would have loved to be working that long at the same job?
Think of
>> >the
>> >
>> >
>> > > > glass being half full, not half empty.
>> > > >
>> > > >
>> > > > And besides that, maybe a cure for epilepsy will come one day? Or,
maybe
>> > > > something else down the rode might control your seizures? Take
care, keep a
>> >
>> > > > smile on your face!
>> > > >
>> > > > Steve
>> > > >
>> > > > --- In epilepsy@yahoogroups.com, "MarkB" <thebakist@> wrote:
>> > > > >
>> > > > >
>> > > > >
>> > > > > Doris,
>> > > > >
>> > > > > I have pretty much given up hope of ever driving again. I have
had
>> >epilepsy
>> >
>> > >
>> > > > >for five (?) years now, and have had seizures every four months
like
>> > > >clockwork.
>> > > >
>> > > > >The minimum for freedom from seizures here in VA is six months.
>> > > > >
>> > > > >
>> > > > > I am moving back to NJ in a few months where the minimum period
for
>> >freedom
>> >
>> > >
>> > > > >from seizures is 1 YEAR, but that is where I grew up and I miss my
friends
>> >
>> > >up
>> > >
>> > >
>> > > > >there.
>> > > > >
>> > > > > --- In epilepsy@yahoogroups.com, "DorisY" <dorisellen@> wrote:
>> > > > > >
>> > > > > > I was wondering things about changing drugs we take. I have
been on
>> > > > > > Lamicatal for ages and take 400mg daily. I still get a couple
of
>> > > > > > nocturnal seizures during each month and experience super
insomnia.
>> > > > > > I am apprehensive about even asking for possible change because
I kind
>> > > > > > of think that would also mean a suspension of driving license
for some
>>
>> > > >period
>> > > >
>> > > > >of time. Please share things you might have had with change of
this kind.
>>
>> > > > >Thanks.
>> > > > > > Doris
>> > > > > >
>> > > > >
>> > > >
>> > > >
>> > > >
>> > > >
>> > > > [Non-text portions of this message have been removed]
>> > > >
>> > >
>> > >
>> > >
>> > >
>> > > [Non-text portions of this message have been removed]
>> > >
>> >
>> >
>> >
>> >
>> > [Non-text portions of this message have been removed]
>> >
>>
>>
>>
>>
>> [Non-text portions of this message have been removed]
>>
>
>
[Non-text portions of this message have been removed]
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